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The Letter of the day "G"
- By Nelleg40 · New reply 7:06 am
- Journal · 9 replies
- Today my feeling is GRATEFUL, there aren't a lot of days that you remember to wake up feeling grateful just to be alive with the diseases I have. Today I made it a point to wake up, ignore the medicine ...
my son was just diagnosed
- By shabbychick · New reply 5:37 am
- Discussion in Localized scleroderma · 2 replies
- My 9 yo was just diagnosed with localized scleroderma of his face. I have a lot of questions and would love to hear from someone who has a child with this or who has had this themselves ...
Pls Help, 13 yr Old w/ Linear Scleroderma
- By Alesasmom · New reply 5:18 am
- Discussion in Treatment options · 4 replies
- I'm new to this site. I have a 13 yr old who was diagnosed with Linear Scleroderma almost 3 yrs ago. Her fingers started curling and she had a red circle (patch) on her right arm. At first they thought ...
Pls Help Linear Scleroderma
- By Alesasmom · New reply 5:08 am
- Discussion in General discussion · 6 replies
- I'm new to this site. I have a 13 yr old who was diagnosed with Linear Scleroderma almost 3 yrs ago. Her fingers started curling and she had a red circle (patch) on her right arm. At first they thought ...
Tramadol ER
- By TINATURNER · New reply 2:51 am
- Discussion in Systemic scleroderma · 5 replies
- Does anyone take the extended release of Tramadol and if so can you cut it in half . I take 100 mg but want to save money and get 200 mg and cut in half ...
Dental Woes
- By stacey9 · Posted 2:35 am
- Discussion in Treatment options · 0 replies
- I have been sick for a long time; but was only correctly diagnosed for the past few months. I was diagnosed with SLE, but do not have lupus. I do have fibromyalgia, Sjogrens and Raynauds in addition to ...
Vitamin D for scleroderma
- By rcbaker200 · New reply 2:30 am
- Discussion in Treatment options · 8 replies
- Went through the discussion on vitamin D. Contained much good info and some misinformation. Vit. D comes primarily from the sun and only a small percentage of people get enough sun in this and many other ...
Graduation Day
- By ghappy18 · New reply 1:46 am
- Journal · 3 replies
- When I was first diagnosed with scleroderma my biggest concern was for my little boy. He was only eleven years old at the time. I didn’t want this disease or my possible demise to color his childhood ...
Returning to the Rat Race of Rheumatology
- By Teri5 · New reply 1:42 am
- Discussion in Systemic scleroderma · 8 replies
- After not having gone to a doctor of any type in over 6 months, abandoning all medications, I've decided that enough is enough. What I'm doing isn't working. I am feeling worse. So, I'm going to try a ...
diagnosed w/ CREST
- By vmend02 · New reply 12:57 am
- Discussion in Newly diagnosed · 6 replies
- Hello everybody, I am new to these support communities. I was diagnosed with CREST through a rheumatologist 3 mons ago and decided I needed support from people going through the same things. Being so ...
Anyone turning blue from Minocin?
- By Jazqueline · New reply 12:33 am
- Discussion in Systemic scleroderma · 15 replies
- I am 63 years old. I have been on Minocin since 2004. My cheeks have been slowly turning blue. Then my teeth turned blue. Now it is spreading to my upper lip. I look like I have a 5 oclock shadow! Though ...
Transplant list
- By autumnwind24 · New reply yesterday at 11:26 pm
- Discussion in Systemic scleroderma · 7 replies
- I finally made the transplant list. It is official and I'm exited and scared. I'm feeling very grateful. God inasmuch blessed me again. Autumnwind ...
The Letter of the day "R"
- By Nelleg40 · New reply yesterday at 7:06 pm
- Journal · 20 replies
- I've decided to dedicate my journal entries to creative outlets. I'm going to title it "the letter of the day", whatever letter is in quotations...you have to describe your mood, feeling, emotion, whatever ...
Can Localized scleroderma turn systemic?
- By 907akgirl · New reply yesterday at 6:46 pm
- Discussion in General discussion · 13 replies
- I was just curious if anyone has had morphea and had it turn to systemic? I have had morphea for 20 + years and within the last few I have been very Ill feeling with extreme fatigue, joint and muscle ...
I was most relieved when...
- By Little_C · New reply yesterday at 1:59 pm
- Discussion in Systemic scleroderma · 15 replies
- Complete this sentence for me. I was most relieved when.... I want to hear your thoughts! Little_C ...
groundglass in lungs
- By ivana · New reply yesterday at 1:09 pm
- Discussion in General discussion · 5 replies
- What exactly do they mean when they say you have groundglass opacities in the lungs and may be related to alveolitis? Also increased density in the lung apices? I know someone mentioned this before. This ...
Dr. In Ann Arbor MI
- By topazst · New reply yesterday at 11:54 am
- Discussion in Systemic scleroderma · 15 replies
- Hi All, I am wondering if anyone has any experience with a sclero specialist in the Ann Arbor area. If anyone has any experience with a specific doctor there, would you mind sharing? I live in mid-MI ...
Does Cytoxan help scleroderma?
- By mzzann · New reply yesterday at 11:31 am
- Journal · 23 replies
- I currently getting ready to start chemo in next couple of weeks. Can anyone give me some advice? My Doc says that my hair will not fall out and there are not any bad side effects ...
New G.I. Doctor
- By TerryMcD · New reply yesterday at 11:26 am
- Journal · 8 replies
- Yesterday I had a appt with a new G.I. dr that I met at our Sclero seminar in March. I really like him and he really seems to know his stuff but, why tell me your putting me on an antibiotic for two weeks ...
Enjoying joy of life today
- By mountain_hkr · New reply yesterday at 11:09 am
- Discussion in General discussion · 4 replies
- Every new change makes me think, "I cannot let this happen, I got to be here and be well for my kids." I try not to think about it every day like I used to. I don't want to waist any precious time for ...
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