Thinking about whether to sign that donor card at the registry of motor vehicles? Or are you in a situation where you could benefit from a donated organ?
Bring your questions about transplantation to our discussion Thursday at 3 pm Eastern time with Reg Green. He has a book of stories of people who donated tissue or organs, and of the recipients of these gifts.
I learned a lot reading his book in preparation for this interview. We hear about heart, lung, and kidney transplants. Learn the benefit of donating tissue as well to save lives, alleviate pain -- give people a new lease on life.
His own story is very powerful. Please join us tomorrow if you can. You can listen free on the internet at http://www.blogtalkradio.com/powerful-patient or dial in to ask your question "on the air" +1 (347) 237-4358.
Thanks!
Joyce Graff
VHL Family Alliance and Powerful Patient
Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Questions about Transplant?
- By joyceg98
- Posted May 6, 2009 at 4:57 pm · 3 replies
- Shared with the public
Posted in:
Explore topics in this journal entry and replies:
3 replies
- Oldest first
- Newest first
- By shortstuff
- Posted May 7, 2009 at 4:47 pm
- Report post
I was signed for a donor on my licence...but when i found out the family gets you back in like two yrs..in ashes...noooo. no ty
- By joyceg98
- Posted May 7, 2009 at 5:59 pm
- Report post
That is not true in all cases. It is certainly a question that should be raised when the occasion arises.
For tissue donations to our bank, the samples are gathered at the hospital or funeral home within 24 hours, and the body is on time and in good form even for an open-casket funeral.
When you sign that donor card you are expressing your willingness. You can also leave other instructions that cover issues like you are raising. But don't forget that there is someone waiting for an organ to save their life. Thousands of people die on the waiting list each year.
Best wishes,
Joyce
- By joyceg98
- Posted July 2, 2009 at 2:47 pm
- Report post
I posed this question to Reg Green in the interview we did a few weeks ago. You can hear it at http://powerfulpatient.org
In brief, neither of us knows why you were told that about your family getting you back in two years in ashes. We do not know of any circumstance under which that would be true. In our experience, the body is ready for burial -- and even open casket funeral -- on the schedule needed for the family. It is, of course, a point that needs to be openly discussed with the transplant or research team recovering tissue for donation, so that the family's expectations are clear and the team can assure everyone that the schedule will be met.
Best wishes,
Joyce
Add to the discussion