Lombardi Children's Cancer Support Group

The Lombardi Children's Cancer Support Group connects patients, families, friends and caregivers for support and inspiration... More about this group

Join today

All new and active discussions & journals

A few more words about privacy

By Brian · New reply August 27, 2010
Journal · 76 replies
All of us at Inspire care a great deal about your privacy and work hard to ensure the information you trust us with is kept safe. We designed Inspire so that you have complete control over how your personal ...

Books you would recommend

By dleach · New reply August 16, 2010
Journal · 15 replies
This year my son's memorial fund at Children's National Medical Center is the recipient of the holiday gift book program for our local Barnes and Noble. I need your help- what books did your child like ...

"True friends walk in ....

By dleach · New reply August 13, 2010
Journal · 81 replies
when everyone else walks out. " I read that today and it hit home. After several days of challenges on many fronts, this really resonates. People love to complain, not create solutions. People love to ...

Childhood Brain Tumor Foundation Superheroes 5k Walk/Run/Kids' Run

By jaimoca911 · New reply August 2, 2010
Discussion in Events · 1 reply
Hi - As the mom of a teenage BT survivor, I'm helping to organize an event to benefit the Childhood Brain Tumor Foundation. It's called the CBTF Superheroes 5k Walk/Run/Kids' Run, and it will be held ...

My presentation to the new doctors

By dleach · New reply August 2, 2010
Journal · 2 replies
This is the text/ notes from the presentation I did yesterday for new residents. Mason Robert Leach 9/16/02-10/13/02 DX:Medulloblastoma 1. What was the hardest part about hearing the bad news about your ...

Hindsight

By JLH1 · New reply July 23, 2010
Journal · 2 replies
Hello everyone. I wrote the following "post" for my daughter's CarePage (www.carepages.com patient name AshleyHendrick). These words came out of my thankfulness for everything my family is now able to ...

Thoughts about being a father...

By JLH1 · New reply July 18, 2010
Journal · 2 replies
I wrote the following words for my daughter's CarePage (www.carepages.com) patient name AshleyHendrick. I thought I would share them on this site as well... Good morning friends. Today I am writing about ...

You Will Be In Our Heart And Mind Forever

By Cherime · New reply June 17, 2010
Journal · 10 replies
Hi! Everyone, my only son, Charles Gabriel, passed away Nov. 30, 1999, age 7 years old, a strong in faith, courage...I missed Him so much... the fun and happy days, those embracing moments that we had ...

11 month old's brain tumor caused bleed

By camsmommy · New reply May 23, 2010
Journal · 10 replies
my 11 month old was diagnosed with PNET in his chest and spine at 5 weeks old he has had 4 surgeries to remove the tumor which they did and 11 cycles of chemo to make sure it didn't come back he only ...

My Angel has gotten his wings

By camsmommy · New reply May 22, 2010
Journal · 12 replies
On Sunday we made the decision to discontinue life support. Our little angel left us peacefully to get his wings. Thank you for all of your support and prayers through this time. Rest in Peace my little ...

Another child

By JLH1 · New reply May 17, 2010
Journal · 2 replies
Hi friends, I recetnly posted the following words on my daughter's CarePage website (www.carepages.com key name AshleyHendrick). These words serve as a reminder of the wonderful, as well as the tragic ...

A great resource for those looking at complementary/alternative therapies

By dleach · New reply May 10, 2010
Journal · 23 replies
The National Cancer Institute has an Office of Complementary and Alternative Medicine that provides great resources and information for patients. http://www.cancer.gov/cam/health_patient s.html Everyone ...

This article made me laugh this morning

By dleach · New reply April 19, 2010
Journal · 49 replies
http://www.seattleweekly.com/2010-04-14/ arts/how-not-to-cheer-up-a-cancer-patien t It was sent to me by my friend who has had cancer twice now. I am sure you all can appreciate this article in some way ...

World Rare Disease Day

By Brian · New reply April 14, 2010
Journal · 27 replies
In recognition of Rare Disease Day 2010, Inspire and the National Organization for Rare Disorders conducted a survey of Inspire members with rare disorders. The results are enlightening, and I encourage ...

The Parents Cry Alone

By JLH1 · New reply April 9, 2010
Journal · 5 replies
There is a family we met through CarePages around the same time my daughter Ashley's illness was first diagnosed. This family includes a teenage girl who like Ashley, was also diagnosed with osteo sarcoma ...

A wonderful idea from the mind of a little girl

By dleach · New reply April 1, 2010
Journal · 7 replies
Watch this story about an amazing little girl who let the world know how she felt about them. http://abcnews.go.com/Health/CancerPreve ntionAndTreatment/child-brain-tumor-leav es-notes-family-death/story?id=8998612 ...

Health communities described in the New York Times

By Brian · New reply March 29, 2010
Journal · 21 replies
There is a good article, and mention of Inspire, in the New York Times. We spoke with the Pew Internet and American Life Project about this research, and support the work they're doing to understand the ...

A project I am thinking about

By dleach · New reply March 28, 2010
Journal · 8 replies
I am thinking of collecting photos and stories of people who have died from all different types of illnesses. We have an event every year in Mason's memory and it could be an exhibit at the event. It ...

A good article- "With cancer, let's face it: words are inadequate"

By dleach · New reply March 25, 2010
Journal · 44 replies
This was a good article-make me think a bit about what is said to patients and families every day. http://well.blogs.nytimes.com/2010/03/15 /with-cancer-lets-face-it-words-are-inad equate/ I'd be interested ...

A good quote I read today

By dleach · New reply March 22, 2010
Journal · 10 replies
The world breaks everyone, and afterward, some are strong at the broken places. Ernest Hemingway- Farewell to Arms ...

Sign in to see more

Inspire others

Together we're better - Lombardi Children's Cancer Support Group

Support your group with badges for your e-mail, website, blog, and more ...

Helpful resources from Lombardi

The Stupid Cancer Show
The Stupid Cancer Show is the voice of young adults affected by cancer.

Special Love
Special Love gives children and young adults with cancer and their families a chance to enjoy normal childhood activities that healthy kids often take for granted.

First Descents
First Descents provides whitewater kayaking and other outdoor adventure experiences to promote emotional, psychological and physical healing for young adults with cancer.

SuperSibs
SuperSibs is a national organization that supports, honors and recognizes brothers and sisters of cancer patients who are ages 4-18. Ongoing programs are available and several of Special Love's BRASS campers participate!

Cancer Care
Cancer Care is dedicated to providing emotional support, information, and practical help to people with cancer and their loved ones.

The Starlight Starbright Foundation
The Starlight Starbright Children's Foundation's focus is to lift the spirits of seriously ill kids and their families at times of great stress and hardship.

2bMe
A helpful site for teens with cancer.

Teens Living with Cancer
A site dedicated to the approximately 15,000 teens undergoing treatment in the United States for cancer each year.

Camp Mak-A-Dream
Camp Mak-A-Dream has cost-free programs designed for children, teens and young adults affected by cancer.

Group leaders

Discussion topics

You

About this group

The Lombardi Children's Cancer Support Group connects patients, families, friends and caregivers for support and inspiration. The Lombardi Children's Cancer Support Group is sponsored by the Lombardi Comprehensive Cancer Center in partnership with Inspire.