Aluminum Toxicity/poisoning?

My 28 weeker was a great baby. I refused Hep-b & MMR shots. But around 12 months he lost most of his words. He also became consistently cranky, always moaning, squealing, humming to things like the blender, dishwasher,etc; his feeding became an issue as well. We're now treating him for reflux & cutting out dairy cause we think he has a milk protein allergy as well.
He is not the same child, he doesn't know his own name. The good thing the drs say is he has great eye contact. So they say autism is off the list. I am thankful but still worried. They do think the regression of verbal skills is neurological.
Here are my thoughts. Vaccines still have aluminum in them and the light is starting to be shed on that just like mercury/therimsol. Next, my son was on parental nutrition/TPN in the NICU which caused severe jaundice for over 3 months. TPN can have high amounts of aluminum.
Aluminum poisoning has neuro complications. Is anyone else going through this. I feel like I'm losing it. I don't know where to go to help my baby. Isn't it bad enough that he had to fight for his life in the first place and now the next battle has been placed before us. I just hope for someone else on here who knows something or just is going through something similar so I can compare symptoms. Thanks for reading.
Debbie

Edited September 27, 2008 at 3:36 pm

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My son was on TPN for about 2 weeks and had jaundice until he was 6 mos old. When we went for his 12 mos NICU Follow-up clinic appointment, they recommended a hearing test because he wouldn't respond to his name every time someone said it. He also ignored sounds that he was already familiar with- for example, if you bang two blocks together several times and he's identified the sound, he ignores it for the rest of the times that the blocks are banged together. Once his hearing test was performed, they told us that anatomically, my son's ears are fine. They noticed the behavior of ignoring sounds as well and just told us that he hears the sounds and after a while just ignores them.

He is delayed in motor skills and play skills by a couple of months and has been this way since his first evaluation at 5 mos old. He received all his vaccinations on time and does show the regular side affects from them. He has a week or so of loss of appetite. I can't say that I've noticed any difference in his cognitive skills after vaccinations, though. He seems to be on the same learning curve he's always been on...a couple of months delayed.

I know I'm not much help, but I figured sharing my son's experience would give you some info on another child.

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Your reply is of great help. The more I can compare, the better off I am. Maybe I can rule things out, or explain parts of things. Who knows. Every part helps. One question. How is your child's verbal skills? That's where I need the most comparison.

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Dear Debbie,

I am so sorry to hear that your child is going through a rough time.

I haven't read anything on aluminum toxicity, so I can't comment on that. But I did have some questions for you that I think might help other parents come up with suggestions.

(1) Is your child 12 months actual or corrected?
(2) How consistently was your child responding to his name previously?
(3) At what age did you feel this skill suddenly got lost? Or was it a gradual loss?
(4) What other skills were lost (if any)?
(5) How is he coping with his environment now?
(6) Is he enrolled in your state's EIP? What do his therapists have to say?
(7) Has he been treated or evaluated for sensory integration disorders? Just wondering b/c from what I have read, preemies are highly susceptible to getting them (especially low birth weight preemies). I wonder if his reaction to the blender (etc) is a sensory integration problem.
(8) You said that you were worried. Did the doctors seem particularly concerned? How abnormal did they think his reactions were? Did you feel like they were listening and responding appropriately to your concerns?

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I am going to try to answer as many of your questions the best that I can. Here it goes.
1) Alex is now 16 months actual & 13 months corrected. I saw the change in him at 12 months actual which was 4 months ago.
2) Alex has never responded to his own name. He however does respond to No. He pouts quite nicely.
3) He lost mama, gaga, baba, gigi and other combos around 11/12 month actual & started developing tantrums & grunting/moaning sounds to replace.
4) He was an excellent eater, starting to self feed with a spoon & stopped, he decreased his appetite in half as well, started waking in the night, trying to think of lossed things. Not too much lossed cause he was delayed in so many milestones due to prematurity. He was only rolling at this point with no other skills at all.
5) Very Cranky at all times. Very hard to handle. Tons of tantrums. We are suceeding with gross motor milestones with the help of early intervention.
6) Alex started EIP the day he came home from the NICU. He has been working with them for over a year now. We currently work with a occupational & Physical therapist. Originally they brought in someone to evaulate him for autism because he is very self-directed, hyperactive and such. I, at the time thought they had no basis and thought it was silly. They said I needed to continue to watch him for he was at high risk with the behaviors he was displaying. His current therapists are still concerned about his self-directed behavior, not responding to name, and cranky/trantrums.
7) Not sure. I will have to ask his occupational therapist.
8) The dr stated that something neurological is definitely going on but autism was not a factor cause of good eye contact. But the more I research the more I see the PDD-NOS could be a diagnosis with good eye contact and this particular pediatrician may not be properly trained in the sprectrum of autism.

