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When to discontinue TPN?

Alittleredhen
  • By Alittleredhen · New reply 6:17 am
  • Discussion in Home IV feeding (HPN, parenteral nutrition) · 4 replies
  • I had abdominal lymphoma 17 years ago when I was 32. They treated it with chemo and radiation. My intestines shut down 2 years ago and I was unable to control the diarrhea with anything. They diagnosed ...

Just getting started

Cindylouwhoo
  • By Cindylouwhoo · New reply yesterday at 4:53 pm
  • Journal · 14 replies
  • Hope to "meet" people on a similar journey. I first started on gtube feeding about 8 yrs ago, then 6yrs ago went to jtube feeding. Jtube feeds have made me nutritionally much better! I still have times ...

You now have a gj tube so-have a good life

Csmissingtexas
  • By Csmissingtexas · New reply yesterday at 3:22 pm
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 5 replies
  • Why am I being rushed out the door? I don't know a thing about this, I am in pain, I don't know what to look for (as for problems),and I am traveling for two week in the morning-HELP!!!!!! I am so scared ...

Stupid insurance company!!

Cindylouwhoo
  • By Cindylouwhoo · New reply yesterday at 2:59 pm
  • Journal · 1 reply
  • I am still waiting on my IV steroids, which both my rheumatologist and internal med doc think I need. I have been on steroids for so long, I am dependent on them and don't make my own stress hormones ...

mental or physical

matt_chrs
  • By matt_chrs · New reply yesterday at 10:25 am
  • Journal · 10 replies
  • Which is more important the physical body or the mental wellbeing and sanity of a patient? Ideally both would be healed but what if they were mutually exclusive? So I am in hospital for another week according ...

Mini Rythmic PN+

IgorSLO

Doctors can be so annoying.

geckogirl
  • By geckogirl · New reply yesterday at 4:17 am
  • Journal · 12 replies
  • I saw my PCP yesterday and he said he isn't comfortable prescribing phenergan IM without me talking to my GI doctor. I know my GI doctor won't do it. That's just how he is. I have been so tired since ...

suction machine advice??

Murel_Monster_Slayer
  • By Murel_Monster_Slayer · New reply yesterday at 12:39 am
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 5 replies
  • I got a portable suction machine to use in my home and when I am out. I don't have a trach but do choke on my saliva because of my paralyzed vocal cord. I never get a protectected airway and the vocal ...

Some Blending issues

rjc60
  • By rjc60 · New reply May 19, 2012
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 2 replies
  • I'm supplementing my formula with blending. I do have a delicate digestive system and issues with GERD so I'm finding that not everything works for me. Fruits, nuts, wey protean, shredded wheat, pancakes ...

Tummy juices around tube site

matt_chrs
  • By matt_chrs · New reply May 19, 2012
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 7 replies
  • Ok guys and gals Two questions for you while I am working on me today. First, ever since getting my gtube I have had some yellowish bile leakage around the outside of the tube. This was the case for both ...

Post Antibiotic Diarrhea

Alan_Robinson
  • By Alan_Robinson · New reply May 18, 2012
  • Journal · 12 replies
  • Those who have been following my travails with a tooth extraction know that I was prescribed Cipro and Augmentum following an infection that I got in the hospital. Since then (April 1) I have had loose ...

moments of freedom

matt_chrs
  • By matt_chrs · New reply May 18, 2012
  • Journal · 14 replies
  • As children we instinctively know how to loose ourselves in moments of play. We made forts, pretended we were policemen or pilots. Hardly a day went by where our imaginations didn't transport us to some ...

hospital frustrations

matt_chrs
  • By matt_chrs · New reply May 18, 2012
  • Journal · 13 replies
  • I have already told multiple nurses that my tract has formed for my gtube and hence can guarantee that it's in my stomach. Hence if they try and shoot air into me I will, make a formal complaint to the ...

One off Request

qpr
  • By qpr · Posted May 18, 2012
  • Journal · 0 replies
  • To mark World IBD Day an Crohn's and Colitis month we have established a facebook group called Bowel Disease One Global Family. The idea is to unite any one connected to bowel disease be it through Crohn's ...

Got My Baxa Syringes

alovelyfall
  • By alovelyfall · Posted May 18, 2012
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 0 replies
  • I ordered a box of 50 20cc Baxa ExactaMed oral syringes (oral tip can go in med port of MIC-Key button extensions) since I was frustrated with the BD syringes my HHC sends. The difference is amazing ...

Bloating!

Ilovemydog
  • By Ilovemydog · Posted May 17, 2012
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 0 replies
  • I'm in the midst of a really bad small bowel bacteria overgrowth infection. The antibiotics - flagyl & levoquin -- helped with the pain. But now I'm bloating terribly -- worse than I've ever done in the ...

trying to find a MIC-KEY button for emergencies

prettykitty
  • By prettykitty · New reply May 17, 2012
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 7 replies
  • My GI doctor recently told me that I should keep 1 or 2 MIC-KEY buttons on hand just in case my GJ tube fell out. This way, I can keep the hole open before I can get to the hospital. I can't find where ...

new nutrition drink

matt_chrs
  • By matt_chrs · New reply May 17, 2012
  • Discussion in Home tube feeding (HEN, enteral nutrition) · 17 replies
  • Hey everyone. I saw an add for ensure clear on tv today. Basically looks like coolaid but with lots more good for you nutrition. Anywyas what I want to know is, how thick is it? my hope is that I cqn ...

Feeding tubes for Brides weight loss

lilpeeps
  • By lilpeeps · New reply May 17, 2012
  • Discussion in Home IV feeding (HPN, parenteral nutrition) · 24 replies
  • I saw this on GMA this morning and was completely appalled that people are doing this to fit in a wedding dress. Do they not know that we use this just to SURVIVE! http://gma.yahoo.com/k-e-diet-brides-usi ...

TPN and life

Karalyn
  • By Karalyn · New reply May 17, 2012
  • Discussion in Home IV feeding (HPN, parenteral nutrition) · 9 replies
  • HI, My husband just received his first TPN last night and the pump broke. Waiting on a new one today. Was wondering about limitations with the port cath and TPN. He loves to ride his dirt bike and work ...

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The Oley Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Oley Foundation, an Inspire trusted partner.