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how to know free copper balance in patient
- By suman · New reply yesterday at 6:18 am
- Discussion in Newly diagnosed · 3 replies
- My daughter is on D-pen since last 9 months. I wanted to know how to calculate how much free copper is left in her body. Actually her 24 hrs urinary copper has come 600 mg/24 hrs and before three months ...
Webinar
- By ncordon · Posted September 7, 2010
- Discussion in Treatment options · 0 replies
- Just a note that there is a valuable upcoming webinar about rare disease research registries. This Wed., Sept. 15th at 2 EDT you can learn about software tools from companies like RemedyMD that are accelerating ...
hello everyone. nice to meet u.
- By 66257 · New reply September 7, 2010
- Discussion in Newly diagnosed · 5 replies
- hi unfortunely i just diagnosed as wd carrier. im from israel and i hope u guys can help me to cope with that disease. first of all i have few questions: 1. how bad is it? how will i feel the impact of ...
tomorrow i go to the dr!
- By datiger33 · New reply September 6, 2010
- Discussion in Personal stories · 5 replies
- tomorrow i am going to see Dr Luis Balart at Tulane Medical Center in N.O...He is the dr which originally diagnosed me 20 yrs ago... since the d-pens isn't helping my neurological symtoms, he is supposed ...
How long to expect to feel run down and weak?
- By Superstan84 · New reply September 5, 2010
- Discussion in Newly diagnosed · 11 replies
- I'm 25 and was diagnosed a month ago. I'm currently taking 1000mg of D-Penicillamine a day. I'm in real need to get back to work but I know at this time it would be hard to make a 10 hr shift let alone ...
Best path to a diagnosis?
- By extace · New reply September 5, 2010
- Discussion in Getting a diagnosis · 9 replies
- I've been going back and forth to my doc, having blood tests for the past 10 months. He suspects wilsons, due to elevated liver enzymes, low serum copper/ceruplasmin, and dthyroid levels that seems to ...
Good foods for WD ?
Green stool
- By Tareef · New reply September 4, 2010
- Discussion in Parenting issues · 4 replies
- We observed this morning that my son's stool was green (like green-leaf green). My wife said that he had cake the day before which has green icing, but I am not sure if this would cause this bright green ...
Moods?
- By As1mm0ns09 · New reply September 3, 2010
- Discussion in Depression · 5 replies
- What are the moods like for people with wilsons disease? I am diagnosed with Wilsons disease but i am not sure what moods are associated with the disease. Any information about moods associated with wilsons ...
D-pen Need to Refrigerated?
- By pravin · New reply September 1, 2010
- Discussion in Newly diagnosed · 4 replies
- Hello all, Does D-pen need to be refrigerated? My son 8 years old who is dignosed for WD one month back is on 3 D-pen (250mg) daily and 01 Znic. As per the box of D-pen it shpuld b stored at a temp. not ...
help...feeling lost
- By Terrasita · New reply August 31, 2010
- Discussion in Newly diagnosed · 66 replies
- My 20 year old son was just diagnosed with WD after going into emerg. He is borderline in need of a liver transplant. He is currently seeing a liver specialist. We don't really have any other info except ...
Zinc info?
- By As1mm0ns09 · New reply August 31, 2010
- Discussion in Treatment options · 9 replies
- I am 19 and was diagnosed with Wilsons disease in October of 2009. I am currently taking Syprine 250 mg, 2 pills three times a day. I have realized that syprine is hard for me to keep syprine refrigerated ...
Pregnancy and Wilson's Questions!
My 17 year old son may have Wilsons Disease
- By hygenius · New reply August 27, 2010
- Discussion in Getting a diagnosis · 20 replies
- My 17 year old son may have Wilsons Disease. about 4 weeks ago his girlfriend called to tell me he needed to see a doctor because he was "shaking". At first I couldn't picture what she was describing ...
A few more words about privacy
- By Brian · New reply August 27, 2010
- Journal · 76 replies
- All of us at Inspire care a great deal about your privacy and work hard to ensure the information you trust us with is kept safe. We designed Inspire so that you have complete control over how your personal ...
Genetic Testing for WD
- By extace · New reply August 26, 2010
- Discussion in Getting a diagnosis · 3 replies
- Has anyone managed to get the WD genetic test done from Ambry Genetics? http://ambrygenetics.com/Wilson-Disease. html If so, how much did it cost, did your insurance cover it? Did hte results come back ...
copper poisoning
- By gibsgoinpro · New reply August 26, 2010
- Discussion in Getting a diagnosis · 4 replies
- hi folks, i am 25 years old and believe i have something similar to wilsons disease. i'm not sure if it is wilsons but it is torturous and has to do with copper poisoning. through a hair analysis test ...
Our Family and Wilson's Disease
- By momof5kids · New reply August 26, 2010
- Journal · 6 replies
- In March of 2009 my healthy 19 y/o daughter became ill. She felt tired and nauseated. She thought maybe she had mono so she went to the college nurse to find out what was wrong with her. Every test came ...
Galzin or Gluzin?
- By JacquelynR · New reply August 24, 2010
- Discussion in Treatment options · 11 replies
- Hi everyone, My almost 11 year old son was diagnosed with WD this February, 2010. He is pre-symptomatic, we simply found this dx by accident when he was having a routine blood test. He has been on Syprine ...
15YO low Ceruloplasmin
- By blessedchild · New reply August 24, 2010
- Discussion in Getting a diagnosis · 9 replies
- My 15YO sons ceruloplasmin levels are 17. This was not the main test our doc was testing for. We were more looking at Immunoglobins,Lyme Disease, Mycoplasma, and strep for a condition called PANDAS (Pediatric ...
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