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Sarcoidosis
I don't wanna be
- By Brandie228 · New reply 10:08 pm
- Journal · 1 reply
- I don't want to be strong. I want to be weak. I want someone to help me. I want someone to care. I want to be felt taken care of. I want someone to come along and say "Wow, you are a beautiful and wonderful ...
SO excited to share what I have found!
- By pwrsrg77 · New reply 10:06 pm
- Journal · 3 replies
- I have received TONS of wonderful support from this amazing community of people just like myself. All that struggle with debilitating symptoms, wrong diagnosis, less than quality doctors etc... I wish ...
Some old some new - time for a chuckle
- By IreneMarie · New reply 10:03 pm
- Discussion in Emotional support · 3 replies
- "Doc, I can't stop singing The Green, Green Grass of Home." "That sounds like Tom Jones Syndrome." "Is it common?" "Well, It's Not Unusual Two antennas met on a roof, fell in love and got married. The ...
Remission
- By tishee · New reply 9:56 pm
- Discussion in Living with sarcoidosis · 12 replies
- Hi guys, When I was first diagnosed with this monster my general practioner said that I have a 70 percent chance of going into remission after a year and a half. After being on this site, I realize he ...
Palpitations - cardiac sarc?
Today My Oncologist told me he was fairly certain I have sarcoidosis
KC Support group canceled for Thursday
- By jon-with-no-h · Posted 9:15 pm
- Discussion in Emotional support · 0 replies
- I have canceled the support group meeting scheduled for tomorrow (Thursday) evening in Independence,MO. My plate is FULL tomorrow and I know that after 5pm I will be far too tired... jon ...
I Can't Believe My Doc Said This To Me!
- By Boxerlover · New reply 6:07 pm
- Discussion in Emotional support · 32 replies
- Because of the sarc, I get tons of kidney stones, have for years. I've been seeing my Urologist for about 16 years. He was the first doc I saw when we first moved here without insurance and he treated ...
strange taste
- By carolAnn2 · New reply 6:04 pm
- Journal · 7 replies
- Has anyone ever gotten strange tastes in your mouth? i keep getting this the past few days,and its driving me crazy!! Ive been almost constantly chewing gum just to get rid of it. Is this a sarc symptom....or ...
Somebody PLEASE HELP!!! ={
- By pwrsrg77 · New reply 6:01 pm
- Journal · 73 replies
- Well, I'm now 2 years into a disease that is sucking the life out of me. If I had a nickel for every time I've balled my eyes out & said my famous quote "I can't take this anymore" I'd be a very rich ...
My Crocodile Tears
- By Brandie228 · New reply 5:39 pm
- Journal · 6 replies
- So, today I looked at the response to my inquiry about Sarcoidosis and needing to find a doctor who knows what is going on. I read a reply that indicated that one of the best Sarc doctors in the world ...
Does anyone get flu like symptoms?
- By silvercivic · New reply 5:01 pm
- Discussion in Symptoms · 24 replies
- I have a feeling like I have a bad case of the flu minus any temperature.....chills and just feeling rotten. I just want to lie down and try to cope with it. If anyone else suffers from this....are these ...
Inspire members featured
- By Brian · New reply 4:05 pm
- Journal · 29 replies
- Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...
How do I get the proper care?
- By Brandie228 · New reply 3:56 pm
- Discussion in Living with sarcoidosis · 4 replies
- Hello. I'm a 32 year old, single mother of 5. I was diagnosed with Sarcoidosis at the end of July. It was diagnosed via a mediastenoscopy and biopsy of my lymph nodes. My lungs, lymph nodes, skin, and ...
severe leg pain explained
- By dollh · New reply 3:11 pm
- Discussion in Living with sarcoidosis · 3 replies
- Dear friends, My legs, knees and hips were hurting so bad that my parents took me to the emergency room. I had about 20 x-rays done one my lower back, hips, knees, ankles and feet. The diagnosis osteoarthritis ...
steppin out
- By escalantedreamer · New reply 2:17 pm
- Journal · 1 reply
- I managed to get myself down stairs to do laundry (something I can still do) and my wife started calling me because she was home from work. because she couldnt hear me and I could hear her I had to stomp ...
TOP DR. 2009 / H1N1 vaccine
- By glowgirl · New reply 1:30 pm
- Journal · 4 replies
- Hi all, I just found out at my visit to National Jewish that my pulmnologist, made it in the magazine 5280 as TOP Dr. of the year 2009 list! I feel so blessed to be in such capable hands. My report from ...
50 ways to deal with sarcoid
- By Gypsy · Posted 1:01 pm
- Journal · 0 replies
- Home with nausea from MTX today and my mind is a bit loopy! The following is based on some of my trials, but I'd like to hear from some of you who are better poets! You know the music so hum along ...
Sad situation
- By JenniferLFleming · New reply 12:54 pm
- Journal · 7 replies
- My Brother and I both have Sarcoidosis. I have been in remission for several years now, but my Brother has been getting worse every year. It started in his lungs, spread to his spleen-which he had removed ...
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Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
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The Stop Sarcoidosis Support Community connects patients, families, friends and caregivers for support and inspiration. The Stop Sarcoidosis Support Community is sponsored by the Foundation for Sarcoidosis Research in partnership with Inspire.