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kimmym91's discussions

PTSD article interview

By kimmym91 · Posted June 25, 2009
In Preemie · 2 replies
Hi, All! This article was posted by Katek regarding PTSD in NICU parents. http://www.lpch.org/aboutus/news/release s/2009/ptsd.html The article was written by a Lucile Packard Children's Hospital at Stanford ...

Jax's first year video/slideshow

By kimmym91 · Posted May 18, 2009
In Preemie · 6 replies
Hey everyone! Jax turned one on May 2nd and I made a slideshow documenting his first year. Here is the link. Pardon the ads the site puts up...so annoying! lol http://www.veoh.com/browse/videos/catego ...

Wheezing??

By kimmym91 · Posted February 23, 2009
In Preemie · 2 replies
My son is almost 10 months, just over 7 months adjusted (29+2 weeker). He has only had respiratory issues when he was post-op or very sick and had to be intubated. However, he doesn't have to take any ...

Thank you Stanford but we are blowin' this joint!

By kimmym91 · Posted February 6, 2009
In Preemie · 15 replies
After 9 months and 4 days, Jax is leaving the hospital as most other babies would leave the hospital...in one piece and as a healthy little boy. He has proper plumbing, is without any medications and ...

Jax's SUCCESS with ileostomy takedown!

By kimmym91 · Posted January 27, 2009
In Preemie · 3 replies
Update! Today, 24 hours after surgery, Jax pooped...twice...from his butt!!!!!!!!!!!!! Yay for poop! We will start clear liquids tomorrow! So today has gone very well, knock on wood! Dr. Sylvester said ...

Losing my mind over his eating!!!!!!!!!! Help!!!!

By kimmym91 · Posted January 24, 2009
In Preemie · 10 replies
Argh. I am just beyond stressed right now in regards to Jax's feeding. He has always eaten by mouth and has never had an aversion to eating, surprisingly. He has not required the use of an NG tube since ...

Jax's wonderful progress

By kimmym91 · Posted January 21, 2009
In Preemie · 5 replies
Just want to share in my excitement! Jax's barium enema came back NEGATIVE for strictures (narrowings in the intestines that would require removal...first time it has ever been negative) and NEGATIVE ...

Jax will have his reconnection in a few weeks!

By kimmym91 · Posted January 8, 2009
In Preemie · 14 replies
So the original plan was to have Jax's reconnection surgery after RSV season (he had his last resection/ostomy in Sept and began eating Oct 1st). However, we had an appt with GI and Ped Surg today and ...

Reconnection post ostomy/NEC

By kimmym91 · Posted December 26, 2008
In Preemie · 8 replies
Hi! My son, Jax, will have his intestinal reconnection surgery in the Spring sometime. He has always had a very difficult time with his surgeries in the past (3 resections and one hehiscence repair because ...

We are getting his Broviac out Monday!

By kimmym91 · Posted December 21, 2008
In Preemie · 2 replies
Jax had his GI appt on Wednesday and he proved he can have great weight gain WITHOUT the help of overnight Lipids! So they "approved" him to have his Broviac pulled! Yippppeeee!!!! On Thurs night I went ...

Post Traumatic Stress?

By kimmym91 · Posted December 15, 2008
In Preemie · 34 replies
My son spent 6 months in the NICU and had to fight hard for his life several times. There were a few times when the medical staff did not think he would survive. Needless to say, I was under quite a bit ...

No more lipids!

By kimmym91 · Posted December 11, 2008
In Preemie · 1 reply
I just want to share that yesterday my son saw the GI docs and he FINALLY met the weight gain they wanted so we are DONE WITH THE LIPIDS!!!! They kept wanting him to average 20-25 grams/day of weight ...

Always changing ileostomy bag! Help!

By kimmym91 · Posted December 8, 2008
In Preemie · 15 replies
My son has had an ilesotomy bag since Sept. Since he has gone to ad lib feeds I am changing that darn thing 2-3 times A DAY! He has a double fistula on his lower right side. We are currently using the ...

Broviac line suggestion

By kimmym91 · Posted December 3, 2008
In Preemie · 3 replies
My son is at home but he has a Broviac central line and an ileostomy on the SAME side of his body and the line hangs down just long enough to be right next to the ostomy, which leaks once or twice a day ...

Tummy Time

By kimmym91 · Posted November 29, 2008
In Preemie · 7 replies
My son is a former 29 weeker who is now almost 7 months, 4 1/2 months adjusted. He HATES tummy time and screams anytime we try to encourage him. I have tried a boppy to prop him up more and adjusted tummy ...

poor breastmilk supply and Neocate

By kimmym91 · Posted November 23, 2008
In Preemie · 7 replies
My son is a former 29 weeker who has had NEC twice, 4 bowel resections and one pending in the Spring. Needless to say, he has had a lot of problems with his poor belly. He is now 6 1/2 months old (4 mos ...

Jaxon is Home

By kimmym91 · Posted November 21, 2008
In Preemie · 16 replies
My son, Jaxon, came home November 4th, 2008 after 186 days in the NICU. He was a 29 weeker who was born on room air and doing perfectly! However, on day 10 of his life he developed NEC and went into septic ...

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kimmym91's discussions

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