mwl_NCF's discussions

Orlando - FSGS & Nephrotic Syndrome Lunch & Learn

mwl_NCF
  • By mwl_NCF · Posted November 18, 2008
  • In NephSpace · 1 reply
  • Reminder - on Saturday (Nov. 22), NephCure will be hosting two FREE Luch & Learns. Please join us in New York, NY, and Orlando, FL. These half day educational sessions are designed to introduce you to ...

Volunteers Needed - Livingston, NJ

mwl_NCF
  • By mwl_NCF · Posted November 10, 2008
  • In NephSpace · 0 replies
  • For our upcoming “Las Vegas in Livingston” event on November 13, 2008, we are looking for 5 volunteers. The event will be held in Livingston, NJ, and will benefit The NephCure Foundation. Please let us ...

emBRACE a CURE - NephCure Wristbands

mwl_NCF
  • By mwl_NCF · Posted August 13, 2008
  • In NephSpace · 1 reply
  • Show your support for NephCure and invite your friends to join our cause. The Saving Kidneys. Saving Lives. wristbands come in NephCure’s signature orange color with our motto inscribed in white. Proceeds ...

Definition - Focal Segmental Glomerulosclerosis (FSGS)

mwl_NCF
  • By mwl_NCF · Posted July 3, 2008
  • In NephSpace · 0 replies
  • The most heard-of sclerotic disease is probably atherosclerosis, a condition that hardens and thickens the arteries of affected individuals. In general, the term sclerosis refers to a condition that involves ...

Definition - Nephrotic Syndrome

mwl_NCF
  • By mwl_NCF · Posted July 3, 2008
  • In NephSpace · 0 replies
  • Nephrotic syndrome is a condition marked by these symptoms: 1. very high levels of protein in the urine (proteinuria), 2. low levels of protein in the blood, 3. swelling, especially around the eyes, feet ...

NephCure Encyclopedia - FSGS & Nephrotic Syndrome in Basic Terms

mwl_NCF
  • By mwl_NCF · Posted June 30, 2008
  • In NephSpace · 0 replies
  • Both the scientific community and the lay public are clamoring for more information on Nephrotic Syndrome and FSGS. The NephCure staff receives frequent calls from families wanting to know “what’s the ...

Nephrotic Syndrome & FSGS

mwl_NCF
  • By mwl_NCF · Posted April 30, 2008
  • In NephSpace · 0 replies
  • The latest issue of the NephCure Now! e-newsletter is out. To receive a copy, please contact Miriam at mlong@nephcure.org or call 1 (866) NephCure. The NephCure Foundation ...

Nephrotic Syndrome & FSGS

mwl_NCF
  • By mwl_NCF · Posted April 30, 2008
  • In NephSpace · 0 replies
  • The latest issue of the NephCure Now! e-newsletter is out. To receive a copy, please contact Miriam at mlong@nephcure.org or call 1 (866) NephCure. The NephCure Foundation ...

Nephrotic Syndrome & FSGS

mwl_NCF
  • By mwl_NCF · Posted April 30, 2008
  • In NephSpace · 3 replies
  • The latest issue of the NephCure Now! e-newsletter is out. To receive a copy, please contact Miriam at mlong@nephcure.org or call 1 (866) NephCure. The NephCure Foundation ...

Nephrotic Syndrome & FSGS Information Update

mwl_NCF
  • By mwl_NCF · Posted April 30, 2008
  • In NephSpace · 0 replies
  • The latest issue of the NephCure Now! e-newsletter is out. To receive a copy, please contact Miriam at mlong@nephcure.org or call 1 (866) NephCure. The NephCure Foundation ...

Michigan 4th Graders Write to Congress

mwl_NCF
  • By mwl_NCF · Posted April 29, 2008
  • In NephSpace · 2 replies
  • Classmates of Molly Modes, a fourth grade student at Saint Michael Catholic School in Livonia, MI wrote almost 100 letters to their congressman asking for increased federal funding for kidney disease ...

Are you eligible?

mwl_NCF
  • By mwl_NCF · Posted April 29, 2008
  • In NephSpace · 0 replies
  • For information on current clinical trials, visit http://www.nephcure.org/News_Trials.htm or contact info@nephcure.org. The NephCure Foundation ...

Kidney Kid could be coming to your town...

mwl_NCF
  • By mwl_NCF · Posted April 29, 2008
  • In NephSpace · 0 replies
  • ...but first it needs a name. Kidney Kid made its premier at Jet Food Stores across Georgia to raise funds for NephCure's mission to support research seeking the cause and cure for Nephrotic Syndrome ...

Your Turn - Ask a Question of a Genetic Counselor

mwl_NCF
  • By mwl_NCF · Posted October 16, 2007
  • In NephSpace · 24 replies
  • POST YOUR QUESTIONS IN THIS FORUM! Andrea Uscinski, MS, Genetic Counselor and Research Coordinator at Harvard Institutes of Medicine will respond to your questions related to genetics and genetic testing ...

FREE Patient/Family Education Seminars

mwl_NCF
  • By mwl_NCF · Posted August 21, 2007
  • In NephSpace · 0 replies
  • Don't forget to register for NephCure's upcoming FSGS & Nephrotic Syndrome Patient Education Seminars which will be held in the following cities: - Portland (OR): September 8, 2007 - Baton Rouge (LA ...

FREE Patient/Family Education Seminars

mwl_NCF
  • By mwl_NCF · Posted August 21, 2007
  • In NephSpace · 0 replies
  • Don't forget to register for NephCure's upcoming FSGS & Nephrotic Syndrome Patient Education Seminars which will be held in the following cities: - Portland (OR): September 8, 2007 - Baton Rouge (LA ...

Patient/Family Education Seminars - REGISTER TODAY

mwl_NCF
  • By mwl_NCF · Posted August 21, 2007
  • In NephSpace · 0 replies
  • Don't forget to register for NephCure's upcoming FSGS & Nephrotic Syndrome Patient Education Seminars which will be held in the following cities: - Portland (OR): September 8, 2007 - Baton Rouge (LA ...

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