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Our 13 year old girl passed away from cardiac event
- By tdhssp · New reply 2:03 pm
- Discussion in Dealing with loss · 7 replies
- Our little girl passed away in December 2006 from a cardiac event at the age of 13 years. Samantha had a rare chromosome disorder and a bicuspid aortic valve, however, no other similarly diagnosed persons ...
Shocks explained??
- By dinahj · New reply yesterday at 6:10 pm
- Journal · 12 replies
- According to my "installers" at the cardiac centre the ICD does a routine check up every 23 hours which I did not know. Unfortunately for me I happen to part of a very small group of people who feel this ...
Even in a coma, some can hear and understand.
- By rturri · New reply yesterday at 4:00 pm
- Discussion in Surviving SCA · 1 reply
- A few days ago, I made a journal entry with a link to a magazine article about comatose, "vegetative", and ventilator patients responding to other people - and it showing up on MRI's ! (Not a new discovery ...
If we only knew how to prevent Sudden Cardiac Arrest and death.
- By DrD11 · New reply yesterday at 3:51 pm
- Discussion in Medical and scientific research · 39 replies
- Today we know how to rescue an individual,who sustains cardiac arrest and death. Thanks to CPR,Defibrillators and ICD's,lot of people are rescued.Still,this population constitutes only 5% of the total ...
My 12th Rebirthday
- By JLycksell · New reply yesterday at 3:24 pm
- Journal · 10 replies
- Today, Feb.6, 2010 I turned 12 years old. It is a great feeling. My real birthday was on the 4th and I turned 30-30.I was celebrating my birthday when I had my SCA in 1998. Two weeks ago,my husband gave ...
If you wake up on the floor you have probably been shocked!
- By Maridee · New reply yesterday at 9:14 am
- Discussion in Tips for caregivers · 8 replies
- Hi everyone! I just wanted to fill you in on my past month. My husband had his first SCA on 2/15/07. Since then he has been fine. Actually since he has no memory of the event it has been hard for him ...
New diagnosis
- By Jamesrochelle · New reply yesterday at 12:16 am
- Discussion in Medical and scientific research · 3 replies
- I recently woke up on the floor of my office at work I had urinated on myself and had no idea who I was, where I was, or who my coworkers were. It was a terrifying experience. I was transported to the ...
Progress
- By dinahj · New reply February 7, 2010
- Journal · 2 replies
- Hi Everyone Well it appears I am making some progress in the shock department. They adjusted the pacing part of the ICD and it seems to be working...lowered my rate down to 35 before the pacemaker kicks ...
I Have no one to talk to that understands
- By Sheenacus · New reply February 6, 2010
- Discussion in Surviving SCA · 12 replies
- hello i am 27 years old about a year and a half ago my sister went into cardiac arrest she was having siezures and was in a coma for about a month no one could tell us if she was going to make it or not ...
Picture
- By blb1954 · New reply February 6, 2010
- Journal · 1 reply
- I managed to upload a picture on here, and that is huge ...
Mom's update
- By cheriffic · New reply February 6, 2010
- Journal · 2 replies
- My daughter & I just spent a week at my parents. My dad still gives her Haldol but not as often. She is doing better since he has lessened the dosages. She is actually moving her arms some & more responsive ...
Nadolol
- By Tch4fn · New reply February 5, 2010
- Discussion in Living with an ICD · 21 replies
- Is there anyone that has had a SCD and and ICD implanted that does not have to take medication. I really hate the side effects and the weight gain! Thanks, Vicki ...
Don't Kill Me! Not just yet...
- By rturri · Posted February 5, 2010
- Journal · 0 replies
- I was just sent this link to an article about comas and brain injuries. http://news.cnet.com/8301-27083_3-104476 57-247.html It is about deciding whether a person with a brain injury is worth keeping ...
ECHO CARDIOGRAM
- By bingo · Posted February 5, 2010
- Journal · 0 replies
- I went to the heart center today for a echo cardiogram and a stress test. I could not walk the treadmill long enough for them. They sent me to my cardiologist. I'm having this done because I want to have ...
Shocks
- By dinahj · New reply February 4, 2010
- Journal · 4 replies
- So.. for the last few days i have been experiencing "shocks" throughout my chest, neck and down my arms. Not the big whomping ones that i am told might happen just these jolts that are here and gone ...
Scouts Save Leader
- By GWB · New reply February 4, 2010
- Discussion in Surviving SCA · 1 reply
- I had just arrived at the Boy Scout troop meeting September 28, 2009 and was talking to another adult, when I suddenly collapsed. Luckily one of the leaders was an emergency room doctor. He checked my ...
Neighbors
- By blb1954 · New reply February 4, 2010
- Journal · 1 reply
- I am 56 years old and live with my mother. I live in southwest Fort Worth. I would like to find others in this area to correspond with. I have been home from the hospital since July of last year. I am ...
Anxiety and depression
- By Reneemj · New reply February 4, 2010
- Discussion in Living with an ICD · 10 replies
- Since my shocks in May I've been dealing with a lot of anxiety and depression.. at first it was because of the actual event now it's because I have a low vibrating feeling in my chest that's making me ...
what to do
- By antonella · New reply February 3, 2010
- Journal · 1 reply
- Hello my friends, I was ned until 3 weeks ago where they found a lyctic leasion at L2 vertebrae. They did Cat scan and Mri and that's the only cancer they have found. The onc said that they will forward ...
Coping
- By dinahj · New reply February 3, 2010
- Journal · 9 replies
- Well it's been 5 weeks since my SCA and life has defintely changed. For one thing I can't drive for six months and I miss the independence I had. I am still very tender where my ICD was "installed" and ...
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The Sudden Cardiac Arrest Association Support Community connects patients, families, friends and caregivers for support and inspiration. The Sudden Cardiac Arrest Association Support Community is sponsored by the Sudden Cardiac Arrest Association in partnership with Inspire.