Join now

Already a member? Sign in

Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

corner corner corner

jam's discussions

Tarceva

jam
  • By jam · Posted October 27, 2009
  • In Lung Cancer Alliance Survivors · 17 replies
  • Has anyone used Tarceva as maintance? I am currently in remission and one onocologist says to take it and the other says not to. How confusing does that get ...

mri

jam
  • By jam · Posted January 21, 2009
  • In Lung Cancer Alliance Survivors · 0 replies
  • After diagnosis of brain met and sterotatic surgery, mri showed tumor reduced in half after one month. Doctor said it was odd. It is a cyst surrounded by tissue. No biopsy! I go back in four months. Weaning ...

scans

jam
  • By jam · Posted December 12, 2008
  • In Lung Cancer Alliance Survivors · 3 replies
  • I met with oncologist today. We went over report he got from another hospital regarding brain met that stereotatic radiosurgery was done. We consider this a mestatic tumor since that is what lung cancer ...

revoked my drivers license

jam
  • By jam · Posted December 10, 2008
  • In Lung Cancer Alliance Survivors · 12 replies
  • Well I lost my drivers license. Since I had a seizure I am no longer able to drive. I feel like I am in prison. I feel hopeless as I will never get them back. My mother says I am acting like a spoiled ...

blood levels

jam
  • By jam · Posted December 8, 2008
  • In Lung Cancer Alliance Survivors · 7 replies
  • Does anyone know if blood levels have to be checked while on Keppra. One doc said yes and another said no. Really curious now ...

handwriting

jam
  • By jam · Posted October 29, 2008
  • In Lung Cancer Alliance Survivors · 3 replies
  • Does anyone else have a problem with their handwriting. Is this part of t he territory after treatment. Mine has worsened over time . I work in an office and writing is important. Somtimes it is barely ...

Just Different?

jam
  • By jam · Posted September 18, 2008
  • In Lung Cancer Alliance Survivors · 15 replies
  • It just seems after my surgery and the chemo radiation, that I just am not the same anymore. I do basically the same activities as before but I get frustrated easier. I am not as sharp mentally and I ...

where is amy?

jam
  • By jam · Posted September 9, 2008
  • In Lung Cancer Alliance Survivors · 2 replies
  • I haven't noticed any postings for amysumayura. Not sure if I have that correct or not. Just curious if she is still there. Responded in a caring way so may times. I appreciated her ...

NED THREE MORE MONTHS

jam
  • By jam · Posted August 20, 2008
  • In Lung Cancer Alliance Survivors · 14 replies
  • I Went for my three month scan Aug 19th and doc said he was very pleased. Couldn't see any sign of disease , the scans were clear. Another three months of life as I used to know it. 17 months out from ...

early cancer diagnosis

jam
  • By jam · Posted June 16, 2008
  • In Lung Cancer Alliance Survivors · 0 replies
  • Hi everyone Last Friday I did my first clinical trial for early Lung cancer diagnosis. It was where they did the white light bronscopy and then the florescant. The doctor said things looked good at the ...

NED

jam
  • By jam · Posted April 25, 2008
  • In Lung Cancer Alliance Survivors · 16 replies
  • Hi everyone Yesterday I went for my 1 year scan after surgery 03/19/08. Left lower lobe removed. I am NED! I am so thankfull. I seem to get more nervous as time goes on around scan time. I am going to ...

small wheez

jam
  • By jam · Posted April 11, 2008
  • In Lung Cancer Alliance Survivors · 4 replies
  • I sometimes feel quilty posting my concerns on this site when I feel so many others have it far worse. It seems that since diagnosis I worry about everything and cry so easy. I went to my onocologist ...

Clean Scan

jam
  • By jam · Posted February 4, 2008
  • In Lung Cancer Alliance Survivors · 13 replies
  • Hi everyone! I am happy to report my 10 month scan after surgery was NED!! I was so nervous this time and wonder if as time goes on it gets worse or better. I will never be the same . I will always live ...

port removal!!

jam
  • By jam · Posted November 7, 2007
  • In Lung Cancer Alliance Survivors · 3 replies
  • Hi Everyone! My surgeon is going to remove my port next Wed. ,and even though I am excited I am concerned with the "what if I need it again". I am happy to report I have been NED to date. Surgery March ...

Last round of Chemo and then what?

jam
  • By jam · Posted July 3, 2007
  • In Lung Cancer Alliance Survivors · 11 replies
  • I am to have my last round of chemo July 5th! I asked the onocologist is there a maintenance pill or anything and he said no. Kind of scary in a way. Just would like to take some low dose somthing to ...

DCA

jam
  • By jam · Posted April 29, 2007
  • In Lung Cancer Alliance Survivors · 2 replies
  • Why is it so difficult to get DCA to our people who need it. The Canadians have had good results and I have a difficult time understanding why it is so hard to give someone the hope of a cure ...

lobectomy

jam
  • By jam · Posted April 27, 2007
  • In Lung Cancer Alliance Survivors · 14 replies
  • Boy I could use some encouragement. Just had lobectomy of the left lower lobe. Surgeon thought prior that I would be a stage 1b or 2. Pathology came back a 3a. Apparently some lymph node involvement ...

lobectomy

jam
  • By jam · Posted February 19, 2007
  • In Lung Cancer Alliance Survivors · 7 replies
  • Does anyone know why Vats couldn"t be used. I possibly am going to have the lower left lobe removed but the surgeon said I couldn"t have Vats. It would be worth the travel for me to have the less invasive ...

You