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Constipation (no bowel movement) with SBS?

mom415
  • By mom415 · New reply yesterday at 3:28 pm
  • Discussion in Family, friends and caregivers · 10 replies
  • HI Everyone! I am trying to understand why my daughter's doctors seem so baffled at why she has constipation now instead of those 5-6 bowel movements a day. She will not have any stool movement unless ...

Short Bowel and TPN

Bluesy
  • By Bluesy · New reply May 10, 2012
  • Discussion in Family, friends and caregivers · 5 replies
  • Hi everyone, I was posting previous discussions regarding my husband, Jim, who has Crohn's Disease (over 30 yrs.), and Short Bowel Syndrome. He finally got his Hickman port inserted and is working with ...

Conference for IV and Tube Feeders

oleyfriends
  • By oleyfriends · Posted May 9, 2012
  • Discussion in Awareness and advocacy · 0 replies
  • Don't miss this chance to learn and socialize with other patients, families, and speakers involved with IV and tube feeding. It's truly a life-changing experience. People will be joining us from all around ...

support

lakinia
  • By lakinia · New reply May 4, 2012
  • Journal · 10 replies
  • hi, i have a daughter that is 7 years she was born with short bowel syndrome since day one and went through surgery at 1hr old then battled infection at three month then was a roller coster with the TPN ...

Confrence

lakinia
  • By lakinia · Posted May 4, 2012
  • Discussion in Awareness and advocacy · 0 replies
  • Hi, i was wondering and have been searching to see if there is a short bowel confrence somentime this year in north america ...

Need help with understanding what best to do

mom415
  • By mom415 · New reply May 1, 2012
  • Discussion in Family, friends and caregivers · 25 replies
  • My daughter, 27, just had surgery 7 days ago for an obstruction and was left with 200 cm of small bowel. Her labs are abnormal, hemoglobin 9 from 8, creatinine high and liver function tests high also ...

The Inspire Q&A: Inspire talks with Howard Luks, MD

John2
  • By John2 · New reply April 15, 2012
  • Journal · 59 replies
  • Dear Inspire Community Members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people we feel are making contributions to helping patients worldwide. We are posting ...

Isn't it Iron - ic?

daviandsteve
  • By daviandsteve · New reply March 14, 2012
  • Journal · 4 replies
  • Well, I've been anemic for a couple of months, and dragging even more than usual. My GI is loathe for me to have iron infusions since my ferritin level runs high. I'm not sure exactly what ferritin is ...

Has anyone had seprafilm adhesive placed during biwel obstructiionadhesions

mom415
  • By mom415 · New reply March 11, 2012
  • Discussion in Surgery · 3 replies
  • My daughter in hospital after suffering 2nd obstruction. Surgeon was able to safely cut loop and save remaining 200 cm small intestine but applied this adhesive film , seprafilm . After about 10 hrs post ...

Latest Oley Newsletter Online

oleyfriends
  • By oleyfriends · Posted February 27, 2012
  • Journal · 0 replies
  • Check out the latest issue of the LifelineLetter at http://www.oley.org/newsletters/JanFeb20 12.pdf Here are some highlights: · CDC Guidelines on Preventing Catheter Related Infections · Tips for Being ...

feb.16-pain

bertab
  • By bertab · New reply February 18, 2012
  • Journal · 1 reply
  • today has been a painful day for me not physically but emotionally.i think that the depression after sbs can be underrated.but for me it is hell and real.i am my devil but i know God is my savior.this ...

DEPRESSION AFTER SBS

mom415
  • By mom415 · New reply February 16, 2012
  • Discussion in Newly diagnosed · 2 replies
  • I posted before trying to get help on SBS for my daughter, although doctors say if eats small meals and avoid certain foods she will not develop the condition. As complicated as this is, now that she ...

The Inspire Q&A--Inspire talks with Susan Grant

John2
  • By John2 · New reply February 15, 2012
  • Journal · 31 replies
  • Dear readers, We at Inspire are pleased to bring you the latest in a series of interviews with people making contributions to helping patients and caregivers worldwide. We are posting these interviews ...

T.P.N EFFECTS WITH SBS LONG TERM

makey
  • By makey · New reply January 31, 2012
  • Discussion in Newly diagnosed · 3 replies
  • Hi this is my first post , i have been on T.P.N now for 1 year now due to a accident which resulted in me losing all but 40cm of small itestine, and 1/3 of large intestine. i started on TPN 7 days a week ...

Short Bowel Syndrome with healthy Pregnancy??!?

kajunkara
  • By kajunkara · New reply January 20, 2012
  • Journal · 3 replies
  • I am 23 years old and more than 4 years ago I had the Gastric Bypass surgery, and had a healthy baby boy, with slight health issues. 2 years ago I had a twist in my intestines and lost 6-12 inches and ...

Inspire is hiring!

Walter
  • By Walter · New reply January 20, 2012
  • Journal · 15 replies
  • Inspire is hiring, and we're wondering if you know someone who would be the perfect addition to our team. Hello everyone, I'm Walter, one of Inspire's founders and the head of our technical team. I'm ...

The Inspire Q&A--Inspire talks with Michele Baldwin

John2
  • By John2 · Posted January 3, 2012
  • Journal · 0 replies
  • Dear readers, We at Inspire are pleased to bring you the latest in a series of interviews with people making contributions to patients and caregivers worldwide. We are posting these interviews in a Q&A ...

Our Christmas hospital stay.

AdvanceChairMrsB
  • By AdvanceChairMrsB · New reply December 26, 2011
  • Journal · 2 replies
  • After passing our 2 year anniversary, on the 18th, Andrew was admitted to CCMC on the 21st. for a central line infection. They removed his line yesterday morning. I am so proud of my wonderful son, Andrew ...

Two years ago today.......

AdvanceChairMrsB
  • By AdvanceChairMrsB · New reply December 21, 2011
  • Journal · 5 replies
  • I wrote this rambling thought yesterday, and I want to share it with my new family. Two years ago today my life was forever changed......Not for the good.....Not for the bad.....Just changed..... Two ...

Following: A new Inspire feature

Walter
  • By Walter · New reply December 5, 2011
  • Journal · 111 replies
  • Hello everyone, I'm writing to let you know about a new Inspire feature that we launched last night, designed to help you keep track of conversations you're interested in. We call it "following" and here's ...

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SBSFoundation: Congratulations to Leo and John Jablonski & Don and Nicole LaFleur for completing the Lincoln Half Marathon this... http://t.co/608xKRPv

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About this community

The Short Bowel Syndrome Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Short Bowel Syndrome Foundation, an Inspire trusted partner.