Us TOO Prostate Cancer Support Community

The Us TOO Prostate Cancer Support Community connects patients, families, friends and caregivers to enhance the quality of life for all those affected by prostate cancer... More about this group

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Medical Oncologist + Patient Advocate in Arizona

By otisbd · New reply yesterday at 12:04 am
Discussion in Recurrence / advanced disease · 13 replies
for a couple of months now I've been supporting a newly diagnosed T4 guy in Tucson, Az. who found me online via 'ask a patient' just as he was considering HT. he's only 55 but the disease was well into ...

why?

By mozart2 · New reply September 6, 2010
Discussion in Treatment options · 16 replies
If i can't keep the nerves ,why should i have the surgery instead of rad? 45 days since diagnosed and i can't make a decision ...

Seed Implant Difficulties

By TTS · New reply September 6, 2010
Discussion in Managing side effects · 3 replies
Seed implant on April 20, 2010. thus getting close to five months ago. Take flomax a.m. and p.m., but have difficulty urinating especially at night. I'm up trying to urinate, or urinating off and on ...

Rommie's Latest News

By LaurieandRommie · New reply September 5, 2010
Discussion in Newly diagnosed · 21 replies
Well we have come to the conclusion that his best treatment option will b e hormone therapy for the two months and then radiation. We have talked with two other doctors and they are all in agreement with ...

Managing Intermittent HT

By otisbd · New reply September 4, 2010
Discussion in Recurrence / advanced disease · 7 replies
yet another question this time for my good buddy, dick, my exercise partner in fact, who has a walnut size Mx in his pubic bone, and is now on intermittent therapy. interested to learn how many of you ...

robotic prostate surgery

By BARCLAYS · New reply September 2, 2010
Journal · 50 replies
Looking at so, so many options as to which path to take. Currently, I am leaning toward robotic surgery. I have another appointment with a top New York doctor at NYU in this field and have a list of questions ...

insurance

By kkkkkkk · New reply September 2, 2010
Journal · 1 reply
i would like to know if anyone has had a problem with there insurance allowing robotic sur. my company is trying to deny me ...

DART therapy

By Nilsson · New reply August 30, 2010
Discussion in Treatment options · 3 replies
Was just reading about the DART options for prostate cancer, performed at the Dattoli Cancer Center in Florida. Does anyone have any information about this? Very little is on YANA... just general information ...

PC options

By tnuck · New reply August 30, 2010
Journal · 7 replies
I am a PC survivor and Director of a US/TOO support group. With a Gleason 6 any of the therapies are viable. You should choose based on your age and life values. Basically, the side effects of surgery ...

Today I Weep - July 15, 2010

By KDenni · New reply August 29, 2010
Journal · 19 replies
I wrote this for my sister Diane and read it to her prior to her passing away on July 15. She had fought a long-hard battle with ovarian cancer. I hope you will find comfort in the words. Today I weep ...

Afraid of the Knife

By Ronlaw777 · Posted August 29, 2010
Journal · 0 replies
I wouldn't be afraid of the knife. The robotic surgery, if you choose it, gets you out of the hospital in 24 hours, and after a week, when the catheter comes out, your on your way to becoming ok again ...

Might as well do the seeding and get it over with

By KlondikeGeoff · New reply August 28, 2010
Discussion in Treatment options · 6 replies
Some may remember my other posts. Anyhoo, I had external beam radiation in 2001, and until last year, my PSAs had been about nothing. Then they began to increase, so had biopsy and it was back, with 4+3=7 ...

Coloplast Virtue Male Sling

By retiredengr68 · Posted August 28, 2010
Discussion in Managing side effects · 0 replies
Last January I started a discussion on the AMS Advanced Male Sling. I thank all that joined in the discussion. I have decided to do something in the next 2 or 3 months to end my leaking. Recently I have ...

I got it!

By mozart2 · New reply August 27, 2010
Journal · 9 replies
Just dianosed with prostate cancer. gleason 3+4=7 t2a . age 53 looking for help with options ...

A few more words about privacy

By Brian · New reply August 27, 2010
Journal · 76 replies
All of us at Inspire care a great deal about your privacy and work hard to ensure the information you trust us with is kept safe. We designed Inspire so that you have complete control over how your personal ...

Oral meds

By Ralehi · New reply August 25, 2010
Discussion in Managing side effects · 4 replies
I am 3 months out from nerve sparing robotic RP. I have tried Cialis daily, viagra 50 mg, and levitra 20 mg. I have not had any luck with those. I did wake during the night with partial erections while ...

Swimming/pool therapy (incontinence issues!)

By DiscoveryTrekking · Posted August 24, 2010
Discussion in Managing side effects · 0 replies
As a person who has had family experience with the side effects of Prostate Cancer, I developed a product to assist with one of them. It's hard to admit that as an adult, sometimes a diaper is necessary ...

The ED Shot

By Melodye · New reply August 23, 2010
Discussion in Prostate cancer and intimacy · 22 replies
Hello all- We just wanted th share this wonderful news with you all. My husband had no results with any any of the oral medications after his radical prostectomy, so we tried the alprostadil injection ...

Color Doppler Ultrasound

By Nilsson · New reply August 21, 2010
Discussion in Newly diagnosed · 14 replies
Hi, I have PSA 7 and free PSA 11.4 ~ small lump on prostate. I'd rather not have a biopsy but I read Color Doppler Ultrasound is better. Does anyone in the Seattle Region do this; and do they take "samples ...

Medical Marijuana

By jrwlsn · New reply August 20, 2010
Discussion in Managing side effects · 7 replies
I am facing a radical Prostatectomy and have been reading everything I can about managing side effects and controlling recurrances. I have come across several journal articles where cannibis has shown ...

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The Us TOO Prostate Cancer Support Community connects patients, families, friends and caregivers to enhance the quality of life for all those affected by prostate cancer. This community is sponsored by Us TOO International Prostate Cancer Education & Support Network, an Inspire trusted partner.