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my two years old daughter

k_momcp2
  • By k_momcp2 · New reply yesterday at 9:27 am
  • Discussion in Treatment and therapies · 1 reply
  • I am a first time mom , with little or no experience . my pregnancy was healthy and everything was ok untill birth OF MY CHILD. My daughter kk was born i thought this moment would have being the happiest ...

Stem cell therapy at Duke University

Karlenep
  • By Karlenep · New reply yesterday at 8:29 am
  • Discussion in Treatment and therapies · 3 replies
  • I have twin boys Ethan and Owen born June08. Ethan had a seisure on his second day of life but was fine until 10 months when he was diagnosed with mild CP due to stiffness on his right side. He has been ...

Is this really happening? My son was diagnosed with spastic diplegia...

jakersmom
  • By jakersmom · New reply February 7, 2010
  • Discussion in Getting started · 5 replies
  • Recently, my 2 year old son was diagnosed with spastic diplegia. My husband and I first started noticing that something wasn't right when Jacob was about 15 months old. You see, up until that point, Jacob ...

Anyone with Apraxia info...?

mommyofayden
  • By mommyofayden · New reply February 7, 2010
  • Discussion in Getting started · 3 replies
  • My son has been diagnosed with verbal apraxia? Anyone have any info on apraxia or treatment methods or perhaps know of any support groups? Also, after reading some of the posts on CP, how might I know ...

Anat Baniel Method

mom2roa
  • By mom2roa · New reply February 6, 2010
  • Discussion in Treatment and therapies · 3 replies
  • Hi there- I have just joined this site and was curious if anyone out there has had great sucess with the ABM method for your child with CP. Tell me about your story? Have you practiced the method yourself ...

New at this

Mother_of_four
  • By Mother_of_four · New reply February 5, 2010
  • Discussion in Help for you and your child's life · 7 replies
  • Just found out a few months ago that my daughter has CP. Went through a whole range of emotions. Have finally picked myself up and starting to get all the information that I can find. Have found my local ...

I'd like to share my blog about Kaitlyn

mom2kaitlyn
  • By mom2kaitlyn · New reply February 5, 2010
  • Discussion in Help for you and your child's life · 4 replies
  • Hi everyone - I'm new to this group, and wanted to share the link to my blog about Kaitlyn. Kaitlyn is 5 years old, and has spastic diplegia cerebral palsy. She's been through lots of treatmens (Botox ...

How do I e-mail Geri Jewell?

DrBob1
  • By DrBob1 · New reply February 5, 2010
  • Discussion in Building a support team · 18 replies
  • I would like to reach Geri Jewell to see if she can help me find a speaker's bureau. I would like to give speeches around the country to promote my book; "Against the Current: My Life with Cerebral Palsy ...

Anyone maintain a blog about children with disabilities?

UCPinfo
  • By UCPinfo · New reply February 5, 2010
  • Discussion in Getting started · 15 replies
  • Hello, I was wondering if anyone had started a personal blog about their loved one with a disability? If so I would love to add it to a blog list I am putting together ...

Met w/ the Orthopedic surgeon last week

maddiesmom02
  • By maddiesmom02 · New reply January 30, 2010
  • Journal · 5 replies
  • Well we met w/ the orthopedic surgeon last week. He said Madison does indeed have LLD (leg length discrepancy) as well as scoliosis. He recommended no treatment at this time but to watch her growth closely ...

Totally Exhausted

MelissaShuford
  • By MelissaShuford · New reply January 29, 2010
  • Journal · 12 replies
  • Its been a crazy week~for some reason I stayed sick with N/V x6days past my heart cath~my f/u appt was Friday with cardiology~my dx is mild pulmonary hypertension and my circumflex artery is not exactly ...

what do you when try to work the school

Terryw
  • By Terryw · New reply January 29, 2010
  • Discussion in Advocacy for your child · 5 replies
  • I advocacy for my grandson at the IEP meeting to get what he need in the school so been can be able work sameday doing what he like to do. But, I'm sooo frustrated with school now. We ask IEP team do ...

Let him reach for the star

Terryw
  • By Terryw · New reply January 29, 2010
  • Discussion in Getting started · 1 reply
  • Darien was diagnosis with PVL (Periventricular Leukomlacia) or Cerebral Palsy, as it is commonly known. He is a busy little fellow. He is on the go five days a week attending physical, occupational, speech ...

Car Seats

angelam
  • By angelam · New reply January 28, 2010
  • Discussion in Help for you and your child's life · 6 replies
  • I am having a hard time with finding the right car seat for my one year old. He has grown out of the baby car seat but is not comfortable in the toddler one. He isn't sitting on his own yet and tends ...

Pulmonary HTN

MelissaShuford
  • By MelissaShuford · New reply January 26, 2010
  • Journal · 14 replies
  • What determines mild from more severe PH is there certain measurements that are standard? How is excercise PH different and how do they rest and treat for that? Lots of new info and course I have lots ...

Emmy is sick.... AGAIN!!

MelissaShuford
  • By MelissaShuford · New reply January 25, 2010
  • Journal · 4 replies
  • We are getting ready to go to the Dr because Em has ran fever 100.0 to 103.0 all nite...probably strep....no protein for a while~ then just before getting sick starts to spill it again. Surely don't want ...

Step By Step: Greg Mozgala

high5techmom
  • By high5techmom · New reply January 24, 2010
  • Journal · 2 replies
  • After a recent post about actor/dancer Greg Mozgala, I searched the web to find his story to share with every member of inspire. This is the amazing story of a man living with Cerebral Palsy who dares ...

Today's the Day to Reveal plan A~ Cardiology

MelissaShuford
  • By MelissaShuford · New reply January 23, 2010
  • Journal · 5 replies
  • Guess the day has come to start putting the heart puzzle together~~~can't wait to hear it and begin recovery. Monday is plan B with Rheumatology~~~everything with me seems to be going hand in hand~~~then ...

how does a single mother live in californa

mathew-rudy-cdunn
  • By mathew-rudy-cdunn · New reply January 22, 2010
  • Journal · 4 replies
  • how do you survive with three children ? one boy 7 years old with cerebale palsy and klinfelter. anther boy five years with cerebl palsy . then there sister 3 years of age and doing ok so far. ( dr left ...

H1N1 vaccine

indydonnar
  • By indydonnar · Posted January 20, 2010
  • Journal · 0 replies
  • We have a client (12yo) who is experiencing loss of bowel/bladder control subsequent to receiving H1N1 vaccine. Has anyone else experienced adverse reactions? We're still not sure if there's a definite ...