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All new and active discussions & journals

Lies & Reconciliation

stage4survivor
  • By stage4survivor · New reply 3:36 pm
  • Discussion in Non-small cell lung cancer - General · 11 replies
  • To whom it may concern, I've thought much about recent events here on this board the past few days. Particularly in view of Giving Thanks and my Tenth Anniversary. I lied when I said my continued participation ...

pain medications and diet

granann
  • By granann · New reply 3:33 pm
  • Discussion in Treatment options · 4 replies
  • would like to know if not too personal what pain medications are used most and work best and information about diet and nutrition or clinical trials ...

ON OTHERS,TOPOTECAN,OR, HYCAMTIN FOR EXT STAGE SMALL CELL LUNG CANCER .

8wall
  • By 8wall · New reply 3:23 pm
  • Discussion in Small cell lung cancer · 5 replies
  • WELL IT HAS BEEN A YEAR AGO LAST OCT SINCE BEEING DIAGNOSED WITH EXTENSIVE STAGE SMALL CELL LUNG CANCER...I JUST FINISHED UNCESSFULLY THE DRUG "TEMODAR"THAT WAS A DAILY PILL.DIDN''T QUITE HAVE THE SUCCESS ...

Tarceva side effects.

gerrybry
  • By gerrybry · New reply 3:17 pm
  • Discussion in Non-small cell lung cancer - Stage IV · 1 reply
  • Was wondering if any one on 150mg of Tarceva has severe leg and foot cramps during the night. Also a warm prickly feeling that lasts about 2-3 minutes. This is a wierd think that feels like pin pricks ...

duffer18hcp

pattyp1
  • By pattyp1 · Posted 3:10 pm
  • Discussion in Small cell lung cancer · 0 replies
  • duffer18hcp has joined our warrior angels in heaven. please see his posting "Another Update" and offer some kind thoughts to his beloved wife. I valued his time here and will miss him. Pat ...

Do not be stupid like I was as I didn't even know who was my doctor. RUN

dianeS
  • By dianeS · New reply 3:06 pm
  • Journal · 11 replies
  • I was seeing this new Internist for the first time(I do not like that there just isn't a "Family" Doctor,we only have specialist to see sometimes just unbelievable thing, that cost 20%more). I to this ...

Another Update

duffer18hcp
  • By duffer18hcp · New reply 2:59 pm
  • Journal · 8 replies
  • Well, back to the oncologist three times trying to get chemo started again. Something else always going wrong. After they took me off the decodron my feet swelled up to unwalkable without pain killers ...

Opinions and Comments Needed

chrisc5602
  • By chrisc5602 · New reply 2:58 pm
  • Journal · 6 replies
  • My battle and short trip is listed in my journal postings and I have had several positive comments about the unspirational message and writing style which I greatly appreciate. When I went to college ...

LUCINEX AND STIMUVAX VACCINE

kitkat4ever

Fatigue - What Can You Do For It?

GitarGrl
  • By GitarGrl · New reply 2:47 pm
  • Journal · 3 replies
  • All Mom wants to do is sit in the dark and sleep. She wakes up for meals only because she's in the hospital and the nurses wake her. I have no idea what to do with her if/when she comes home. I suspect ...

nsclc with heart problems

silvergrand
  • By silvergrand · New reply 2:44 pm
  • Discussion in Non-small cell lung cancer - Stage III · 1 reply
  • HI Can anyone help me with this hubby was dianosed with stage 3b nsclc.HE has heart diease has had three heart attacks and a pacemaker.HOW WILL THIS EFFECT HIS CHEMO AND RADIATION TREATMENTS ...

MY MOM'S SCANS ARE CLEAN!!!!

GerrysGirl
  • By GerrysGirl · New reply 2:24 pm
  • Discussion in Good news · 11 replies
  • My mom had her doctor appointment today and her scans are CLEAN!!! She has only been on full dose Tarceva for about two months (she had to back off the full dose for a bit in the beginning because the ...

Other drug options - Sprycel, Zolinza, lucinex

Alissa613
  • By Alissa613 · Posted 1:57 pm
  • Discussion in Treatment options · 0 replies
  • Anyone had any experience with any of these? Sprycel (Dasatanib), Zolinza (Vorinostat), or lucinex (belagenpumatucel-L) Just trying to find any and all options. Happy thanksgiving ...

Holiday update

Granny888
  • By Granny888 · New reply 1:54 pm
  • Journal · 6 replies
  • Saw my radiation/neuro team at Johns Hopkins Wednesday. Boy, I thought I waited too long for Dr Ettinger the week before! We were there SEVERAL hours, with hours between doctors. We already knew they ...

H1N1 VACCINE

stage1

November 27th

wifeofhubby62
  • By wifeofhubby62 · New reply 1:34 pm
  • Journal · 7 replies
  • Rainy and windy today. Thanksgiving was good very tired for Levi. Ate little took 4 of us to get him next door to son's house. Not getting up today to tired going to rest. Hospice coming today ...

Rib pain

nheepdanes
  • By nheepdanes · New reply 1:20 pm
  • Discussion in Non-small cell lung cancer - Stage I · 25 replies
  • I am now 3 months post surgery and still have an unbelievable amount of rib pain where they moved them. I wish they had just broken then as they would be healed by now. Did anyone else experience this ...

chickenpox

Sandysiegel
  • By Sandysiegel · New reply 12:28 pm
  • Discussion in What, me worry? · 12 replies
  • Hi Everyone, I haven't been here for a while and first I want to wish everyone a Thanksgiving full of hope. We planned a big party at my house with around 25 people but had to cancel yesterday because ...

MY THANKSGIVING BLESSINGS

terryswifejaney
  • By terryswifejaney · New reply 12:26 pm
  • Journal · 6 replies
  • YES, I AM THANKFUL FOR MY HUSBAND WITH CANCER, THAT HE IS HERE, AS THEY GAVE US 2 MONTHS IN SEPT. THEN THEY SAID HE WAS BETTER AND NOW ON MONDAY THEY SAID HE WAS WORSE AGAIN, WILL BEGAN RADIATION ON TUESDAY ...

Not good news today

nheepdanes
  • By nheepdanes · New reply 12:26 pm
  • Discussion in Non-small cell lung cancer - Stage I · 9 replies
  • I went to my oncologist who said that he would wait 2 months and get another PET to see if this thing grows. He said there may be a slight chance it is just artifact and not cancer and why go through ...

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About this group

The Lung Cancer Alliance Survivors Support Community connects patients, families, friends and caregivers for support and inspiration. The Lung Cancer Alliance Survivors Support Community is sponsored by Lung Cancer Alliance in partnership with Inspire.