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Hello and hugs to all:

jas
  • By jas
  • Posted November 13, 2008 at 3:17 pm · 2 replies
  • Shared with the public
0 Recommendations

Hello to all who have been so kind and supportive. I recently wrote and told you all of my diagnosis of Wilsons which really scared me. But for some reason, my copper fell about 50 points in just 7 days and now the doc is rethinking the diagnosis and says it may be attributed to something else, so we are looking into other things. I'll keep you all in my thoughts and prayers but these groups only work well if everyone on it is honest and doesn't waste people's time and energy. So thank you all for your support during my time of craziness, I'll keep you posted, but right now it doesn't look like Wilsons is my answer.
Thank you again, Peace and blessings to all
jas

Explore topics in this journal entry and replies:

Wilson disease

2 replies

esther2k5

I find it hard to imagine that you don't have Wilson's as it is extemely rare that K-F rings are caused by anything other than Wilson's disease--it is a nearly 100% positive diagnostic sign for Wilson's. I hope you get another opinion. I had my diagnosis confirmed with analysis of my blood work and urine by 2 MDs (a nephrologist and a gastroenterologist).
Esther

jas

i'm really confused. The opthamologist that said there were not said they were "shadows" caused by blood vessels....but both eyes.???? I just did a 24 hour urine to see what that shows. But my copper levels were in the 280's from my blood tests and no one seems worried about that except me and they don't know what's causing it. Thanks for the support. I should get another opinion. You're the best for caring enough to write.
Hugs,
jas

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