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If you have Gerstmann-Straussler-Scheinker Disease Or GSS please let me know I would like to talk to you. My husband has this and is part of the Indiana kindred. If you are from the the united states than you are a relative of my husbands as we are the only family here that has this. There are other lines in other countrys but only one in the US.
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Maj:
And all of you who are involved in this GSS discussion - My husband lost his wife to this disease in 2005. He has 3 children who may or may not also carry the disease. His wife was from Louisiana and she lost her mother and 3 siblings to this disease. Her disease presented at about age 38 and she died at 43. This is a silent nightmare that hangs over our heads on a daily basis. There is a Doctor at Indiana University, Martin Farlow, who is studying this right now.
It is very enlightening to finally find a group that knows about this disease and is connected to it somehow!
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