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mommaofnf1's discussions
The MRI results are in and good news.....
- By mommaofnf1 · Posted June 17, 2009
- In Neurofibromatosis, Inc. · 5 replies
- I just want to share a bit of great news. We are done for the year with all of the check ups. . . The hearing test , the genetisist , the orthopeadic, the eye dr , ect. ect. .... And Jenna has a clean ...
Hey guys go to supportourribbons.com
- By mommaofnf1 · Posted June 4, 2009
- In Neurofibromatosis, Inc. · 19 replies
- hey , I just found this site where you can make and buy your own ribbon magnets for your car. I just went to google and typed in nf ribbons and found this site. check it out and get a ribbon or two ...
lumps and bumps
- By mommaofnf1 · Posted May 27, 2009
- In Neurofibromatosis, Inc. · 10 replies
- when did you first get or notice you had any lumps and bumps ...
NF and LD as kids but, what do you do now.
- By mommaofnf1 · Posted May 27, 2009
- In Neurofibromatosis, Inc. · 12 replies
- Hi, Guys Just kind of curious if it's not to personal. Those of you with NF who Deal with LD . What do you do for a job.? Did the LD hold you back or did you follow your dreams and have to work harder ...
how did you decide to have children ?
- By mommaofnf1 · Posted May 24, 2009
- In Neurofibromatosis, Inc. · 17 replies
- knowing you already have nf how did you decide to have children ? and knowing you could or more likely you would pass it on? just wondering ...
need a little support these days
- By mommaofnf1 · Posted May 23, 2009
- In Neurofibromatosis, Inc. · 14 replies
- I'm looking for the answer to Why our daughter and What do we get to look foward to? But, mostly What is it this nf1. I really am looking to understand these questions. Our daughter is 11 and beautiful ...