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Cyclosporine has anyone used this med, cus my doc just put me on it, how did it make u feel and all..
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Cyclosporine
- By kimikiwi1987
- Posted May 29, 2009 at 8:42 pm · 12 replies
- Shared with the public
Explore topics in this journal entry and replies:
Kidney transplant Cyclosporine Mycophenolate mofetil Vasculitis Azathioprine Pain Cytoxan Prednisone Cozaar Enalapril
12 replies
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- Newest first
- By lriso
- Posted May 30, 2009 at 6:08 am
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I've been on cyclosporine for about a year and a half. Side effects have been minimal. Nothing like prednisone. All I've experienced is some mild GI discomfort. I've not even noticed being more susceptible to infections or getting sick.
- By juliegirl1205
- Posted May 30, 2009 at 9:24 am
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My son has been on cyclosporine for about two years now.He 's had basically no side effects at least that are visable.He was on prednisone for about 6 years constant and is still coping with those side effects.Good luck to you hope you have the same response with the cyclosporine!!!
- By -Jamesy-
- Posted May 30, 2009 at 9:30 am
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Hey, i have been on cyclosporin (now called ciclosporin) for about 5 years now. A very good immunosuppressant drug, stops t-cell proliferation which in turn reduces an immune response. The side effects are minimal, i agree with the other reply that they are much less severe than Prednisalone. There is a excessive hair growth involved, some GI distrubances and it can also cause a little bit of easy bruising i believe. I must warn u, don't take it wth Grapefruit juice, or drink Grapefruit juice an hour before or after taking a dose, it interferes with the Cytochrome involved in its metabolism.
Hope this helps :)
- By yacar
- Posted May 30, 2009 at 10:53 am
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My 10 year old son has been on Cyclosporine for two years now. First year he was in total remission with no need for Prednisone. On July 2008 he got a relapse, and has had a relapse every month since then. He takes Prednisone to go back into remission. I don't see any improvement in his health status since he continues having those relapses, awful headaches and stomachaches. Yesterday our doctor told us to increase the dose of cyclosporine to 2ml so I'm not sure if he was on a really low dose before....
- By yockenthwaite
- Posted May 30, 2009 at 11:25 am
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I was prescribed this drug back in 2005, along with others to try to control my cerebral vasculitis. I found it very good - few side effects, and much better in that respect than e.g. Azathioprine or Mycophenolate Mofetil which give me bad nausea and diarrhoea. But the one problem I had with it was that it pushed up my blood pressure. We would have put up with that, treating the blood pressure with drugs, but then the Cyclosporine stopped controlling my life-threatening vasculitis, so I was taken off it after all and moved onto another drug.
- By MacLean
- Posted May 30, 2009 at 12:10 pm
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Over seven years have past since I started on cyclosporine. Of all the drugs I tried to get to remission status this was the only successful one. The side effects are few and easily dealt with. The biggie for me was extra hair growth on my face. However, now that I am on a low dose, that is no longer of any concern.
Many times I have tried to wean off cyclosporine completely but the MGN just keeps charging back so it looks as if cyclosporine and I will be constant companions for the rest of my life.
One caution I would post is that high doses of cyclosporine over a long period of time tend to lower kidney function so you should be constantly monitored. This has been my experience. Would I follow this treatment again if given a choice? Absolutely I would ... it was successful. I have been in a "drug controlled remission" for nearly two years with an excellent quality of life. My new normal. Good luck to you.
- By rhohill11
- Posted May 30, 2009 at 5:32 pm
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I've been on Cyclosporine since my kidney transplant in 2001. Facial hair growth is fairly easy to deal with and I've had no other side effects. I must have blood tests every month or two in order to check Cyclosporine levels as it's a "two-edged sword"! Either too much or too little can damage kidneys. As long as levels are checked, regularly, it's okay. Grapefruit and grapefruit juice are the only things I cannot have -- ever!
- By Kristie13
- Posted May 30, 2009 at 5:48 pm
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My 5 y.o. daugther has been on cyclosporine for 3 years now. As many have already mentioned, the excess facial and body hair at first was a concern, but it is no longer visible on her at the current dose. They do monitor the levels regularly with blood work. I think the most concerning about this drug is the possible side effects which could include kidney damage or malignancy. But I think at lower doses, the risk of something like that is lessened. She has tolerated it really well so far and it has kept her in remission for over a year and a half prior to her recent string of relapses.
- By wadeb08
- Posted May 31, 2009 at 1:28 am
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I've been on cyclosporine for 31/2 months now with very few side effects, mainly a burning sensation in my hands and feet about 2hrs after I take my dosage. I have not been in remission yet as my Neph. is still trying to figure out the correct dosage that will work for me, but I do feel pretty good since I've been on this drug and I have lots of energy. Good luck to you.
- By beemom
- Posted May 31, 2009 at 11:28 am
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Hi,
My 11yr old daughter was diagnosed with FSGS in November. She's on cyclosporine, prednisone, enalapril and cozaar. No side-effects from the cyclosporine except very dark and bushy eyebrows. Be very careful with consuming too much potassium because it makes you retain potassium.
Good luck to you! :)
- By kimikiwi1987
- Posted May 31, 2009 at 11:30 am
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thank you everyone for all ur advice.....
- By Nash
- Posted June 8, 2009 at 5:32 am
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Hi I started cyclo on Saturday and have now decided to stop taking it. I have been on 300 mg a day and the side effects are too much for me. Constant pain in my stomach and keep throwing up. I had less side effects from cytoxan.
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