The Lung Cancer Alliance Survivors Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

All new and active discussions & journals

TumorX Enzymes, does it work on internal cancer? (Bloodroot info too)

Lusi
  • By Lusi · New reply 5:44 am
  • Discussion in Treatment options · 20 replies
  • Hi, I joined this forum to answer someone while I was searching for things to help my father. Since it's not an active thread, I started my own. ***(Background info on patient)**** My father has stage ...

My PET Scan Results

TheHmip
  • By TheHmip · New reply 3:36 am
  • Discussion in Non-small cell lung cancer - Stage III · 6 replies
  • Had my 6th round of Chemo 2 1/2 weeks ago. Had a CT Scan, PET Scan and MRI of my brain this past week. No more tumors in my brain. My larger tumors in my lung and lymph nodes have shrunk. The smaller ...

Miracles Do Happen!

justinsfightclubwife
  • By justinsfightclubwife · New reply 12:32 am
  • Discussion in Survivor stories · 6 replies
  • I just wanted to share a beautiful survivor story of my husband. He was dx Sept 5, 2008 w/ Stage IV (large cell) non small cell lung cancer. My husband, Justin Andrews was diagnosed with Stage IV non-small ...

HELP!!!! BREAKING OUT IN RASH ON ARMS AND NECK

Mikestratton2009
  • By Mikestratton2009 · New reply yesterday at 11:50 pm
  • Discussion in Non-small cell lung cancer - Stage IV · 4 replies
  • Hi my husband has NSCLC stage 4 ..taking Taxotere IV for a hour and Carboplatin for 30 mins and has to take Vandetanib 100mg every day(this is his study meds) He was supposed to have his last treatment ...

Gamma Knife

CancerKiller
  • By CancerKiller · New reply yesterday at 10:49 pm
  • Discussion in Treatment options · 10 replies
  • After getting a second opinion for removing tumors in my father brain, we were told to stop the radiation (a week into a 3 week procedure) because the MD deemed it "unnecessary" comparing it to killing ...

Bronchial Fistula

Jan811
  • By Jan811 · New reply yesterday at 10:21 pm
  • Journal · 7 replies
  • Has anyone had a problem with a fistula in the bronchial "stump" after having the lung surgically removed (pneumonectomy)? I will be having another major surgery soon to try and repair the leak for the ...

Exposure to whooping cough?

easterbaby
  • By easterbaby · New reply yesterday at 10:14 pm
  • Discussion in Non-small cell lung cancer - Stage IV · 5 replies
  • Hi, I know there are some nurses here on the message board so i wanted to get your thoughts. My sis was dx stg iv nslc dec 23 08. She finished her chemo and is now halfway thru her radiation. The tumor ...

Scans clear! :)

liligoldman
  • By liligoldman · New reply yesterday at 9:56 pm
  • Discussion in Good news · 26 replies
  • Hi All, Just wanted to let you know that my scans are TOTALLY clear! I had a 4.0x4.5 cm typical carcinoid removed via open surgery on February 12th. At the time I was staged at IIB. Now they say I have ...

Father passed away

fearful
  • By fearful · New reply yesterday at 9:55 pm
  • Discussion in Family members and caregivers · 6 replies
  • I am a new member and just wanted to let anyone know if you need to talk I am here. I feel I have been led by God to join this site. My father passed away not to long ago from lung cancer (he was a long ...

Going to San Antonio for research trial

byHISgrace
  • By byHISgrace · New reply yesterday at 9:49 pm
  • Journal · 1 reply
  • No research trials available here at Mary Crowley Dallas, so we will be going to Cancer Therapy Research Center in San Antonio next week. We have to be there next Tuesday for all the eligibility testing ...

Drug & Herbal Interactions

drawing3d
  • By drawing3d · New reply yesterday at 9:19 pm
  • Discussion in Treatment options · 2 replies
  • I stumbled on this list of common prescription drugs with an associated list of common herbal interactions/cautions: ------------ Major Interaction Do not take this combination * Amphetamines interacts ...

Almita/Carboplatin side effects

DadsHurting
  • By DadsHurting · New reply yesterday at 9:15 pm
  • Discussion in Non-small cell lung cancer - Stage IV · 1 reply
  • Has anyone had their shoulder or neck hurting after chemo with almita/carboplatin? My dad had his first chemo on Monday and on Wed and Thurs his neck and shoulders were hurting very bad ...

