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The Inspire Q&A: Inspire talks with Howard Luks, MD

John2
  • By John2 · New reply April 15, 2012
  • Journal · 59 replies
  • Dear Inspire Community Members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people we feel are making contributions to helping patients worldwide. We are posting ...

please help

twinmomplus3
  • By twinmomplus3 · Posted February 22, 2012
  • Discussion in Symptoms and treatment · 0 replies
  • what were your child's symptoms that led to any diagnosis? My son is sick and has low muscle tone. Organic acids came back abnormal and so did bloodwork. What can we expect? I am going crazy for answers ...

The Inspire Q&A--Inspire talks with Susan Grant

John2
  • By John2 · New reply February 15, 2012
  • Journal · 31 replies
  • Dear readers, We at Inspire are pleased to bring you the latest in a series of interviews with people making contributions to helping patients and caregivers worldwide. We are posting these interviews ...

Inspire is hiring!

Walter
  • By Walter · New reply January 20, 2012
  • Journal · 15 replies
  • Inspire is hiring, and we're wondering if you know someone who would be the perfect addition to our team. Hello everyone, I'm Walter, one of Inspire's founders and the head of our technical team. I'm ...

The Inspire Q&A--Inspire talks with Michele Baldwin

John2
  • By John2 · Posted January 3, 2012
  • Journal · 0 replies
  • Dear readers, We at Inspire are pleased to bring you the latest in a series of interviews with people making contributions to patients and caregivers worldwide. We are posting these interviews in a Q&A ...

Following: A new Inspire feature

Walter
  • By Walter · New reply December 5, 2011
  • Journal · 111 replies
  • Hello everyone, I'm writing to let you know about a new Inspire feature that we launched last night, designed to help you keep track of conversations you're interested in. We call it "following" and here's ...

Patient-driven research

Brian
  • By Brian · Posted October 13, 2011
  • Journal · 0 replies
  • I'd like to share with you a new Inspire report, The SCAD Ladies Stand Up: Stories of Patient Empowerment, which chronicles patient-initiated research in our community. This amazing patient-driven effort ...

Malonic Aciduria (MA)

kaseleigh
  • By kaseleigh · Posted September 26, 2011
  • Journal · 0 replies
  • I am wondering if there are any other patients out there with this diagnosis? My daughter was recently diagnosed after she was picked up on the newborn screening. She is only 1 month old at this point ...

The Inspire Q&A: Inspire talks with Mithra Behnam Mojtahedi

John2
  • By John2 · New reply July 30, 2011
  • Journal · 15 replies
  • Dear readers, We at Inspire are pleased to bring you the latest in a series of interviews with people we feel are making contributions to helping patients worldwide. We are posting these interviews in ...

The Inspire Q&A: Inspire talks with “e-Patient Dave” deBronkart

John2
  • By John2 · New reply July 26, 2011
  • Journal · 35 replies
  • Dear Inspire Community Members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people we feel are making contributions to helping patients worldwide. We are posting ...

The Inspire Q&A: Inspire talks with Kevin Pho, MD

John2
  • By John2 · New reply July 19, 2011
  • Journal · 58 replies
  • Dear Inspire Community Members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people we feel are making contributions to helping patients worldwide. We are posting ...

New feature -- Browse posts you've recommended

Walter
  • By Walter · New reply June 26, 2011
  • Journal · 38 replies
  • Hello everyone, We added a new feature today that we hope you find helpful. You can now browse the complete list of posts that you have recommended, here: Browse posts you've recommended What's a recommendation ...

Any one out there???? PLEASE HELP

johnsmom2004
  • By johnsmom2004 · New reply May 28, 2011
  • Discussion in Raising a child with an organic acid disorder · 1 reply
  • is there not anyone out there who knows a child or an adult with Beta Ketothiolase Deficiency(also known as KUD) the only people on the internet i can find have not posted in the last 2-3 years and i ...

The Inspire Q&A: Inspire talks with Bonnie Diraimondo

John2
  • By John2 · New reply May 25, 2011
  • Journal · 16 replies
  • Dear Inspire Community Members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people we feel are making contributions to helping patients worldwide. We are posting ...

The Inspire Q&A: Inspire talks with “RA Warrior” Kelly Young

John2
  • By John2 · New reply May 10, 2011
  • Journal · 7 replies
  • Dear Inspire Community Members, We at Inspire are pleased to bring you the second in a series of Q&A interviews with people who are making contributions to help patients worldwide. We are posting these ...

different symptoms and struggles

johnsmom2004
  • By johnsmom2004 · New reply May 7, 2011
  • Discussion in Raising a child with an organic acid disorder · 1 reply
  • i am curious about the chronic recurring leg pain my son has. he just turned 7 and has been battling a branch chain amino acid disorder for several years. he is very skinny for his age his bmi is just ...

New feature - Change the background color

Walter
  • By Walter · New reply March 24, 2011
  • Journal · 36 replies
  • Hello everyone, Hope this finds you well. I'm writing to let you know about a new feature in Inspire -- an option to change the background color of our pages from white to another color of your choosing ...

can apple cider vinegar be taken by a kid below 5 years

booboobond
  • By booboobond · New reply March 24, 2011
  • Discussion in Help desk · 2 replies
  • can apple cider vinegar be taken by a kid below 5 years ...

HOW TO REQUEST "FREE" IN-HOME SERVICES IN CALIFORNIA

SusanCriddlePrice
  • By SusanCriddlePrice · New reply March 16, 2011
  • Journal · 44 replies
  • Updated post by Susan Criddle Price RN IP/independent in-home nurse provider speaking out in regards to the unknown free federal government homecare services offered to infants, children and adults with ...

New feature - Preference for reply sorting

Walter
  • By Walter · New reply March 13, 2011
  • Journal · 82 replies
  • Hello everyone, We heard from a number of you that you like to read replies to discussions and journal entries from newest to oldest, rather than oldest to newest, which is currently the default. Those ...

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About this community

The Organic Acidemia Association Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Organic Acidemia Association, an Inspire trusted partner.