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menkesdisorder's discussions

Menkes disease

menkesdisorder
  • By menkesdisorder · Posted May 20, 2009
  • In NORD Rare Disease · 17 replies
  • My son has Menkes disease. It is a rare genetic disorder. Does anyone here have any advice? I can't get any copper supplements here for my son. I need some information on what is the progression of the ...

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