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Disability Status Decision
- By stacyl531 · New reply 5:19 pm
- Discussion in Systemic scleroderma · 5 replies
- Hi - I applied for Disability in August of this year. I just received an email stating a decision has been made on my claim and that I would be notified by mail. I called up the office to see if I could ...
Cramps in legs/toes
- By Annlee · New reply 4:10 pm
- Discussion in General discussion · 10 replies
- I starting getting cramps in my legs( from knee down) and toes ( duing the night or early morning) I dont know if its scleroderma related or not, anyone have this problem ...
frustrated
- By Invyzabul · New reply 2:50 pm
- Discussion in General discussion · 7 replies
- i am just very frustrated. my doctor is saying that all my tests are coming back normal. so, i guess theres nothing wrong with me and my imagination ha crated my hand problems, migraines, gerd, arthritis ...
Being pulled in 3 derections
- By starre · New reply 1:41 pm
- Journal · 2 replies
- I have 3 kids a 13 yr old that i need to be involed in because she is a teenager that is starting to like boys and hormones ranging is try to keep her active in dancing and school activities but i find ...
Dentist appt.....Are you kidding me??!!!!!!
- By Terri9967 · New reply 12:34 pm
- Journal · 21 replies
- Ok.....went to my new dentist yesterday. After sitting there for 45 min and not being called, I approached the front desk and ask how much longer it was going to be? She told me that the phone repair ...
2 Yr Old Little Girl with Morphea
- By daniel2009 · New reply 11:51 am
- Discussion in Newly diagnosed · 2 replies
- Does anyone out there have any experience with this horrible issue? She has this in her upper inside thigh. Is there anyone out there that specializes in this so rare form of Scleroderma? Please let us ...
Pulmonary Hypertension/Heart Cath question
- By Libi · New reply 11:47 am
- Discussion in General discussion · 10 replies
- If you have had a heart cath to either diagnose or follow up specifically for Pulmonary Hypertension only were you sedated at all? Even lightly? I was NOT sedated with my last one and from what I'm reading ...
New Drug for Pulmonary Fibrosis
- By ilene64 · New reply 8:09 am
- Discussion in Systemic scleroderma · 2 replies
- An announcement was made that the FDA is reviewing a drug called Pirfenidone by InterMune for Pulmonary Fibrosis. I recieved notice though the Coalition For Pulmonary Fibrosis. I don't know how to attatch ...
Calcium deposit
- By SamDeTray-11 · New reply yesterday at 9:44 pm
- Discussion in General discussion · 1 reply
- on my left forearm needs to be gone its hurting pretty bad for the past few days. I was supose to have it taken off back in the summer time but I decided to wait. Also my elbow is hurting like I have ...
Pulminary Hypertension
- By carmie-s · New reply yesterday at 3:21 pm
- Discussion in Newly diagnosed · 4 replies
- I have recently been diagnosed with Pulminary Hypertension by heart cath. My pressures were 37 which I was told are not that high. I also have other lung issues and I am short of breath. My Drs are trying ...
blood tinged mucous
- By Nico2 · New reply yesterday at 3:02 pm
- Discussion in General discussion · 3 replies
- Was wondering if anyone has coughed up blood tinged phlegm, or mucous, for the past 2 days I have coughed up mucous with a little blood tinge in it, I have done this about 3 times each day., You know ...
In Sickness and In Health
- By SamDeTray-11 · New reply yesterday at 2:53 pm
- Discussion in News · 2 replies
- In Sickness and In Health Chronic illness interjects complications into marriage to read more of the article click here: http://arthritis.about.com/cs/sex/a/sick nesshealth.htm ...
The Treasure of Everyday Stuff
- By No-1-Optimist · Posted yesterday at 2:47 pm
- Journal · 0 replies
- The small grove of trees lean into a collective huddle like Biblical women gathered at the well. One wears a jacket of gold while another dons a cape of dark green pine needles. A third brazenly exposes ...
A/P TREATMENT
- By beetleee · New reply yesterday at 10:35 am
- Discussion in Treatment options · 7 replies
- HI I WILL BE GOING ON A/P TREATMENT SHORTY. AND I WOULD LIKE TO KNOW if PEOPLE THAT HAVE BEEN ON IT, IF THEY HAD TO CHANGE THEIR DIET ...
tooth extraction
- By ANA1965 · New reply yesterday at 9:09 am
- Discussion in Systemic scleroderma · 10 replies
- Hi, Today the dentist told me that I have to have a tooth extracted because the cavity is too large. I am afraid, not only because I'm afraid of going to the dentist, but because with the scleroderma ...
Living and Coping with Arthritis
- By SamDeTray-11 · Posted yesterday at 7:18 am
- Discussion in News · 0 replies
- Living and Coping With Arthritis By Carol & Richard Eustice, About.com Guides to Arthritis Arthritis can impose physical limitations which affect daily living activities. Arthritis can impact your life ...
Normalcy
- By jasminne · New reply November 5, 2009
- Journal · 19 replies
- I am spending all and any extra energy trying to be normal. I don't know what that really means, but all that keeps me going is my brain telling me over and over : just be normal, just be normal, you ...
rotator cuff tear and tendonitis
- By Adina · New reply November 5, 2009
- Discussion in Systemic scleroderma · 12 replies
- I am suffering of terrible shoulder pain that it is getting worst at night and in the morning.I was diagnosed with rotator cuff tear . I would like to know if anybody else has this condition and if it ...
Stomach Issues
- By Gina_Bell · New reply November 5, 2009
- Discussion in General discussion · 7 replies
- I have been diagnosed since like 2005 with scleroderma and since then other things have occured. I've had renial crises. At first when I finally found out what I had and read up on it I had to just stop ...
H1N1 Vaccine
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The Scleroderma Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. The Scleroderma Foundation Support Community is sponsored by the Scleroderma Foundation in partnership with Inspire.