Has anyone experienced this?

• By evag
• Posted May 2, 2008 at 12:41 pm

I have a lot of itching when I lay down at night. It starts at the feet then legs and arms. So I get out the benadryl it helps a lot, i just dont want to take unnessary meds. No spots or rashes

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• By mamagemini
• Posted May 2, 2008 at 1:13 pm

I take an antihistimine at night for the cough from the lisinipril...and to help me sleep. I can sleep in the day but night time is hard.

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• By sk1
• Posted May 2, 2008 at 2:43 pm

do you have pain with the numbing and itching in your back? I do. It gets bad when i'm standing to long doing dishes or cooking. I feel like i'm crazy also. For a disease that has no symptoms!! There certainly are many.

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• By evag
• Posted May 3, 2008 at 5:13 pm

I have a lot of pain in the morning before I get out of bed. I lay there thinking I will be ok , if I just lay there for awhile. Not..... I make myself get up, the pain feels like authritis. I just started feeling this way since being weened off the pred. Once I start moving around, then I am ok.

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• By mamagemini
• Posted May 4, 2008 at 12:16 am

evag - what cholesterol medicine are you on?
sk1 - I am right there with you! Thats why I posted it, I wanted to make sure I wasn't alone!! I think it is the prednisone! Are you on it?

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• By sk1
• Posted May 5, 2008 at 9:19 am

mamag - No I was on prednisone briefly about a year and half ago. I couldn't tolerate it at all. This is why i feel so strongly about how miserable this disease is. As I have mentioned before i haven't had health insurance since then so i have only been able to afford basic meds. i.e.. blood pressure, thyroid and sodium bicarb. Those are the 4.00 meds at wal-mart. I just got married on 4/26 and will now have health insurance. The meds i'm suppose to be on are over 1,000.00 per month.
The thing is that once you get to my stage 29 gfr and long before you most certainly do have problems even without the meds. I am in extreme pain, etreme fatigue, and catch any germ that i come in contact with. I lost 2 jobs over this disease.

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• By mamagemini
• Posted May 5, 2008 at 10:29 am

OH NO!!
Did you apply for welfare medical?

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• By sk1
• Posted May 16, 2008 at 2:51 pm

oh yes! And ssi. Denied.

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• By mamagemini
• Posted May 16, 2008 at 3:50 pm

WHAT??? WHY!?!?!

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• By sk1
• Posted May 17, 2008 at 8:07 am

Because it's the world we live in. In the state of maryland medical assistance is not based on need of medical care. And on the government level it is based on if you can work at all. According to them i am able to work enough to make 900.00 per month and that should be enough to take care of me. I have been fighting this by myself for 1 1/2 years. The next option is to get an attorney wich I am going to do now. I will get all of my back money minus their 25%. But i will never get back my health and what no treatment has cost me.
SSD told to just wait til i had to go on dialysis and i would get all the help i needed with no questions asked. I couldn't believe those words came out of that mans mouth!!

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• By mamagemini
• Posted May 18, 2008 at 1:09 am

omg.
that is just so wrong on so many levels.
why is it that in other countries they get health treatment but here we have t opay for it out the butt just to get some medicine to stay alive? It makes me so angry.
It's like me, I have insuraunce but I can not ever leave or more anywhere else unless I want to pay Cobra...Cobra is WAAAAAY high. No other job will t ake me due to a pre-exisisting condition. So here I stay.
I am so glad that I do have ins. I just hope every day that i stay around energetic enough to keep the ins!!
I wish there was a way to help!! How have you done it??

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• By Dux
• Posted May 18, 2008 at 10:31 am

I read this post in total disbelief. I sit here just shaking my head. I also do not trust any Political Party to make a dent in how this country treats those that are sick. Left or Right come January '09. We are being sold down the river. How sad.

Itching however, is a side effect of the pred. This site talks about what the side effects are:

http://www.medicinenet.com/prednisone-oral/article.htm

Itching seems to fall under what they call a "serious allergic reaction. " What a wonderful drug the pred is. Not! I read the side effects and totally shake my head. No one is thinking outside of the box. The drug companies love their meds that take 3 other meds to treat. More money in their pockets.

On the pred. however, our daughter skin would flake from head to toe. There was also some itching. We treated it with a "minimum daily dose" of Vit. E. More is not better here. Within a week these symptoms were gone.

As I have been saying only the Vit. E in a liquid gelcap. The dry is no good, and best from your local health food store.

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