kosby's discussions

BAD CT/PET

kosby
  • By kosby · Posted yesterday at 3:51 pm
  • In Lung Cancer Alliance Survivors · 10 replies
  • Today I got knocked on my butt - I have some pretty extensive disease progrssion and will start a new chemo of cisplatin and taxotere 12/1/08. I am told this can be a rough combo - is there anyone that ...

Extreme Fatigue

kosby
  • By kosby · Posted October 24, 2008
  • In Lung Cancer Alliance Survivors · 6 replies
  • WOW!! It is difficult for me to believe how tired and weak I am. I had a bout with pnemonia, was in the hospital for 8 days and felt great when I got out. I had chemo (carboplatin+alimta+avastin) a week ...

Made a wrong decision . . .

kosby
  • By kosby · Posted August 25, 2008
  • In Lung Cancer Alliance Survivors · 20 replies
  • Wow ! I was doing great on Alimta - scans continued to show shrinkage. Suggested I take a "drug vacation" and just do Avastin - so did. Now my scans show worsening of disease and will start a new chemo ...

Twin Cities 2008 Lung Run/Walk

kosby
  • By kosby · Posted August 6, 2008
  • In Lung Cancer Alliance Survivors · 11 replies
  • Perhaps this is not the right topic to choose - however, to me the Breath of Hope Lung Foundation's walk is certainly going to be in the news as we move closer to the 9-13-08 event day. Join us for A ...

No symptoms & on chemo

kosby
  • By kosby · Posted July 15, 2008
  • In Lung Cancer Alliance Survivors · 4 replies
  • I don't post often but I log-in daily and read about what is going on with others. My prayers are with each of. I feel so fortunate and almost guilty sometimes that I have had things relatively easy since ...

Brain radiation . . .

kosby
  • By kosby · Posted July 9, 2008
  • In Lung Cancer Alliance Survivors · 13 replies
  • A dear friend of the family was dx with sclc undifferentiated. The onc said they do not stage sclc and that his recommended treatment is chemo w/concurrent radiation and then when that is over radiation ...

Info please . . . . .

kosby
  • By kosby · Posted June 22, 2008
  • In Lung Cancer Alliance Survivors · 7 replies
  • I have been a member of this community for 15 months. Though I seldom post, I read the posts on a regular basis. Now I am reaching out to all of you for some info for a friend of the family. Vicki was ...

$65 million gift to U of MN has big goal: Cure cancer

kosby
  • By kosby · Posted April 11, 2008
  • In Lung Cancer Alliance Survivors · 0 replies
  • This donation may not be totally dedicated to lung cancer but I am confident part of it will be used for LC as there is a great deal of research being done there by Dr. Dudak. $65 million gift to U has ...

Alimta working - why stop it?

kosby
  • By kosby · Posted April 3, 2008
  • In Lung Cancer Alliance Survivors · 11 replies
  • After I flunked the Tarceva trial with/without Avastin in December, I went on Alimta. It was determined I was not receiving the Avastin and the Tarceva was not working. I just had my 5th infusion and ...

Still no daily newsletters . . .

kosby
  • By kosby · Posted March 23, 2008
  • In Lung Cancer Alliance Survivors · 3 replies
  • Will someone please tell me what I am doing wrong that I am not receiving any newsletters? I have done what Walter suggested and I still get nothing. Thank you. Kathy ...

Old was better . . . .

kosby
  • By kosby · Posted March 15, 2008
  • In Lung Cancer Alliance Survivors · 1 reply
  • I guess all things new need learning but I liked the old format better than the new. It was easier to navigate and find things. I have not yet received a daily newsletter. I am confident I will learn ...

Purpose of dexamethasone???

kosby
  • By kosby · Posted March 13, 2008
  • In Lung Cancer Alliance Survivors · 5 replies
  • I see some comments about dexamethasone - I take it the day before, day of and day after chemo. My first line of treatment (Taxol/Carboplatin) I only had an infusion of it prior to the chemo and it never ...

Akimta & Avastin

kosby
  • By kosby · Posted March 10, 2008
  • In Lung Cancer Alliance Survivors · 9 replies
  • I have had 3 Alimta infusions and my CT scan showed modest shrinkage. The doctor was very pleased and will now be adding Avastin. I have a CT neck to pelvis scan tomorrow and an MRI to clear me for the ...

1 year survivor - I feel so fortunate . . .

kosby
  • By kosby · Posted February 28, 2008
  • In Lung Cancer Alliance Survivors · 13 replies
  • I am now officially a 1 year survivor and feel so fortunate and blessed. A year ago I never dreamed I would be here today having been dx IIIb - T2N3M0. At first I viewed my dx as an immediate death sentence ...

IIIB Recurrent spread to kidney - surgery

kosby
  • By kosby · Posted January 6, 2008
  • In Lung Cancer Alliance Survivors · 4 replies
  • I have something in my left kidney - very small - however, they believe it to be mets from the primary. My first question to the onc was can we take it out. He said he doubted we could find a surgeon ...

Alimta Successes

kosby
  • By kosby · Posted December 31, 2007
  • In Lung Cancer Alliance Survivors · 27 replies
  • Well I have tried to get through the holiday season without too much stress so I decided that for a week I was going to have no cancer and enjoy my holiday. I did quite well. Now, it's back to reality ...

Tarceva - No response

kosby
  • By kosby · Posted December 22, 2007
  • In Lung Cancer Alliance Survivors · 6 replies
  • I was on a Tarceva/Avastin or placebo trial - I flunked out after 6 weeks. My cancer grew and spread to my left kidney. I am asymptomatic and feel good, except for mild fatigure and some irritability ...

Chemo Cuts

kosby
  • By kosby · Posted December 6, 2007
  • In Lung Cancer Alliance Survivors · 5 replies
  • This may not be the kind of Good News to be posted here - but it was Good News to me. Nine months ago when I was dx I never thought I would see this holiday season. I was scared and frightened. One of ...

NO TARCEVA RASH MEANS NO GOOD

kosby
  • By kosby · Posted November 28, 2007
  • In Lung Cancer Alliance Survivors · 11 replies
  • I am getting really bummed out reading all of the comments about Tarceva and the worse the rash the better the results. I have been on Tarceva now for 2 weeks and I keep waiting for the rash - I even ...

Tarceva Skin Rash Appearance

kosby
  • By kosby · Posted November 24, 2007
  • In Lung Cancer Alliance Survivors · 7 replies
  • I have been on Tarceva now for 12 days and I am just starting to get what may be a rash. I have patches of dry skin in several places but no real acne like bumps - I have heard that the more severe the ...

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