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Emma's Story

Emma's follow up dr visit

kbarber2007
  • By kbarber2007 · Posted July 9, 2009
  • 18 replies
  • Hey everyone! I wanted to share some great news regarding my daughter Emma's battle with Nephrotic Syndrome. I have posted many journal entries and discussions over the past year and a half since she ...

Good News......

kbarber2007
  • By kbarber2007 · Posted March 16, 2009
  • 7 replies
  • I wanted to post some good news for everyone to share. I know that alot of times all we read on this site is the bad news about our childrens condition whether it be MCNS or FSGS and I hope that it will ...

Clean bill of health!!

kbarber2007
  • By kbarber2007 · Posted January 2, 2009
  • 1 reply
  • We took Emma back to her neph on the 30th for her checkup after finishing Cytoxan. He has officially given her a clean bill of health (for the time being). Her blood test results were great and her urine ...

Last dose of Cytoxan TODAY!!!

kbarber2007
  • By kbarber2007 · Posted December 29, 2008
  • 1 reply
  • Hello all! Emma took her LAST DOSE of Cytoxan this morning!! We are finally done with our eight weeks!! She continues to stay in remission and is doing great! She is starting to look like a totally different ...

Cytoxan journey almost at an end!!!!

kbarber2007
  • By kbarber2007 · Posted December 18, 2008
  • 6 replies
  • Oh my goodness. I can't believe that Emma is almost done with her cytoxan treatment. ONLY 1 MORE WEEK LEFT!!!! She has continued to stay in remission since the beginning of the treatment and has suffered ...

Cytoxan journey (week seven)

kbarber2007
  • By kbarber2007 · Posted December 15, 2008
  • 1 reply
  • Well, Emma is in the home stretch of her cytoxan treatment. She is beginning her seventh week of treatment which means she has this week and next week and then she will be completely off meds for the ...

Cytoxan journey (week five)

kbarber2007
  • By kbarber2007 · Posted December 4, 2008
  • 0 replies
  • Well Emma is about half way through her fifth week of the eight week cycle of cytoxan and is going GREAT!!! I feel so blessed that our doctor decided to try and use this treatment on Emma becuase she ...

Cytoxan journey continues (week four)

kbarber2007
  • By kbarber2007 · Posted November 26, 2008
  • 2 replies
  • Emma is getting ready to begin her fifth week of Cytoxan and is still doing great. No noticeable side effects and she is still in remission!! We will officially be off prednisone after her last dose today....YEAH ...

Cytoxan journey

kbarber2007
  • By kbarber2007 · Posted November 17, 2008
  • 5 replies
  • Emma is now beginning her third week (of 8 wk cycle) of Cytoxan. She continues to stay in remission even though she battled a cold last week for several days. That is a BLESSING!!! I thought for sure ...

Emma's journey continues....

kbarber2007
  • By kbarber2007 · Posted November 5, 2008
  • 3 replies
  • It has been a while since I posted a journal entry. I have posted a few questions here and there over the past several months and have gotten great response from all the wonderful parents who make up ...

Emma's Story

kbarber2007
  • By kbarber2007 · Posted March 31, 2008
  • 0 replies
  • This is Emma's story. Emma is a three year old brunette with gorgeous blue eyes. She is as sassy as the day is long so, in mid December 2007 when she seemed to be tired alot and not really acting like ...

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