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WOW!

jenaemk
  • By jenaemk
  • Posted December 19, 2008 at 1:10 am · 6 replies
  • Shared with the public
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My daddy was diagnosed with ALS on Monday. I am devestated and to me that is even an understatment because I can't even begin to describe the overwhelming amount of emotions and thoughts that are developing in my overgrowing mind... I feel as though I have two ways to look at this situation... we fight and we win or we fight and we lose but either way we must fight... maybe I have the wrong view??? Maybe I don't know what I feel... just tremendously heartbroken...

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ALS Rilutek

6 replies

joe

Jena, all I can say is fight, fight like hell. I have been fighting sinc Dec. of 1995 and I plan on being here fighting another 15 years if that's what it takes. How bad is your dad now? Join a support group in your area, they are extremely helpful. Here are two other sites that are good for support and to talk to others like us, http://client1.sigmachat.com/sc.php?id=144320 and PatientsLikeMe.com. Give them a try and rember never give up. Joe Hrezo

Chuck1106

Jena,
I am so sorry for what happened. I was diagnosed in June and probably was like or still like what you are feeling. My motto is to take it one day at a time...do the best with what you have and by all means live live live.
Feel free to ask questions..or vent..that is why we are here..ok

Take care,
Chuck

wifeofgrandpa55

my husband was diagnosed in 2006, fight with everything you have. you might also want to visit a website that i find very helpful. its called patientslikeme.com. it is for people with als and their caregivers. people on that website are very helpful and know what you are going through. my husband is grandpa55 on that website. you are in our prayers.

Sue13

Hi I am sorry to hear about your news. Yes as the other told you never give up. This statement that a man suffering from ALS said really impressed me in a very positive way. he said 'this illness may kill me but it will not defeat me!' He fought for 15 years. My aunt she is 63 has been diagnosed from als for 2 years. She is a fighter but it is very difficult when your brain says move that leg and your leg doesn't. But try going to a good nutritionist my aunt is on a no. of supplements and it seemed ALS stopped or slowed down alot. She has just started Rilutek too. I've heard Lithium is good too. Good luck and God be with you.

swhite-geo

Hi Jena,

You're taking the right steps by reaching out, and you're far from alone! Check out my site, stop by and sign the guestbook, God bless!
www.stevewhitenc.com

readmovie3

Hi Jena,

I know first hand what you are going through, my mom was diagnosed with ALS in January, 2008. I did not know much about this disease, but I was determine to find out. I search the interent, went to the library, read books to learn all I could. I question everybody I could for answers. "DON'T GIVE UP FIGHT" This disease affects everybody differently, the progession is slow. I went to every appoinment she had and question the doctors, nurses and anyone else that was involved. There is no right or wrong question or answer with this. Check to see if there is an ALS Association in your area they are great, they will have a lot of material to help you out, also check with a hospice program in your area they will be a great help also, they were for me, whatever I need they were there for me. It is hard, I know but you have to faith and strenght to see this out. Sadly my mom passed in Oct. 2008, but I will continue to fight and support others and learn everything I can about this disease.
This have taught me not to take anything for granted anymore, live each day to your fullest, be there for your dad and love him more and more each day and tell him that, you will suprised how this will make him feel. God bless you and your family through this time and remember you are not alone in this fight.

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