Pediatric Palliative Care Support Community

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The Inspire Q&A: Inspire talks with Howard Luks, MD

By John2 · New reply April 15, 2012
Journal · 59 replies
Dear Inspire Community Members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people we feel are making contributions to helping patients worldwide. We are posting ...

Words that add salt to the wounds

By tomeckom · New reply April 5, 2012
Journal · 29 replies
It was one of those days. It started out decent...you know, the usual Monday morning for me. I get the kids up and take them to school, come home to clean up the morning mess...all the while taking care ...

parental grief

By brandiemarie · Posted March 6, 2012
Discussion in Emotional support for parents and siblings · 0 replies
after the death of a child there seems to be little support for parents, I was hoping to find some help with .... -cost of gravemarker -bereaved parent respite retreats -local social groups uniting parents ...

The Inspire Q&A--Inspire talks with Susan Grant

By John2 · New reply February 15, 2012
Journal · 31 replies
Dear readers, We at Inspire are pleased to bring you the latest in a series of interviews with people making contributions to helping patients and caregivers worldwide. We are posting these interviews ...

My Rheagen got his wings

By brandiemarie · New reply February 5, 2012
Journal · 20 replies
Rheagen lost his battle with cancer on jan. 19th at 2:20 am. He had been in the hospital for almost 3 weeks in the most intense pain I've ever seen someone go through. He wasnt happy with us for taking ...

Life stresses

By tomeckom · New reply February 4, 2012
Journal · 6 replies
Yesterday started off bad and just kept getting worst....eh...let me backtrack a little...this whole past week & weekend were pretty bad. Personal stuff and the stupid stomach virus that got 4 of the ...

A letter to my younger self:

By tomeckom · New reply January 30, 2012
Journal · 2 replies
As seen on my blog... http://mtomecko.blogspot.com/2012/01/let ter-to-younger-self.html To my younger self....there are going to be times when you get mad at life...school, family, friends, work...whatever...listen ...

Inspire is hiring!

By Walter · New reply January 20, 2012
Journal · 15 replies
Inspire is hiring, and we're wondering if you know someone who would be the perfect addition to our team. Hello everyone, I'm Walter, one of Inspire's founders and the head of our technical team. I'm ...

The Inspire Q&A--Inspire talks with Michele Baldwin

By John2 · Posted January 3, 2012
Journal · 0 replies
Dear readers, We at Inspire are pleased to bring you the latest in a series of interviews with people making contributions to patients and caregivers worldwide. We are posting these interviews in a Q&A ...

How did we get here?

By brandiemarie · New reply December 7, 2011
Journal · 5 replies
For the last few weeks Rheagen has been on a new treatment in hopes of beating his lung tumor. last week we went in for a mid treatment scan and learned that not only is the tumor not shrinking, it growing ...

Following: A new Inspire feature

By Walter · New reply December 5, 2011
Journal · 111 replies
Hello everyone, I'm writing to let you know about a new Inspire feature that we launched last night, designed to help you keep track of conversations you're interested in. We call it "following" and here's ...

Patient-driven research

By Brian · Posted October 13, 2011
Journal · 0 replies
I'd like to share with you a new Inspire report, The SCAD Ladies Stand Up: Stories of Patient Empowerment, which chronicles patient-initiated research in our community. This amazing patient-driven effort ...

The Inspire Q&A: Inspire talks with Mithra Behnam Mojtahedi

By John2 · New reply July 30, 2011
Journal · 15 replies
Dear readers, We at Inspire are pleased to bring you the latest in a series of interviews with people we feel are making contributions to helping patients worldwide. We are posting these interviews in ...

The Inspire Q&A: Inspire talks with “e-Patient Dave” deBronkart

By John2 · New reply July 26, 2011
Journal · 35 replies
Dear Inspire Community Members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people we feel are making contributions to helping patients worldwide. We are posting ...

Life is a bowl of cherries...so please excuse me.

By tomeckom · New reply July 23, 2011
Journal · 18 replies
Excuse me if I'm a bit on edge today, I've had a very trying day 4+ years. See, trying to babies alive inside of me only to have them born at 23 weeks...the NICU, the death of Nick, the unplanned (but ...

The Inspire Q&A: Inspire talks with Kevin Pho, MD

By John2 · New reply July 19, 2011
Journal · 58 replies
Dear Inspire Community Members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people we feel are making contributions to helping patients worldwide. We are posting ...

The elite club... (taken from my blog)

By tomeckom · New reply June 29, 2011
Journal · 5 replies
I cant believe its been four years. Four years since I last seen my baby Nick. I never thought I could even make it through the first year, yet, I have made it through four years. People were right about ...

New feature -- Browse posts you've recommended

By Walter · New reply June 26, 2011
Journal · 38 replies
Hello everyone, We added a new feature today that we hope you find helpful. You can now browse the complete list of posts that you have recommended, here: Browse posts you've recommended What's a recommendation ...

Encourage Yourself....

By chaplainstevens · New reply June 10, 2011
Journal · 5 replies
David encouraged himself in the Lord his God 1st Samuel 30:1-6 You don’t smile like you used to. You don’t love like you used to. You don’t get happy like you used to. You don’t feel the Spirit like you ...

The Inspire Q&A: Inspire talks with Bonnie Diraimondo

By John2 · New reply May 25, 2011
Journal · 16 replies
Dear Inspire Community Members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people we feel are making contributions to helping patients worldwide. We are posting ...

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Inspire connects patients, families, friends and caregivers for support and inspiration.