Preemie Support Community

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Finally! Approved!

By chloeolivia · New reply 4:26 am
Discussion in Open discussion · 1 reply
The fight has been long and we have been denied more than once, but we were finally approved for supplemental Medicaid this week!!!!!! It has been an extremely stressful three years and family friends ...

Feeding Aversion Nutrition Question

By MilesandWillsMommy12 · New reply 4:10 am
Discussion in Open discussion · 7 replies
I'm going to make a long story short.... My 24 weeker's sensory processing disorder and WICKED acid reflux have resulted in the traditional outcome...severe feeding aversion. We're working on it with ...

IUGR-absent end flow

By pinkerton1205 · New reply 2:31 am
Discussion in Preemie pregnancy · 4 replies
I was diagnosed with IUGR at 24 weeks due to placenta/flow issues. The doctor noted absent end flow at this time and extremely low fluid (2). I have been monitored for the past two weeks, and at my last ...

sIUGR twins are 8 weeks. LOTS OF SETBACKS

By bcrazee2 · New reply 2:25 am
Journal · 1 reply
My boys are 8 weeks today and still on CPAP. My larger twin is now 5lbs 3oz but after 4 attempts to come off cpap he has failed. He is so ready to start feeding by mouth but cant until hes off cpap. my ...

why arent more mothers given the facts?

By prov31gal · New reply yesterday at 10:25 pm
Discussion in Open discussion · 30 replies
http://www.ncbi.nlm.nih.gov/pmc/articles /PMC2675323/ obviously im glad formula exists, if breastmilk truly isnt available, then formula can keep a healthier infant alive, and i have used it in the past ...

HBOT

By prov31gal · New reply yesterday at 7:34 pm
Discussion in Open discussion · 1 reply
ANYone know any HBOT providers for CP in the WV VA MD PA AREA? johns hopkins is a no, and most places only treat infection or wounds. please help ...

28 weeker - Baby's weight too less - steroids ?

By tarun · New reply yesterday at 3:36 pm
Discussion in Growing up and education · 4 replies
My daughter was born on 25th Sep 2009 and she is nearly 32 months now. She was born in 28 weeks and was in NICU for 50 days. She still weighs slightly less than 24 pounds. She still has not caught up ...

WE ARE FINALLY HOME AFTER 18 MONTHS

By ravensmom · New reply yesterday at 12:30 pm
Discussion in Going home/family · 12 replies
LOUIS WAS BORN AT 27 WEEKS ON 11-4-2010 DUE TO MY HYPERTENTION. HE WAS 12 INCHES LONG WEIGHING ONLY 1LB 10 OZ. HE HAD A LARGE INGUINAL HERNIA REPAIRED AND LATER A TRACH AND GTUBE SURGERY. LOUIS HAS BPD ...

craniosynostosis & hypospadias

By dancingfeet · Posted yesterday at 9:55 am
Discussion in Open discussion · 0 replies
Hi all, My preemie son has both of the above conditions (he's at 32 weeks gestation, 3 weeks actual), although he has very mild cases and we're hoping that, as he gets older, his growth is such that he ...

Vomiting j tube tip??

By jeca_s · Posted May 19, 2012
Discussion in Open discussion · 0 replies
Has anyone else experiences this!? Sebastian just got his tube changed 2 days ago because it ended up curled in his stomach instead of jejunum.. And 1 day later he started vomiting milkk again.. Calles ...

Full of Fear

By Km77leo · New reply May 19, 2012
Discussion in Going home/family · 8 replies
I found out today that our baby girl is scheduled to come home on Monday! I've been waiting for this time to come for so long, but so many things have changed. I'm suddenly realizing that I am soon going ...

The day bedrest began......

By ellyannarosemann · New reply May 19, 2012
Journal · 1 reply
At 19 weeks i was scheduled for the big anatomy scan and finally I got to see my baby girl again! Everything was going well she is developing normally and looks great. The doctors decided that they wanted ...

pprom at 15 weeks

By krriisstyy · New reply May 19, 2012
Discussion in Open discussion · 20 replies
this is my first pregnancy and iam so worried after just coming home from the hospital once again with some bad news i had pprom at 15 weeks iam now 18 weeks pregnant i didnt know i had pprom up until ...

Happy Mother's Day

By ElaineTherese · New reply May 19, 2012
Discussion in Open discussion · 3 replies
I have been a silent member for quite some time my grandaughter is a 23 weeker born March 10, 2011. She is 14 months old (actual) and she is truly a gift from God. We are so blessed. I want to wish all ...

24 weeker - Vent dependent, 3 episodes of CpR and lost reflexes

By LukeGerardsMom · New reply May 18, 2012
Discussion in In the NICU/PICU · 5 replies
Hello, I've been a long time Lurker and need some advice. Our son Luke was born 24wk5d. He was doing great until he needed a series of CPRs. As soon as he had his 1st episode, he began phenobarbital ...

A Very Interesting Post By an MD Who Lost a Baby

By ddiscenza1 · New reply May 18, 2012
Discussion in Preemie Angels · 6 replies
I saw this posted on one of my social networks and thought it a very appropriate post for this section. I hope it is helpful? I appreciate your feedback. http://childrenshospitalblog.org/being-t he-mother-of-a-child-who-died-on-mothers ...

fundo and gtube

By brandon_mommy · New reply May 18, 2012
Discussion in In the NICU/PICU · 1 reply
My son had a fundo/gtube. The fundo helped with his breathing he was on high oxygen levels before surgery about 50 to 60% on a heated canula at 2 liters. Now he is on 1 1/2 at about 21% to 25%. But his ...

Feeling Down After Doctors Feedback

By nicnat100 · New reply May 18, 2012
Discussion in In the NICU/PICU · 5 replies
Hi All. We decided to transfer our baby girl to a top hospital where they have a team dedicated to chronic lung disease. My daugther is 6 months old with CLD and has a trache and gtube that was done in ...

Help! G-tube/nissen surgery

By Mommy3b1g · New reply May 18, 2012
Discussion in Open discussion · 5 replies
My 7 month old is going to be getting a nissen/g-tube today. We are actually in the pre-op room right now. I am extremely nervous and am wondering how will she feel and look right after surgery. Please ...

Hearing screen test

By Mavis2011 · New reply May 17, 2012
Discussion in Going home/family · 4 replies
My (11mth adjusted) son passed his hearing test before nicu discharge. However after discharge, he failed 4 subsequent tests for both ears (i am puzzled) Any advice or experience you can share with me ...

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Inspire connects patients, families, friends and caregivers for support and inspiration.