mamagemini's journal

The bones they are a-hurtin

mamagemini
  • By mamagemini · Posted November 12, 2008
  • 12 replies
  • Since getting off Pred my bones have started to hurt. I have been waking up with sore hands, feet and hip. After moving around for an hour my hands can finally bend without pain. Well mild pain but dealable ...

sometimes ya just gotta

mamagemini
  • By mamagemini · Posted November 4, 2008
  • 17 replies
  • I had over 5000mgs of sodium today. I just couldn't resist yet again. I have been feeling better so I thought I would. I hope it doesn't back fire at all this time. just once. I won't do it again. has ...

Diovan

mamagemini
  • By mamagemini · Posted September 16, 2008
  • 7 replies
  • Is anyone here on Diovan? I seem to be having more palpitations and hot flashes more than before. Plus my blood pressure went back up to 134/84. It had leveled down to 118/88..now back up. Not much but ...

Blood tests

mamagemini
  • By mamagemini · Posted August 15, 2008
  • 4 replies
  • Ack. I got my new ones yesterday and kinda put me in a funk. My calcium is high and my chloride is high. My cholesterol still way up there. Now it is 315....sucks. They want to put me on another cholesterol ...

Tonight a craving kicked in

mamagemini
  • By mamagemini · Posted July 25, 2008
  • 1 reply
  • I got this flipping craving for some dry salty chips. Yes, I had some. Tortilla chips and they were good. They have about 170 mgs for 20 chips. Going to San Diego tomorrow and hope that the weekend is ...

July 9th, 2008 - Bill #HR6331 Passes

mamagemini
  • By mamagemini · Posted July 14, 2008
  • 0 replies
  • I received this from my senators office today on the petition I signed: Thank you for contacting me regarding legislation to improve kidney care. I appreciate hearing from you and welcome the opportunity ...

For those needing help with prescription drugs...

mamagemini
  • By mamagemini · Posted July 9, 2008
  • 3 replies
  • take a look at this website: http://kidney.niddk.nih.gov/kudiseases/p ubs/financialhelp/ There is also: The Partnership for Prescription Assistance provides a website that directs patients, caregivers ...

One of those days...

mamagemini
  • By mamagemini · Posted July 7, 2008
  • 12 replies
  • I woke up feeling sick this morning. Nausea, stomach cramps, headache, lethargic and the yucky D. Went back to bed for 4 more hours...until noon. Got up and went to get some food for the week and 7up ...

Different types of FSGS?

mamagemini
  • By mamagemini · Posted July 3, 2008
  • 21 replies
  • Someone posted the definition of FSGS and it got me looking so I went and found the types. I was told I had "Tip Lesion FSGS" and all that came into my picture was the tip of the kidney was scarred. So ...

Anyone have all 3?

mamagemini
  • By mamagemini · Posted June 28, 2008
  • 10 replies
  • I have all 3 - FSGS, NS and MCD. With the wonderful HIGH cholesterol that never goes down and high bp. Oh and the never ending edema...anyone ...

My body hates me...

mamagemini
  • By mamagemini · Posted June 3, 2008
  • 13 replies
  • I swear it does. 2 weeks ago I came down with what my nephro is calling a "bug." I was on my way to work feeling a little nauseus when all of the sudden it was severe! I was in the farthest lane driving ...

Great link on high sodium in restaurant foods!!

mamagemini
  • By mamagemini · Posted April 30, 2008
  • 3 replies
  • Finally someone talks about high sodium on a popular website: http://health.yahoo.com/experts/eatthis/ 2591/20-saltiest-foods-in-america/;_ylt= Akn2LA.2S7B3PsasmDKb.s3X3JV4 ...

Has anyone experienced this?

mamagemini
  • By mamagemini · Posted April 30, 2008
  • 12 replies
  • In the past 6months I have noticed a numbing, itchy feeling that drives me nuts. It is in my back under my right shoulder blade. I have asked people to look at the area and there is nothing there...makes ...

Ya know....

mamagemini
  • By mamagemini · Posted April 1, 2008
  • 25 replies
  • I was just thinking...dangerous I know...but the 2 nephro doctors I have seen both tell me that I am the ONLY white female here that has this. I see on here A LOT of us have it no matter what color or ...

A little about me...

mamagemini
  • By mamagemini · Posted March 25, 2008
  • 4 replies
  • I was diagnosed in 2005. I went to bed with swollen feet thinking it was just something new. next morning I was throwing up, non-stop. I was finally able to get in 2 days later and they did a urine test ...

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