Kidney & Urology Foundation of America Support Community

Welcome to the Kidney & Urology Foundation of America Support Community. Helping the kidney, urology and transplant communities -- one individual at a time. More about this group

Join today

My mothers day

By sherryberrys · New reply yesterday at 1:38 pm
Journal · 6 replies
I had decided I wasnt celebrating Mothers Day. Justin was gone and I lost my mom Sept. But I woke up today and realized I still had to fufill one last wish for my son and that was to spread his ashes ...

Treatment for PKD in China

By deborahatx · New reply yesterday at 7:36 am
Discussion in Kidney diseases · 1 reply
http://www.kidneycn.com/ this is amazing!! I don't know if I will ever be able to afford to go to China for treatment but it's a hopeful option that doesn't exist here!!! woohoo ...

Worried it might be PKD!

By Godspeed29 · New reply yesterday at 1:55 am
Discussion in Kidney diseases · 6 replies
The result of my latest ultrasound this week is not good,because they found another cyst in my lower Pole Right kidney.. I have 3 cyst now 2 in RK and 1 in LK The biggest size is 1.8cm..I'm really worried ...

Justin passed

By sherryberrys · New reply May 19, 2012
Journal · 34 replies
I lost justin april 26th. I went to wake him up for dialysis to find him dead. Take care everyone. Much love. Sherry ...

complex kidney cyst

By Godspeed29 · New reply May 18, 2012
Discussion in Kidney diseases · 6 replies
Hi! I have a complex kidney cyst on my LK 2cm and 2.5 on RK,my urology advice me its Bosniak 2F, I'm worried because Bosniak 2F have a 5% chance to be cancerous.. And my urology told me that we just monitor ...

First day back to work

By Garebo · New reply May 18, 2012
Journal · 3 replies
May 14, 2012 First day back to work went as expected, got tired after 6 hours, luckily I have help for as long as I need. All in all I felt good at the end of the day...10 hours under my belt. 2 nd day ...

1 year scans today [holding our breath]

By RysMomKB · Posted May 17, 2012
Journal · 0 replies
Today, Ryan has his labs and ct's for his 1 year post-RC check up. He won't have any results today of course, so the month of waiting till his appointment is going to be pins and needles. He keeps having ...

Could it be the alternative therapy was successful?

By julieshrive · Posted May 17, 2012
Discussion in Kidney stones · 0 replies
I have had acute pain & paralysis [ 5x] resolving in hrs when up pain killers & uti medication . Recently it was found on ultrasound a cyst & stone. Then had a CAT scan for the Consultant / Surgeon? to ...

What next re: acute pain & paralysis?

By julieshrive · Posted May 17, 2012
Discussion in Urinary tract infections (UTIs) · 0 replies
I have had utis continuously since my 20's when spina bifida occulta . This was as a direct result of requestied research when Profs Moorhead [ kidneys] & Brumfitt [ urology] Royal Free found it . Had ...

is there anything nature can shrink my renal cyst as large as 12cm?

By WinnieWu · New reply May 16, 2012
Discussion in Kidney diseases · 7 replies
I was diagnosed with PKD five years ago and now the large cyst is as large as 12cm. I have done surgeries for twice, but renal cysts enlarge again. Is there anything nature can shrink my renal cysts and ...

Cyclophosphamide - Partial Remission

By RY85 · New reply May 16, 2012
Journal · 5 replies
Ok. Just got back from my doctor appointment. My protein/creatinine ratio is 33. Last weekend it was 28.1. So not much of a change. Albumin is 41. For now it appears that cyclophosphamide has given a ...

Thanks to all

By sherryberrys · New reply May 16, 2012
Journal · 2 replies
Thank you to all of you who read and posted to my post. I appreciate you all. I am here if you ever need a friend ...

Inoperable Renal Artery Stenosis - 7mth old son

By foralliesmith · New reply May 16, 2012
Discussion in Pediatric kidney diseases · 1 reply
My 7mth old baby son has an inoperable form of renal artery stenosis. Has anyone encountered this ...

Best environment/location for chronic kidney disease patients

By dmmiller17 · Posted May 15, 2012
Discussion in Kidney diseases · 0 replies
Hello, I've been looking around for places to move to and couldn't find much on good environments or locations to live in for people with chronic kidney diseases. I have FSGS and don't need dialysis so ...

KIDNEY PROBLEMS. NEED YOUR INPUT PLEASE

By brendank86 · New reply May 15, 2012
Discussion in Kidney diseases · 5 replies
OK so ill try and be as thorough as possible. my names Brendan and i'm 25 years old. about a month ago i started to notice some problems with my health. my eyes had slowly over the course of a week started ...

ONLY A BREATH AWAY....

By mybutterfly · New reply May 15, 2012
Journal · 8 replies
Jim (my dear hubby since 1975...how many years is that??) ....should be going home tomorrow!!! He's doing so very much better....sitting up....eating....even net surfing a bit :) I'm so very thankful ...

Protein in urine LOTS of PAIN I see a specialist 5/10

By msarmywife · New reply May 13, 2012
Journal · 7 replies
My dipsick has been 300+ the past 2 visits for protein and they don't know why and the 24 hr was a little over 600 . Does anyone know what to think about these numbers? My glucose level in my blood was ...

Recurrent Kidney stones in a young child

By Alivemum · Posted May 12, 2012
Discussion in Kidney stones · 0 replies
My daughter was diagnosed with kidney stones when she was 2. We were potty training her and saw the stones, they were analysed: calcium phosphate. She keeps forming them. So far, the only way I found ...

Is There Any Good Exercise for Thyroid Dysfunction and Kidney Disease

By secondary · New reply May 10, 2012
Discussion in Kidney diseases · 8 replies
i have thyroid dysfunction and kidney disease five mouth, i want to konw some exercise for me ...

High Blood Pressure 170 ,how can i do

By secondary · New reply May 8, 2012
Discussion in High blood pressure and kidney disease · 1 reply
I have high blood pressure for three years, and is now 175, I also have kidney disease, what should I do to lower my blood pressure, can I use herbs ...

Sign in to see more

Things you can do

Support KUFA

Discussion topics

Group leaders

Inspire others

Together we're better - Kidney & Urology Foundation of America Support Community

Support your group with badges for your e-mail, website, blog, and more ...

About this community

The Kidney & Urology Foundation of America Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Kidney & Urology Foundation of America, an Inspire trusted partner.