gfr 59

my DR, says I have 2nd stage kidney disease. GFR recently was 59. My kidneys are not spilling urine..Whats gsfs everyone is talking about? My Dr says not to worry but I am very worried after reading about the prognosis for kidney disease. Im 64 take meds for bp and chol. Says she wont refer me to a neph til my creatinine drops below 30 ..isnt that pretty late in the game? Also says she'll draw my creatinine annually...

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HI!
I would not be worried with a GFR (gluemeral filtration rate) of 59. Stage 2 is not that bad. Yes, some kidney disease do happen to progress rapidly. But given your age (same as my dad) and that you are on BP meds and Cholesterol meds, that is a common test result. FSGS (focal segmental glumerial sclerosis) is a disease of the kidney that is determined by a kidney biopsy. When the nephrologist takes a peice of tissue from the kidney (not a real pleasant expierence). It is a hardening of the glumeri (the little filters). It can happen for many reasons, some say its auto immune, some say its not, each case of FSGS is very specific. We all happen to have the same sympotoms at some point in the disease, but each cause is different.
I have a GFR of 16, I'm 31 and my Creatnine is a 4. I get a new kidney in 36 days from my brother.
So I would not be very worried. If your GFR is a 59 and your not spilling protein in your urine than I would say that is normal stuff do to your BP and Cholesterol.

-KB-

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I am going to be the devils advocate on this one. Maybe because of age I look at it differently. I am 62. My doctor referred me when my GFR was 43. She had never told me she was watching my kidneys. BUT I had just switched to her because I knew something was not right with me and the doctor I was going to was not giving me any good answers. My main complaint was I was tired. Not sleepy tired just no energy and I felt like I was too young to be so tired all the time. He blamed it on working 3rd shift and stress. I was on BP med and that was all I was on. I feel and still feel that BP med was part of the problem. I would be concerned but not hysterical over this. Educate yourself on which medicines are hard on the kidneys and refuse to take them. There are always others you can take instead. Check your foods and know which ones are to be avoided. You may be able to extend the life of your kidneys. I have fgn one of the rarest ones I have been told so there is very little research on it. I am now down to 11 GFR and on the transplant list. My family is very small and no one is a match. I will begin dialysis in the next few weeks. Which BP med are you on?

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Here is where I would definetly get a second opinion. Why wait until your precious kidneys are almost gone before you do something about them. Your diet is also very important in slowing the progression of kidney disease, speak to a Registered Dietician about the proper diet you should be on. Your goal is to not get to where you need dialysis or transplant but to prevent it. There's a book by Mackenzie Walser, M.D. " Coping With Kidney Disease" that can help you understand kidney disease and prevent Dialysis. Once again I would get a second opinion, it doesn't hurt. You need a Physician who is really concerned about keeping you healthy and not waiting until there's a serious problem before they do something about it. By then it may be too late.
Good luck to you and your decision. It's no fun having kidney disease, I know, I have FSGS and it's a nightmare at times.

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Please ask to be referred to a RENAL dietician, not a regular dietician. Have you, or do you have blood work done? The dietician will use your numbers from your bloodwork to determine your diet, which is mainly limiting your protein, sodium, phosphorus and potassium. Sounds easy, but those 4 things are in everything!
Your GFR of 59 and being in stage 2 is really not that bad. I had no idea I had kidney disease and didn't feel any symptoms until I was stage 4.

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If your dr won't refer you to a renal physician, it's time to change to a different primary care doctor. And if your numbers are based on bloodwork only, they aren't accurate. My sister had kidney disease and when I got an mri is showed a cyst on my kidney, I had family dr run bloodwork, and it didn't look good at all. I went to renal dr and had tests done through them that was more accurate, the urine collection for 24 hrs was much more accurate that a "guess" done by bloodwork, and had nuclear renal scan done, and results are much more accurate, the ones done by bloodwork only are based on a generic formula, and not accurate at all. I went to a dialysis info meeting with my sister and learned a lot, find out where one is in your area, they are usually free, and see about attending. There is a lot to be said for having a insurance policy that does not require referrals. My family dr is really good and whenever I ask for a referral, he gives it to me. Doesn't sound like you doctor is looking out for you best interest, I would be looking into a new one.......

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