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abetalipoproteinemia
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- By rgg · Posted November 20, 2008
- 0 replies
- If your question is should you take your daughter to the NIH, absolutely! my son's doctor discouraged me for years, I knew what his illness was. I took him, the treatment you and your child receives is ...
re: POEMS
- By rgg · Posted September 10, 2007
- 0 replies
- The problem re: the insurance company refusing treatment is one that I encounted recently with medication my son has been on all his life to keep him alive. The insurance company just stopped it, with ...
abetalipoproteinemia
- By rgg · Posted September 8, 2007
- 0 replies
- anyone out there with this disorder, please drop a line. we are trying to find as many as we can. It is very rare and we are working on having research done for helping our people. write here, or contact ...