Anyone heard of Formula CX, Tumorx or BioAnue Products

tomo
  • By tomo · New reply yesterday at 9:04 pm
  • Discussion in Treatment options · 14 replies
  • My dad has seen this site on the internet - www.vmhe.com offering Formula CX tablets to assist to beat cancer. Has anyone tried these tablets or is this something to stay away from? Thanks Julie ...

Discussions about WBR has me really worried

canbeatthis
  • By canbeatthis · New reply yesterday at 8:46 pm
  • Discussion in Treatment options · 11 replies
  • Today will be my husbands 6 WBR treatment. So far he has not had any side effects except fatigue which he had before after 1st treatments of Chemo and Radiation to the Lung, Chest area. His MRI last week ...

HAS ANYONE TRIED ALIMTA

JenniJ
  • By JenniJ · New reply yesterday at 8:31 pm
  • Discussion in Non-small cell lung cancer - Stage IV · 7 replies
  • Today I was told by my Ocologist that Tarceva is not working (I had been taking it for 2 months) as the Scan showed my Adrenal Gland met.had grown from 2m on 1 April to 9 cm on 1 July - scary. He suggests ...

Please Don't call me now Lord

mitziger
  • By mitziger · New reply yesterday at 7:34 pm
  • Journal · 10 replies
  • A poem in our local World news written by Mary Culberson Please don't call me now Lord While south winds whisper spring Let me wait a wee bit longer For the songs the robins sing. Please don't call me ...

Back home and feeling lonely

rebaj
  • By rebaj · New reply yesterday at 7:29 pm
  • Journal · 1 reply
  • Thanks to all who posted on my Mom's passing. Your words were salve for the brokenness. I am trying to pick up the pieces after my 2 week stay in Iowa and the loss of my Mom. I know Mom is here with me ...

Guilt

byHISgrace
  • By byHISgrace · New reply yesterday at 7:17 pm
  • Discussion in Non-small cell lung cancer - Stage IV · 7 replies
  • It's been 3 months now with having had no chemo, and we are out of options at this point. John's breathing is becoming worse, and he is now using an oxygen machine at night. His tumors are still growing ...

Happy 4th of July

jstuc
  • By jstuc · New reply yesterday at 7:13 pm
  • Journal · 2 replies
  • I have been reading all the posts for several months now and it has been very good for me. Thanks to all of you. This is my first time writing, mostly because things have happened so fast , I haven't ...

Sutent

bigloy
  • By bigloy · New reply yesterday at 7:03 pm
  • Discussion in Treatment options · 5 replies
  • Hello everyone: I have a question. Has anyone had any experience with the Pfizer drug called Sutent. It has been used mainly for kidney and stomach cancer. I have nsclc and they have decided to let me ...

Sign in to see more

Don't have an Inspire account? Join now!
Forgot password?
Keep me signed in on this computer until I sign out

Inspire others

Discussion topics

Help from Lung Cancer Alliance

Fundraising and awareness

Upcoming events
Visit Lung Cancer Alliance to learn about upcoming fundraising and awareness events.

Need financial help?

Cancer Care Co-Pay Assist Program
Medication co-pay assistance for both small cell and non-small cell lung cancer.

HealthWell Foundation
Medication co-pay assistance for non-small cell lung cancer.

Patient Access Network Foundation
Medication co-pay assistance for non-small cell lung cancer.

Partnership for Prescription Assistance
Prescription drug assistance programs for uninsured/underinsured.

Patient Advocate Foundation
State-by-state information on various assistance, including transportation, utilities, and other products and services.

National Association for the Terminally Ill
Financial assistance for people with life expectancy of 6 months or less. Includes utilities, rent/mortgage, and more.

Need legal / insurance help?

The Cancer Legal Resource Center
Assistance with employment issues, medical leave, insurance, estate planning, advanced directives, patients' rights, and other legal issues.

Patient Advocate Foundation
Assistance with insurance and employment related issues.

Need emotional support?

Lung Cancer Alliance
Find a support group or learn how to get connected with a Phone Buddy here!

Want to find clinical trials?

Lung Cancer Alliance Clinical Trials Matching Service
Search for trials and talk to a specialist who can help you find appropriate trials for you.

You

About this group

The Lung Cancer Alliance Survivors Support Community connects patients, families, friends and caregivers for support and inspiration. The Lung Cancer Alliance Survivors Support Community is sponsored by Lung Cancer Alliance in partnership with Inspire.