Nephrotic Syndrome and FSGS Support Community

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Cold and relapses

By Etcho · New reply 3:18 am
Discussion in Adults with nephrotic syndrome · 2 replies
What are your experiences with cold and relapses? For me I seem to only relapse when I get a sore throat or a common cold. So far I'm trying my best to try and taper the pred without getting a cold. In ...

CBS news for kidney failure stem cell treatment

By freshair2000 · New reply 2:02 am
Discussion in Adults with FSGS · 21 replies
I have CKD, and very interested in stem cell treatment. I believe that it will from root to treat the issue I came across two websites for Kidney failure treatment. the CBS news: http://www.youtube.com/watch?v=Jqff99JQ8 ...

about numbers of spilling ...?

By SofiaMagdalena · New reply yesterday at 6:31 pm
Discussion in Children with nephrotic syndrome · 1 reply
Does anyone know the number (in mg/g) of albumin that is "ok" to spill in 24 hours? And how much is that compared with a albumin/creatinine index? And how much is trace, +1, +2, +3 on the stick compared ...

Rituxan/rituximab

By lriso · New reply yesterday at 11:20 am
Discussion in Adults with MCD · 9 replies
I have steroid dependend MCD and I recently responded nicely to four infusions of Rituxan. Over the last 5 months ago, I have had close to zero protein in the urine. My doc is now considering using Rituxan ...

Prograf and Prednisone taper

By ns_nov · New reply yesterday at 10:01 am
Discussion in Children with nephrotic syndrome · 5 replies
My son is given Prograf and doctor started Prednisone tapering right away. He is on 20mg prednisone and 2 mg prograf. Before starting prograf his uristix was 1+ and but it changed to 4+ now. He is steriod ...

Side effects of cyclosporine

By keecr · New reply yesterday at 2:01 am
Discussion in Adults with FSGS · 4 replies
Any decrease sensation to urinate or altered hot cold sensation in feet ...

how agressive is good ...?

By SofiaMagdalena · New reply May 19, 2012
Discussion in Children with nephrotic syndrome · 5 replies
we just came home from a drs appointment. I feel confused. Our son has has +1/+2 for several weeks now, I think it´s because ha has had a cold. Our dr wants to give him iv solumedrol even he´s on cyclo ...

Leg Cramps: What to do?

By johnh · New reply May 19, 2012
Discussion in Adults with MCD · 14 replies
I am not sleeping well because every time I stretch in bed my calves cramp. I am on my third week of prednisone and have a little ascites in my gut. I seem to remember that during NS we become deficient ...

Going on holiday while on steroids

By moucha · New reply May 19, 2012
Discussion in Children with nephrotic syndrome · 6 replies
When our son got diagnosed with nephrotic syndrome we stopped going abroad because he is on steroids and is not immune to chicken spot. We know that if he got chicken spot he could have a lots of complications ...

Nephrotic syndrome and sports Is it safe?

By natka58 · New reply May 19, 2012
Discussion in Children with nephrotic syndrome · 3 replies
My 5 year old with NS wants to play tennis and swim this summer. I'm worried that the physical stress will cause a relapse. She is already doing dance and gymnastics. But nothing too strenuous. Anyone ...

Living well with Prednisone

By johnh · New reply May 19, 2012
Journal · 8 replies
Up at 2:00 AM this morning. Wide awake, as if I had slept the whole night. Thunder rolling in the Vermont hills and light Spring rain. I know my pulse and bp are normal but it feels like the are elevated ...

Second Opinions

By batman7 · New reply May 18, 2012
Discussion in Children with MCD · 5 replies
My son has been on steroids for almost one year. To make a long story short, if that is possible....he has not been off them for one day during the past 11 1/2 months. He has MCD and early onset of FSGS ...

Here we go again!!

By bestisthebest24 · New reply May 17, 2012
Discussion in Adults with FSGS · 9 replies
Well, I was right. I am no longer holding remission after coming off the cyclosporine and prednison. I am now spilling 3 grams. I will find out wed if they will put me back on the meds again, I wonder ...

What causes elevated blood pressure during NS

By johnh · New reply May 17, 2012
Discussion in Adults with MCD · 7 replies
My BP was 164/120 last night! My normal is usually in the low-normal range, as I am a runner (110/70). My wife suggest high bp and I happen to have a cuff and stethoscope at home. Discovering this explains ...

Excercise

By Angie1202 · New reply May 17, 2012
Discussion in Adults with FSGS · 8 replies
Has anyone had success with weight loss..I have fluid buildup and I am not sure if I will get any results ..if u have had success please let me know your routine ..the doctor said low resistance exercise ...

Protein Levels

By harger921 · New reply May 17, 2012
Discussion in Adults with nephrotic syndrome · 8 replies
I was diagnosed with Membranous Nephropathy in March. I have been testing my protein levels in the morning as recommended with the protein levels being at 3+ daily. At the beginning of May, I went gluten ...

Cyclophosphamide - Partial Remission

By RY85 · New reply May 16, 2012
Journal · 5 replies
Ok. Just got back from my doctor appointment. My protein/creatinine ratio is 33. Last weekend it was 28.1. So not much of a change. Albumin is 41. For now it appears that cyclophosphamide has given a ...

Remission w Cyclosporine?

By SofiaMagdalena · New reply May 16, 2012
Discussion in Children with nephrotic syndrome · 19 replies
Hi ! My 2 yo son is on Cyclosporine since 5 months and he´s doing so much better but he´s still spilling some protein. Does anyone have experinence from this drug and how long time can it take to go to ...

Cyclosporine and the common cold

By Daveish · New reply May 16, 2012
Discussion in Adults with nephrotic syndrome · 6 replies
I am on 100mg of Cyclosporine and 20mg of pred alternate days for MCD and have just caught a cold. The last time I caught a cold just as it was going away I relapsed. Should I reduce the cyclosporine ...

Is there a comparison chart of all steroid-sparing drugs?

By logan5 · New reply May 16, 2012
Discussion in Children with nephrotic syndrome · 1 reply
Hi all, Is there a chart anywhere that shows all the drugs used, pros & cons etc ...

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