Thanks for the questions

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I would start with a good hearing evaluation first. I would then see a pediatric neurologist if the pediatrician thought there were issues. Did your son receive the synagis shots for RSV?

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Andresito words are:

Mother- mom or bella (pronounced beya)
Father- dada or dad or da
Food- mumumum (maybe substitute for yumyum)
Objections- NO! NO! NO!, stop, enough (pronounced eno)
Other words- ba (for bath), du (for rubber ducky), baoon (for balloon)

Repeats only- up, down (pronounced dow), animal sounds, and other words.

He jargons like crazy and sometimes laughs like he's telling a funny story. When he does, he speaks very loudly and sometimes screams.

He signs for "more" and "all done" right now. If I verbally ask him if he wants to eat or drink and do the sign together, he will sign eat or drink.

Sometimes I can call him once and he responds, other times he just ignores me until I raise my voice and sometimes that doesn't work either. His PT thinks it's a behavioral thing as far as not following commands. He definitely can tell my tone of voice and responds when he is doing something he shouldn't or that I want him to stop.

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Sorry, forgot to add that Andresito is 16 mos real age born at 35 weeks via emergency C-section due to almost no amniotic fluid (IUGR, 2lbs 7 oz).

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becky5 ,
My son has had his hearing evaluated and that came back great.

We are scheduled to see a neurologist at Children's Hospital of Philadelphia for Low Tone & regression of verbal milestones & assesment of neuro.

Alex did receive RSV shots last winter. I'm thinking he got 5 months worth. Why?

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Just because he makes eye contact doesn't mean he doesn't have autism, my two brothers and my sister are autistic and they all make eye contact an love to cuddle, so stereotypes are just that stereotypes.. However my son is in the same boat as yours, around 15 months (actual) he lost words, and has never responded to his own name. We thought autism due to my family background, I have spoken to specialist and such and he can't get a proper diagnosis till 24 months. We worry yes, but he had started to regain some speak again, and his social interactions are improving. We became very proactive like yourself, and now when he is 20 months things are improving again.

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Also the temper tantrums and such. We take him to right track and they think the tantrums are due to his inability to express what is wrong. Things will get better hun, don't worry, and autism is not always a bad thing. My sister Jessica has a very mild case of it, and went to a normal high school like all the other kids, and is off to college all she needs is a little help with things, and Brandon does go to a special school but he is so sweet and loving. Brody is the most severe and he was obviously autistic by the age of 1, with eh rocking and banging his head, and he is currently in a group home because they can offer better care. But they are all happy children. Jessica even has a steady boyfriend (which makes my dad none to happy lol)

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It is great to hear That he is starting to improve again. Proactive for me is the only option. I was a very sick child. My doctors treated me as if I was faking it most days or that it was all in my head. I became extremely ill from the age of 8 to 14 till I diagnosed myself with a very rare birth defect (only 7th in the world). After I brought my diagnosis to Childrens Hospital of Philadelphia, the surgeons concurred & I received multiple surgeries to start the healing. I was my own advocate. When my son was born premature, I knew I was going to have to became his advocate so that he did not fall between the cracks like I had.
I will do anything to protect my child and to help him strive on his own. Thank you so much for you last bit of info, that was very important to me. I'm afraid Alex's pediatrician isn't trained on how to properly diagnose autism and assumed that the "eye contact" was a staple in the spectrum. But I am thinking Alex is possibly PDD-NOS.

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Autism doesn't scare me, it actually gives me hope. I have seen first hand children recover from diet, therapy and such. If it isn't autism that will scare me. The unknown will scare me. Thanks for your support. I needed this badly this week. I feel like I almost broke this week.

