Us TOO Prostate Cancer Support Community

The Us TOO Prostate Cancer Support Community connects patients, families, friends and caregivers to enhance the quality of life for all those affected by prostate cancer... More about this group

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Post op update

By mark415 · New reply yesterday at 10:10 pm
Discussion in Treatment options · 3 replies
I am now 8 wk postoperative davinci robot by dr Michael esposito & pleased that I went with the 2nd opinion (1st wanted to do rapid arc rad) PostOp path was clean PSA at week 7 PO --<0.1 4 wk PO had 1st ...

Recently Diagnosed

By uofmhockey · New reply yesterday at 9:36 pm
Discussion in Newly diagnosed · 23 replies
I was diagnosed with PC about a month ago. My Gleason score is 3+3 = 6. I had a 22 core biopsy with one core being positive for PC. PSA seems to go up then down and then back up. From 2009 until 3/16 ...

Free: Advanced Prostate Cancer book

By ranch99 · New reply yesterday at 2:27 pm
Discussion in Treatment options · 1 reply
A good eBook to read while waiting at the doctor's office. The best part is it's free. It explains medical terminology in a understandable way. If you have a less advanced form of prostate cancer the ...

Freaked out

By dcoleman21 · New reply yesterday at 1:46 pm
Discussion in Treatment options · 4 replies
Hello, I am a 59 yr. old with prostate cancer with a Gleason of 8, all biopsies samples showed cancer, also a spot in my hip, biopsy was positive. Doctors at Loma Linda want cut all of the prostrate ...

First PSA After Proton Treatment - Hooray!

By AshWarrior · New reply yesterday at 10:35 am
Journal · 3 replies
Just got my first PSA test back following proton & hormone treatment. I will now get my 2nd six month Lupron shot next week. Very happy to get a .08 PSA reading. If you have read my past journal entries ...

Sexual health

By watchful · New reply yesterday at 8:56 am
Journal · 2 replies
I am now 14 months out of my rp. surgery. Cancer free so far. I am 63 and fairly fit . It took me almost a year to go pad free ( a relief ) , but my sexual function ( desire arousal ) has been next to ...

proton therapy

By William6397 · New reply May 19, 2012
Discussion in Newly diagnosed · 2 replies
I was just recently been diagnosed with PC, I decided to receive Proton Therapy at the University of Florida in Jacksonville, my insurance denied me, I have Tricare Prime insurance, I just recently appealed ...

Dr. Dattoli/Sandlake Imaging

By luvmydad09 · New reply May 19, 2012
Discussion in Recurrence / advanced disease · 7 replies
After surgery, radiation coupled with hormone therapy, which all have proven futile, my dads psa is up to 1.5. All the posts I have read on this site are of people, considering or have been recently treated ...

Important Provenge News. Please read.

By SaulK · New reply May 18, 2012
Discussion in Treatment options · 2 replies
Dendreon announced a new abstract at ASCO which suggests strongly the need for hormone refractory men to get screened for mets ASAP. Men who got Provenge when their PSA was still below 22 had a 13.1 month ...

SBRT Clinical Trial

By Ross62 · Posted May 18, 2012
Journal · 0 replies
I am participating in a clinical trial gathering data about Stereotactic Body Radiation Therapy (SBRT) in prostate cancer treatment at the University of Michigan in Ann Arbor. Yesterday, I had the Calypso ...

Predicting PSA recurrence vs. persistence

By RH1970 · New reply May 17, 2012
Discussion in Recurrence / advanced disease · 1 reply
Had RRP in March and will be coming up on my first PSA test soon.. I've been reading some about PSA recurrence vs. PSA persistence. As I understand it, recurrence is when the PSA drops to an undetectable ...

IMRT vs Proton

By Mjbsc · New reply May 17, 2012
Discussion in Treatment options · 15 replies
I was diagnosed in late March, PSA had risen for three years to 5.87, first gleason was 3+3, had a second opinion by Bostwich, came out 3 + 4, but I have only three samples positive of 15 and 20% involvment ...

Provenge #3

By dearheart · New reply May 16, 2012
Journal · 18 replies
Pretty uneventful. Good trip there, competent assistant, tingly lips again. Wife was sick and had to stay in hotel. Provenge infusion was like a family meeting. Now we wait ...

Sex after RP

By carrytherock2 · New reply May 15, 2012
Discussion in Prostate cancer and intimacy · 10 replies
My wife asked me to post an update for all you wives and men recently diagnosed with PCa. I had Robot Surgery for PCa on Dec. 5, 2011 (6 months ago). Gleason 7 with perineural invasion, cancer in a seminal ...

PROSTATE CANCER

By Pebbless · Posted May 15, 2012
Discussion in Treatment options · 0 replies
Has anyone heard of ProAct Therapy for incontinence. It has been done outside of the United States. I would like some information about this procedure. Thanks. Have a great day ...

leakage

By Verdi · New reply May 13, 2012
Discussion in Managing side effects · 42 replies
I have had my prostate removed Gleason 7 and after removal have +margin meaning I have some left. My biggest issue is the leakage and is driving me crazy, I hate the smell of urine and work in an office ...

Are they all dry orgasm's?

By StevoB · New reply May 13, 2012
Discussion in Prostate cancer and intimacy · 48 replies
I haven't seen this topic anywhere on this forum. Are there any treatments that keep the prostate able to make fluid and for guys to still have wet ejaculations??? Trying to keep the verbage respectful ...

free e-book to all prostate cancer patients

By selfhelp · New reply May 13, 2012
Discussion in Newly diagnosed · 14 replies
As a retired VA psychologist with a research background I carefully studied the literature on PC treatment. Two findings stood out - (1) all major treatments are equally effective and (2) they differ ...

Anyone had RP long ago? (5 years +)

By LoverOfWomen · New reply May 10, 2012
Discussion in Prostate cancer and intimacy · 16 replies
Hello fellow Gladiators I think we need a thread with information on the long-term sexual development after RP for those who intend to stay alive for a long time. It would be very helpful to hear from ...

6 week Journal

By leer34 · New reply May 10, 2012
Journal · 1 reply
We have had several messages asking for an update. Sadly, not much new to report, as everything is pretty much NORMAL. But that's good news! it's been about 5 weeks since surgery. Bill has been off pads ...

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About this community

The Us TOO Prostate Cancer Support Community connects patients, families, friends and caregivers to enhance the quality of life for all those affected by prostate cancer. This community is sponsored by Us TOO International Prostate Cancer Education & Support Network, an Inspire trusted partner.