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Test for Vertigo
- By IreneMarie · Posted 2:35 pm
- Discussion in Family and friends · 0 replies
- Wow - I had to hold on to the arms of my chair! http://www.gamaniak.com/video/3625 ...
Insulin & prednisone
- By rhinoldy · New reply 2:32 pm
- Discussion in Living with sarcoidosis · 2 replies
- Hi Everyone I was wondering how many others are like my husband -- he's been on prednisone (40 mg.) for just over a year & has the pred. induced diabetes. However, just recently his blood sugars increased ...
What's the deal with depression?
- By stevieb · New reply 2:29 pm
- Discussion in Living with sarcoidosis · 3 replies
- Totally unreasonable, unrelenting, totally consuming depression. I just want to cry, and why? Is this sarcoid, is this normal? I've had this for several years and just can't seem to move beyond this stupid ...
Has anyone been cellCept
- By jbackpain35 · New reply 2:21 pm
- Discussion in Treatment decisions · 6 replies
- Has anyone ever been on cellCept? My dr want to put me on cellCept not sure if its work. Can any one give me insite about this med. I have neurosarcoid, lung and skin ...
Bumping this up for new members who to get Sarc data organized
- By IreneMarie · New reply 2:18 pm
- Discussion in Living with sarcoidosis · 89 replies
- Hi fellow Sarcies, Just thought I would bump this up for those interested in getting their info organized..... easy Excel print outs to get started, give direction to and get more out of your health care ...
Weaning off of Prednisone
- By Margie74 · New reply 2:12 pm
- Discussion in Living with sarcoidosis · 16 replies
- My doctor started me off with 20mg/day of Prednisone. My dose has just been dropped to 15mg to try to wean me off. I am amazed and disappointed that I can tell the difference between the 2 doses. Although ...
Sarcoidosis and Central Sleep Apnea....connected?
New News from Cleveland Clinic!!!!!!
- By PurpleSnowflake · New reply 2:05 pm
- Discussion in Treatment decisions · 52 replies
- Hi everyone just got back yesterday from the CC with good news. I saw Dr. Parambil and he said I was responding very well to the IVIG treatments. He also told me I was the 2nd person in the whole world ...
Sarc/environmental study in 1995??
Sarcoidosis and Central Sleep Apnea. Connections??
- By HenryW · New reply 1:39 pm
- Discussion in Living with sarcoidosis · 1 reply
- I have sarc and was also diagnosed with sleep apnea. My question to all with SA is "what type of sleep apnea do you have? Obstructive or central?" I have central sleep apnea and there doesn't appear to ...
i want to help me
- By sarco · New reply 1:35 pm
- Discussion in Treatment decisions · 1 reply
- i have been diagnoised as skin sarcoidosis and the doctor give me one anti inflamatory agent called plaquenil but i did not take it yet because there are alote of side effects that i am afraid from it ...
Dr. Oz Show
- By Pictonite · New reply 1:17 pm
- Discussion in Living with sarcoidosis · 45 replies
- Hi everybody. Just a brief note to let you know I emailed Dr. Oz today about sarcoidosis. Basically I told him that there aren't many doctors who know about this disease (at least in Canada) and the ones ...
No Energy!
- By johnken · New reply 1:17 pm
- Journal · 1 reply
- Good Morning To All! Today is a lazy day for me i don't have no tap of energy at all! I had to make myself get up to check my page. My lympe nodes are inflamed and I'm hurting so bad but i'm going to ...
Don't Miss KISS - Feb 6 (Chicago)
- By FSR_Debbie · New reply 1:09 pm
- Journal · 4 replies
- This Saturday, FSR will launch our annual Kick in to Stop Sarcoidosis® Campaign in Chicago. 2010 is particularly special for FSR as we celebrate a decade of successful programs. We truly want to be able ...
Mononucleosis
- By NDLindy · New reply 12:59 pm
- Discussion in Living with sarcoidosis · 13 replies
- Has anyone heard of any links to Mononucleosis? I was in the hospital for 11 days at age 15 (I am now 59) and I missed 3 months of school. It was also a little known desease at that time. I have always ...
need help in finding out if i am normal...
- By sarcoidfamily · New reply 12:41 pm
- Journal · 1 reply
- i was dx'd with sarcoidosis in april of 2009. I had a TB skin test done for employment purposes, and they did the test incorrectly. instead of doing it just under the skin the nurse at my former employer ...
Everyone with cardiac sarc...
- By Tashabella · New reply 12:40 pm
- Discussion in Symptoms · 8 replies
- I have sarc in my lymph nodes and because I know sarc can spread, I have been vigilant in having my doctors check my lungs and heart to see if it has spread to these organs. Long story short, I had an ...
Has anyone had sarcoid in all their large bones?
- By TammieJane · New reply 12:23 pm
- Journal · 2 replies
- I have just been diagnosed with sarcoid in all my large bones and also spine as well as lungs spleen etc.? Have had pain for appx a year. They put me on 40 mg prednisone. Some pain is gone but not all ...
Yoga for Breathing Disorders
- By Julieknits · New reply 12:09 pm
- Discussion in Living with sarcoidosis · 1 reply
- Want to pass on information on a fantastic yoga dvd. Google yoga for breathing disorders and the first site is Amazon. The dvd is by Yogacharya Dr. Ananda Balayogi Bhavanani. I'd suggest watching the ...
help!!!
- By kittkitty · New reply 10:59 am
- Discussion in Living with sarcoidosis · 2 replies
- hi evry1 i was so plsd when i saw this site especially regarding sarcodosis i hve always been an active person ..until that is 18 weeks ago i took a lung infection at first the doc says oh just a viral ...
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Help and information from FSR
Sarcoidosis is a "multiorgan" disease - meaning it almost always involves more than one organ. It's unpredictable and affects different people in different ways.
You can learn about the ways in which sarcoidosis affects the body in FSR's Sarcoidosis and the Body brochure.
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The Stop Sarcoidosis Support Community connects patients, families, friends and caregivers for support and inspiration. The Stop Sarcoidosis Support Community is sponsored by the Foundation for Sarcoidosis Research in partnership with Inspire.