Ostomy Support Group

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Ileostomy reversal: Worries

By ThreeStone · New reply yesterday at 11:15 pm
Discussion in Coping after ostomy surgery · 36 replies
Next week I will have surgery to reverse my ileostomy. I've heard that some people doing this have serious difficulties with incontinence, skin irritation and in general cannot be too far from a toilet ...

Spa Visits

By Rosebud2012 · New reply yesterday at 10:18 pm
Journal · 7 replies
Has anyone had a spa day post ostomy surgery? For mothers day this year my son gave me a real nice gift to a spa. The type of spa treatment would include a mud soak, and deep tissue massage. I haven't ...

WATER SPORTS

By SURFDAWG · Posted yesterday at 9:21 pm
Discussion in Coping after ostomy surgery · 0 replies
I AM AN AVID SURFER FROM NORTHERN CAL. I'M WONDERING IF ANYONE HAS EXPERIENCE WITH SURFING WHILE WEARING A WETSUIT ...

Started a BLOG, it feels good to share

By RandyHenniger · New reply yesterday at 6:57 pm
Journal · 12 replies
If you are not journaling or blogging, I suggest you consider starting one. I find it really helps me focus and sharing with others makes me feel better. http://activeostomates.wordpress.com/ Be WELL ...

Add your photo to the New York Times "life after cancer" photo journal

By RandyHenniger · New reply yesterday at 6:52 pm
Journal · 2 replies
http://www.nytimes.com/interactive/2010/ 04/08/health/cancer-survivor-photos.html ?ref=health#index ...

Am I really ready to go home?

By LuckyHubby · New reply yesterday at 1:59 pm
Journal · 2 replies
Well, its been a few days since we last spoke. It is now May 20, 2012 and I think Ive been in the hospital for 6 days trying to fight back after massive dehydration. Since we last spoke things began to ...

Well....Im back in the hospital :(

By LuckyHubby · New reply yesterday at 11:57 am
Journal · 11 replies
HHhhhmmmmm lets see.... The last time we spoke was on Mothers Day, I do believe. Things got pretty rough the next day....I started off feeling not bad in the morning so I had 2 pieces of toast with smooth ...

Opalbentley

By Opalbentley · New reply yesterday at 11:11 am
Discussion in Coping after ostomy surgery · 12 replies
Went rafting the other day, it was awesome. I'm back to old self post IleostomyI of 4 months ...

A month since surgery

By hparis438 · New reply yesterday at 11:09 am
Journal · 2 replies
Well, it has been a month since my surgery on April 18, 2012. It was a long haul and the surgery was really tough on my body. I had so much swelling in my intestines that it produced a blockage. I was ...

pouch odod

By llamamama · New reply yesterday at 10:50 am
Discussion in Gas and odor management · 49 replies
I have had my colostomy after emergency surgery about 9 wks now. I have found the best help from the ostomy nurses at ConvaTec. My question, is it normal to have odor from you pouch? The nurse tells me ...

In honor of my father's 80th birthday!!

By Joannajoy · New reply May 19, 2012
Journal · 22 replies
Dear friends, Today is my father's 80th birthday. For those who know my story - you know what an impact he has had in my life. At the age of three, when I was diagnosed with bladder cancer, he became ...

Disposable poaching systems

By Stewby · New reply May 19, 2012
Discussion in Pouching options · 16 replies
I had my colostomy 7 weeks ago. After trying the drain able one piece systems (messy) I am now using the two piece disposable Hollister pouches. Has anyone had experience with them? Good or bad ...

I'm overwhelmed !!

By Jamesmemaw · New reply May 19, 2012
Journal · 7 replies
Before I was 58 I had only been in the hospitable 4 times. When my sons were born, I had a surgery when I was 24, and at about 40 I broke my leg in 3 places. And then i had a heart attack, and before ...

PHYSICAL PROBLEMS

By alan41241 · New reply May 18, 2012
Discussion in Coping after ostomy surgery · 2 replies
I have heard from a cousin of mine with a medical background that major surgery can cause or trigger other physical problems. Let me explain: My surgery was March 12, 2012. About three weeks ago I began ...

Itching under adhesive barrier

By richichka · New reply May 18, 2012
Discussion in Rashes and skin problems · 5 replies
I am bothered by itching under the adhesive barrier. It usually starts the day after I change the barrier and pouch, I make a change every 4 or 5 days. After I remove the old barrier, I shower and scrub ...

Just had a colostomy in December

By Melissaj72 · New reply May 18, 2012
Discussion in Taking medication · 15 replies
I my name is Melissa I am 39 yrs old and went thru a year of operations to repair a rectovaginal fistula, which ended with all surgeries failing I think a total of 7 surgeries. I had my colostomy surgery ...

You might be a cancer survivor if...HUMOR

By RandyHenniger · New reply May 18, 2012
Discussion in Feeling good about yourself · 4 replies
You might be a Cancer Survivor if: You commonly use the abbreviations – dx, hx, rx, sx, tx – and you have never been to medical school. You actually know the meaning of NED….not a guy from a movie You ...

Why, mommy?

By mariegirls · New reply May 18, 2012
Discussion in Dating, relationships and sexuality · 6 replies
Hi all, I have a toddler at home and though she's too young now, I know the time is coming when she'll ask questions about my colostomy. I'd love to hear from anyone with kids/grandkids about how you ...

It is a journey, but the destination is really good!

By RudyDuty · New reply May 17, 2012
Journal · 6 replies
I was diagnosed with rectal cancer with a tumor at the base of the rectum. Due to its placement, the rectum was removed after pre-surgery radiation and chemo. The first year was one learning after another ...

Irrigation

By Matthew72 · New reply May 17, 2012
Discussion in Irrigation · 23 replies
After thursday going to start irrigating got the go ahead from Dr and supplies from stoma nurse is there any advice you guys would give? Watched your short vid Randy thanks, will watch the long one when ...

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The Ostomy Support Group connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by Great Comebacks, an Inspire trusted partner.