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Anti-Inflammatory Diet Thoughts...
- By KOwens · New reply 1:46 pm
- Journal · 21 replies
- The anti-inflammatory diet has changed my life! If you are on this website and want to share ideas and recipes, please let me know. I keep a record of my daily diet and recipes at: BLOG: http://s205013910.onlinehome.us ...
gas / joint pain
- By ivana · Posted 1:39 pm
- Journal · 0 replies
- What do you take for gas relief other than probiotics? Does anyone take any joint health supplements and do they help with the pain ...
Yesterday 3rd Argon Laser
- By KAYE45 · New reply 12:53 pm
- Journal · 1 reply
- Yesterday 3rd laser to stop the stomach bleeding. (2nd time within two months). Doing ok, except for the cramping and the usual extreme fatigue. Waiting for our next snow storm to hit. Live in Ocean County ...
Getting off of PREDNISONE
- By jrendon29 · New reply 12:43 pm
- Discussion in Systemic scleroderma · 2 replies
- Hi All, I am writing on behalf of my mother who has scleroderma. She was currently prescribed methotrexate but she is still taking prednisone. She wants to quit prednisone right away but I have heard ...
Help need SD Specialist in N. California
- By tommysgirl1 · Posted 10:37 am
- Discussion in Newly diagnosed · 0 replies
- I live just North of Sacramento California, was diagnosed with scleroderma in my esophagus cant eat any solids, I live on a liquid diet. I don't have any skin manifestations yet, my fingers swell a little ...
Itchy Skin
- By majorcb · New reply 10:18 am
- Discussion in Systemic scleroderma · 6 replies
- Hi, I'm new to this board. I have Diffuse Scleroderma. Diagnosed 4 yrs., and 4 months ago. For the past couple of months I've had very itchy skin. It's mainly on the underside of my arms. I not going ...
Limited Scleroderma
- By collins6 · New reply 10:03 am
- Journal · 6 replies
- I was recently diagnosed with LS and would like to know what to expect or what should i be aware of to know how this disease is going to affect my body. My mother-n-law had Systemic Scleroderma and lived ...
Advancing Scleroderma
- By Sunniejos · New reply 9:56 am
- Discussion in Systemic scleroderma · 6 replies
- Hi, my name is Sunnie. I was diagnosed with scleroderma about 1998. The disease has attacked me in many ways over the years. First developing Raynauds and CREST syndrome. Now, however, after 3 hospital ...
need to move
- By starre · New reply 9:15 am
- Journal · 14 replies
- The cold weather in maryland is causing my hands to hurt every time i go out i come back in the house crying because of the pain. Now me and my husband are going through a seperation i've been so stressed ...
I'm Lost and Confused
- By KAYE45 · New reply 9:00 am
- Journal · 14 replies
- Ok, finally to Rheum - who said she doesn't think I have SD even with positive ANA "Crest". Said patients usually present with skin issues first. Long story short she ordered more blood work ANA, Thyroid ...
Just received lab results...
- By Amyly2n · New reply 8:35 am
- Discussion in Newly diagnosed · 3 replies
- Today I received the results from my lab results, they said "dermal fibrosis suggestive of morphea". The doctor who performed the biopsy said she wasn't 100% familiar with it and knows morphea is a type ...
What now...
- By StaceB · New reply yesterday at 10:02 pm
- Journal · 10 replies
- Due to Scleroderma, I developed depression at 13. When I went to HS, all the changes I went through helped me finally get over it. Now I think it's coming back. So for the first time I will say this where ...
The foods we eat
- By tbeth · New reply yesterday at 7:16 pm
- Journal · 29 replies
- I have scleroderma with raynauds and pulmonary fibrosis in both lungs. Initially upon diagnosis, I had no idea where this was leading. Thank goodness I made decisions early on that have been very beneficial ...
Quick update for those wondering why I haven't answered
- By spiritlove · New reply yesterday at 6:26 pm
- Journal · 26 replies
- Been feeling poorly recently. Monday felt rather large lump in groin area, didn't hurt so decided to wait for dr. appt. Thursday. Word of advice, if it's a LUMP (!) DON"T WAIT! Started hurting Wednesday ...
Uncharted waters
- By john52 · New reply yesterday at 6:15 pm
- Journal · 6 replies
- Hi all, my name is John and I am 57 years old...I am new to the community. I am so glad to know that I am not alone while I navigate through these uncharted waters. September 2008 I was diagnosed with ...
Going off one drug to another.
- By Sadie-bear · New reply yesterday at 6:12 pm
- Journal · 3 replies
- Help. My doctor is taking me off one drug and say's that it will take me 3 wks before I can start on the Savella. I have a new problem along with the Scleroderma I have. They now say I have Fibromyalgia ...
just curious....
- By tannersmom · New reply yesterday at 6:11 pm
- Discussion in Family and friends · 9 replies
- I have always been curious about scleroderma, my grandmother died from complications of it....is this hereditary? I have done some research on this, and I have noticed that Raynauds syndrome is sometimes ...
The Lone ranger and tonto
Blindness From Plaquenil
- By Bonnie_J · New reply yesterday at 3:21 pm
- Discussion in Systemic scleroderma · 6 replies
- I have some significant damage to my eyes from taking Plaquenil. Has anyone been declared legally blind because of having bulls eye maculopathy caused by Plaquenil ...
RNs and autoimmune disease
- By ingalisa · New reply yesterday at 1:12 pm
- Discussion in General discussion · 4 replies
- I have noticed that a lot of women posting in autoimmune forums are RNs. I am one too. I wonder if any of this is statistically significant? Perhaps it is just because so many females are RNs, that it ...
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The Scleroderma Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. The Scleroderma Foundation Support Community is sponsored by the Scleroderma Foundation in partnership with Inspire.