After seeing a neurologist he immediately diagnosed me with autonomic failure, following gastroparesis, slow colon, a cat eye, tachyardia upon standing, low blood pressure, now still on a nj tube. Anyone out there can help me with this disease and let me know the life expcentancy?
I have two young kids and am becoming very concerned.
They are also doing a spinal tap and a MRI and sending me to Dr. Lowe a world known neurolgist for autonomic neuropathy he has even wrote a book on it lucky that he is near by where i live he is in halifax ns.
I am running hydralyte through my nj tube mixed with formula in order to be able to function right now and am stable hoping this doesnt keep pregressing so fast.
He is talking to dr.lowe about possibly starting IVIG to see if I will benenfet from it.
Who knows right now learning to live one day at a time and enjoying my childern and husband right now life truly is a gift I wish more people would realize this.