The Children's Inn at NIH Support Community

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Traps

By birdnbee · New reply 9:14 pm
Discussion in TRAPS · 13 replies
I have never talked to any other person about TRAPS. I really would appreciated view from someone else. TRAPS trouble can be really overwhelming. Barbara ...

How much more does she need to go through to get a diagnosis?

By AnnaLeeR · New reply 8:50 pm
Discussion in PFAPA · 2 replies
I have a 23 month old daughter, who has fevers every 2 weeks that average out into the 105's. She seems to have a lot of stomach pain or even leg??? With all her dr visits and hospital stays,no joint ...

Today at the INN: November 19

By BKuz · Posted yesterday at 10:04 am
Discussion in General · 0 replies
Today at the INN... Spanish Speaking Community Meeting 4:30PM Grocery Store Run 6:30PM ExploreINN 7PM English Class 7PM Hope to see you there! To see what's going on the rest of the month check out the ...

Today at the INN: November 18

By BKuz · Posted November 18, 2009
Discussion in General · 0 replies
Today at the INN... Free Dinner Trip to Ledo's Pizza! 4:45PM (Please sign up at the welcome desk!) Arts INNplace 7PM Hope to see you there! To see what's going on the rest of the month check out the Inn's ...

Today at the INN: November 17

By BKuz · Posted November 17, 2009
Discussion in General · 0 replies
Today at the INN... LearnINN 4:30PM Seated Massage 5-7PM Grocery Store Run 6:30PM Scrapbooking! 7PM Hope to see you there! To see what's going on the rest of the month check out the Inn's website at childrensinn.org ...

Today at the INN: November 17

By Cait · Posted November 17, 2009
Discussion in General · 0 replies
Today at 4:30PM we will be having LearnINN in the Learning Center! Please bring any homework or assignments you may have to work on. We will have snacks, drinks, and a fun activity prepared ...

Today at the INN: November 16

By BKuz · Posted November 16, 2009
Discussion in General · 0 replies
Today at the INN... Fun with Rosemary in the Bistro! 4:30PM YANO (Young Adult Night Out) 6PM Family Dinner by Wendy Robinson E Dining Rm 6PM Grocery Store Run 6:30PM FAMILY NIGHT!! 7PM Hope to see you ...

Chapter 2 - My Mom's surgery in 1996

By motorgirl85 · New reply November 15, 2009
Journal · 4 replies
This will not be a very detailed recollection because its already been 13 years ago. Two years after my first surgery my Mom came down with a flu that she just didn't seem to be able to overcome. She ...

3 years since last TRAPS fever!

By althea · New reply November 15, 2009
Journal · 8 replies
My son is now 19 years old and in his second year of college. He takes no meds. He does still take a Fish Oil capsule daily. No fevers, no TRAPS symptoms now for 3 years!!! He lived in a college dorm ...

what do i do?

By a_powerfully_mind · New reply November 14, 2009
Journal · 19 replies
i just found out that i can't play sports any more and i have nothing to focus all the bad energy on ...

Kids with FMF

By Mary2 · New reply November 13, 2009
Journal · 13 replies
Hi everyone, I am a 29 year old mother with a 4 year old son with FMF (Familial Mediterranean Fever) . My husband and I both don’t suffer from FMF, but wish every single day that I had the disease instead ...

Today at the INN: November 12

By BKuz · Posted November 12, 2009
Discussion in General · 0 replies
Today at the INN... Ice Cream Social hosted by Clovis 4:30PM Grocery Store Run 6:30PM ExploreINN 7PM English Class 7PM Hope to see you there! To see what's going on the rest of the month check out the ...

Today at the INN: November 11

By BKuz · Posted November 11, 2009
Discussion in General · 0 replies
Happy Veteran's Day!! The Inn supports all of our soldiers who serve our country and protect our freedom. Thank you! In honor of our Veterans... AdventureINN Field Trip to Washington D.C. 4PM Arts INNplace ...

Chapter 1 - My first surgery in 1994

By motorgirl85 · Posted November 10, 2009
Journal · 0 replies
When I was an 8 year-old and going on 9, I remember a time in which I was vomiting a lot and complaining of a stomach ache all the time. So my Mom took me to my pediatrician. After checking my stomach ...

Introduction

By motorgirl85 · Posted November 10, 2009
Journal · 0 replies
Hi my name is Jennifer Woods, I would like to say that I'm your typical 24 year old but I'm not due to Carney Complex (also called Carney Syndrome). I would like to share my personal and medical history ...

EducateINN Activities- Nov. 10

By Cait · Posted November 10, 2009
Discussion in General · 0 replies
Today at 4:30PM we will be having LearnINN in the Learning Center! Please bring any homework or assignments you may have to work on. We will have snacks, drinks, and a fun activity prepared ...

Today at the INN: November 10

By BKuz · Posted November 10, 2009
Discussion in General · 0 replies
Today at the INN... LearnINN 4:30PM Parent Reception 4:30PM Seated Massage 5-7PM Family Dinner by Sapient E Dining Rm 6PM Grocery Store Run 6:30PM BINGO! 7PM Hope to see you there! To see what's going ...

Today at the INN: November 9

By BKuz · Posted November 9, 2009
Discussion in General · 0 replies
Today at the INN... Bilingual Stretching/Relaxation Class 4:30PM Grocery Store Run 6:30PM TEEN NIGHT!! 6:30PM Dog Visit 7PM Hope to see you there! To see what's going on the rest of the month check out ...

Inspire members featured

By Brian · New reply November 4, 2009
Journal · 29 replies
Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...

Today at the INN: November 4

By BKuz · Posted November 4, 2009
Discussion in General · 0 replies
Today at the INN... Seated Massage Teen Lounge 10am-2PM Open Music Studio with Vera 5PM Arts INNplace 7PM Hope to see you there! To see what's going on the rest of the month check out the Inn's website ...

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The Children's Inn at NIH Support Community connects patients, families, friends and caregivers for support and inspiration. The Children's Inn at NIH Support Community is sponsored by The Children's Inn at NIH in partnership with Inspire.