Pseudomyxoma Peritonei (PMP) Support Community

The Pseudomyxoma Peritonei (PMP) Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

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grandaughter has pmp

By mkm1450 · New reply May 19, 2012
Discussion in Newly diagnosed · 7 replies
Hello. I found this site after my grandaughter was diagnosed with PMP Oct 3. It was discovered after what was thought to be an appedicitis attack. She is 23, married, has a 20 month old and a 3 month ...

My sister's surgery just started :(

By lala27 · New reply May 18, 2012
Discussion in Surgery and recovery · 3 replies
Hi All, My sister is 55 has had lupus since she was 12, was diagnosed thanksgiving during a laproscopic surgery for ovarian mass which we found out was the PMP, her ovaries, tubes,appendix were removed ...

2 months post HIPEC

By LostintheOzone · New reply May 18, 2012
Discussion in Surgery and recovery · 6 replies
I was wondering if anyone experienced nausea 2 months after HIPEC. I usually get a little queasy after breakfast and sometimes lunch and dinner. I haven't gotten sick. Any suggestions to deal with this ...

PMP Support group in The Netherlands

By Ornoela · New reply May 11, 2012
Journal · 2 replies
Dear all, Since a few weeks there is a supportgroupe PMP in Holland! We are about 13 people from The Netherlands and Belguim. On april 14th, we had our first meeting which was very good. We shared experiences ...

New Zealand Husband dx with PMP

By sface1963 · New reply May 2, 2012
Discussion in Newly diagnosed · 9 replies
We live in Wellington, New Zealand and my husband has just been diagnosed with PMP - was on his discharge papers. They did a biopsy prior to release and now we have a follow up appt with John Keating ...

The Inspire Q&A: Inspire talks with Howard Luks, MD

By John2 · New reply April 15, 2012
Journal · 59 replies
Dear Inspire Community Members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people we feel are making contributions to helping patients worldwide. We are posting ...

13 years and counting

By Beejle · New reply March 4, 2012
Discussion in Long-Term survivors (10+ years) · 6 replies
I have had PMP since 1998. Am I the only one on this board who has survived for 10 years or more? At this point I have had about 6 surgeries and numerous chemo treatments. I am currently living on TPN ...

The Inspire Q&A--Inspire talks with Susan Grant

By John2 · New reply February 15, 2012
Journal · 31 replies
Dear readers, We at Inspire are pleased to bring you the latest in a series of interviews with people making contributions to helping patients and caregivers worldwide. We are posting these interviews ...

Inspire is hiring!

By Walter · New reply January 20, 2012
Journal · 15 replies
Inspire is hiring, and we're wondering if you know someone who would be the perfect addition to our team. Hello everyone, I'm Walter, one of Inspire's founders and the head of our technical team. I'm ...

newbee to appendix cancer looking for advice.

By nucleophile · New reply January 18, 2012
Discussion in Newly diagnosed · 8 replies
Here is my situation with appendix cancer and want to compair with others to see if I'm on the best track to have this problem fixed. -May 27 2010 appendix burst was given antibiotics and surgery schedualed ...

The Inspire Q&A--Inspire talks with Michele Baldwin

By John2 · Posted January 3, 2012
Journal · 0 replies
Dear readers, We at Inspire are pleased to bring you the latest in a series of interviews with people making contributions to patients and caregivers worldwide. We are posting these interviews in a Q&A ...

Unsuccessful surgery

By janla · New reply December 31, 2011
Journal · 2 replies
My husband had his surgery on December 12. The doctor said that there was too much damage to be able to help him, unless he took out all of his intestines, stomach and anything else in the abdomen. He ...

Sunday, November 20, 2011

By janla · New reply December 29, 2011
Journal · 6 replies
My husband of 40 years was recently diagnosed with PMP. His surgery is set for December 12, 2011. We both are frightened by the diagnosis and the treatment of PMP. He is seeing Dr. Ong, a PMP specialist ...

PMPRF 2011 Research Grant Recipients

By kmb315 · Posted December 21, 2011
Discussion in Awareness and advocacy · 0 replies
The PMP Research Foundation is pleased to announce the recipients of our three $50,000, two-year research grants for 2011. We have now funded $450,000 in PMP-related research in just three short years ...

Following: A new Inspire feature

By Walter · New reply December 5, 2011
Journal · 111 replies
Hello everyone, I'm writing to let you know about a new Inspire feature that we launched last night, designed to help you keep track of conversations you're interested in. We call it "following" and here's ...

PMPRF Fall, 2011 Newsletter: Research & Fundraising Updates, Videos, More!

By kmb315 · Posted November 21, 2011
Discussion in Awareness and advocacy · 0 replies
Check out PMPRF's Fall newsletter! Lots of exicting news, including fundraising and research updates along with info on the ASPSM PMP patient data collection effort and how you can participate. http://www.pmpcure.org/blog/research-and ...

multiple HIPEC surgeries

By momcancer1 · New reply November 18, 2011
Discussion in Surgery and recovery · 6 replies
Is there anyone there that has had multiple HIPEC surgeries? Found cancer again 6 months after 1st HIPEC. 2nd Hipec is being suggested ...

New to forum/Newly diagnosed/Where to find specialists?

By neverbaleful · New reply November 18, 2011
Discussion in Newly diagnosed · 2 replies
Hi, everybody! I'm new here, and very relieved to see I am not as alone as I initially felt when I got the diagnosis. After an ultrasound and follow-up CT, I was (mis)diagnosed with ovarian cancer a few ...

Is there such a thing as too much information??

By McDougal · New reply November 11, 2011
Discussion in Newly diagnosed · 10 replies
Hello all, My brother's diagnosis of PMP was confirmed yesterday. He is 48, married, 2 young daughters. We have suspected this for 2 weeks and have been researching like crazy. I had resigned myself to ...

Research Update from 2009 PMPRF Grant Recipient Dr. Zeh

By kmb315 · Posted November 9, 2011
Discussion in Research information · 0 replies
Please see the latest research update from 2009 PMPRF Grant Recipient Dr. Herbert Zeh-UPMC: http://www.pmpcure.org/blog/zeh-update-1 1-11 "These data will help advance our efforts in delivering effective ...

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PMPCURE: New research out from Bartlett et. al. at UPMC: "Mucin as a therapeutic target in pseudomyxoma peritonei." http://t.co/R3qAkYhv

PMPCURE: New research out, including study from the Christie on non-disseminated mucinous neoplasms and study from... http://t.co/HaIjuoSa

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About this community

The Pseudomyxoma Peritonei (PMP) Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the PMP Research Foundation, an Inspire trusted partner.