Hello to all sufferers. Used to be happy, outgoing, adventurous and PAIN FREE until March, 2004. I had a root canal done by a dentist that must have wanted to milk my full coverage dental insurance. All I had was a tooth (#3 back upper molar) that was sensitive to cold which started in the 1990’s after a dentist re-did a filling. All I had was a tooth that was sensitive to cold, NO PAIN, or infection. The root canal caused pain that I never had and was supposed to be normal afterward. It never went away. The pain escalated and became unbearable at times. Been to several dentists for second opinions. Everyone said there was nothing wrong with the root canal. Then had a young dentist drill through a porcelain crown to see if there could be a hairline fracture, I was in the chair for 3 hours. Eventually had the tooth pulled and pain became much worse. It spread to all other areas of face, teeth, head and ear. Went to countless doctors of every kind. My story could be 10 pages long. Since then I am still suffering and my life is totally changed. The first 2 years were the worst. All the doctors say I had a pre-existing condition and I don’t believe this. I have been diagnosed with trigeminal neuralgia, trigeminal neuropathy, centralized mediated pain, pre-existing migrane condition and so on. Wish I knew what, why and how this happened. How many other people get nerve damage from a dental procedure.
I am now being treated for trigeminal neuropathy from a neurologist that gives me drugs. Started with tegratol and then switched to a gradual increase of 3600 mg. Neurontin. Been on 1800 mg Neurontin for 4 years and now I am down to 1200 mg. (Hate the Side Effects), but pain is getting worse now. Never wanted to try any of the other antisiezure drugs or antidepressants they use. I also take darvocet, ultram, klonopin for sleep and anything over the counter as needed. Also use natural alternatives which I think are very helpful. Now my pain is off and on and everywhere with all different types. My teeth, upper jaw, sinus, eye, head and ear and can go from level 2 to 9. I learned to live with the pain, but I can’t stand the numbness and what it is doing to my facial appearance. I get strange swelling, redness at times and I am losing muscle tone in my face. Seems to be getting worse over time. I am very often unable to move my face and lips normally. It affects, chewing, smiling, laughing, and talking. This makes social situations and eating difficult. Is anyone else with neuropathy experiencing this? Could I have some other diagnosis?
I have good days and bad days though. Sometimes more good and sometimes more bad. I think the weather affects this also. I would be scared to get a nerve block or Botox or any other kind of surgical treatment because I am afraid it would just create more trauma to the nerve and make me worse. Any feed back, answers or suggestions would be greatly appreciated. Good luck to everyone. It has been 5 years for me.