Ehlers-Danlos National Foundation

Ehlers-Danlos National Foundation (EDNF) creates resources for those affected by the connective tissue disorder Ehlers-Danlos syndrome (EDS). Established in 1985, we are a 501(c)(3) nonprofit organization with thousands of members from the Americas and abroad. By leading the charge for knowledge and awareness about EDS, we are building a community of people who work together to create change.

Community

Contact

Ehlers-Danlos National Foundation
1760 Old Meadow Road
Suite 500
McLean, VA 22102
Phone: (703) 506-2892
Fax: (703) 506-3266
ednfstaff@ednf.org
www.ednf.org