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Update! Alex is now 2 years & 3 months old. He was diagnosed a month after his 2nd birthday with Classic Autism/Severely Autistic. I knew he had Autism but had no clue it was severe. I thought he was high functioning. That diagnosis rocked our world. Severeal weeks later his MRI results came back saying that he has Hypoplasia (Thin) of Corpus Collosum (bridge that connects the 2 sides of the brain) & he also has a Neuronal Migration Disorder (NMD) in the brain. Basically 2 cells never made it 2 their final destination in the brain & are non-functioning. Even though they can see these 2 cells, they can't identify what their purpose would have been. They are now doing genetic testing & we are waiting on the results. They highly suspect that he has a mild form of Fragile X. It's been a rough summer. We're glad to have answers finally, but are upset to learn that he has brain birth defects that cause the Autism.
Turns out the day Alex got diagnosed, I found out I was pregnant again. We were trying to get pregnant but now with everything that has happened, we are scared for the new baby. Turns out I have a mutated gene as well. Plus my rare birth defects to top. So if we have a boy, there is a large chance the baby will be just like Alex. Regardless of gender, the new baby has a 50% chance of developing a variation of my birth defect. I had done genetic counseling in the past & was given bad info. If I had known, we would have never planned another baby.
It is what it is. I love my son, I love our new baby to be & even if it may be hard at times, it is all worth it!!! I can't imagine my life differently.

Sorry if I rambled. I think I needed to vent.

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I'm searching for answers for my children and stumbled on your posting on aluminum toxicity. I hope your son is making progress now that you have a diagnosis! I have a daughter with suspected ASD and now my son is showing signs of toxicity from of all things breast feeding! (aluminum toxicity). HIs blood level was 17 ug/L where 9 is supposed to be the highest range in normal. we are also doing genetic tests and I wondered which ones you had done if you dno't mind sharing. you can message me if you prefer rather than post. Im desperate and racing against time to help my baby and am hoping for an MRI and genetic testing for my daughter soon.

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My views have changed so drastically since I started posting in this topic. However some things I still believe. So as I stated before, Alex has Hypoplasia of the Corpus Callosum (thin) which now believe is his actual cause for the Autism. I still believe that the Aluminum in solutions given during surgery, TPN, vaccines & such, agitate his condition. But this is based only on my observations.
The MRI is what I did 1st after the diagnosis of Autism. This is the most important key for us. We did a full round of genetic testing & so far everything has came back ok. But some testing looks like it was never sent out. Seeing the neurologist in a week to ask.
I have done extensive research on Aluminum toxicity, so if you have any questions, feel free to ask. I was originally giving Alex Magnesium Citrate to help his body rid of any excess. Not sure if it worked, but it didn't hurt.
I can give you my email if you need it. Thanks for posting.

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wow, i just found out after many years of thinking my son had autism that he was autistic dec 21, 09 he'll be four in may and i didnt know you could get an mri to tell how it may have caused it i was told to get genetic testing an the fragile x test too and i found out we were pregnant a little after walker was 2 an my little girl is about 14months old now and may have autism but we wouldnt change either one of them for the world. I love them so so much i just want to help them out as much as i can but i think Emily could just mimic what walkers doing but not sure its tricky...do they sadate the baby when the do an mri cause walker would not understand what was going on and he has lots of sensory issues and a mind of a two year old in some areas and i know he would be so scared i just want to help him

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Yes, they typically will sedate toddlers to do a Mri. They do a twilight for them. However, if you think your child can lay still & follow instructions, every one would prefer no sedation.

Not all would recommend a MRI after diagnosis, but to me it made sense. My son was born 3 months early so the possibilities that something didn't form right were there. It made sense to check. This may not be the case for all. But I believe that autism is neurologically based & it is a good thing to rule out any neuronal migration disorders, malformations & such. But do weigh the sedation versus the benefits. Alex takes a couple of weeks to clear the sedation from his body. His loses some verbal skills during those weeks. Sorry if I jump around, I just gave birth to my 2nd child.
So some believe that children of autism have larger frontal lobes and cerebellum. Can't remember right now if I got the right parts of the brain. Sorry. Personally if you are going to do the mri I would mainly be concerned they look for neuronal migration disorders, malformations & such. I would suggest to do the genetic testing first. That will help rule out or give them an idea of what to look for.
Are you seeing a neurologist or geneticist? Any questions, I am here.
Good luck & take care,
Debbie

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