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Questionnaire to help my Doctor gain knowledge about FMD!
- By JChristina · New reply yesterday at 5:36 pm
- Discussion in Living with fibromuscular dysplasia · 20 replies
- After visiting my doctor today she asked if I could meet with her again after speaking with other people who have been diagnosed with FMD. She is unaware of this disease and wants to gain knowledge on ...
Writers with FMD
- By Gold76E · Posted yesterday at 1:00 pm
- Discussion in Living with fibromuscular dysplasia · 0 replies
- How many FMDers write? Fiction? Non-fiction? Poetry? Children's stories? Any ideas for what we could do to put together something [fun maybe] that would help FMD awareness and maybe benefit FMDSA.org ...
Renal denervation
- By FMDJADE · New reply May 19, 2012
- Discussion in FMD research · 9 replies
- My interventional radiologist told me this week that the medical community expects renal denervation to be available to FMD patients as well as others with hypertension which is resistant to BP medications ...
FMD on nbc40 (South Jersey)
- By CheriQT · New reply May 19, 2012
- Journal · 10 replies
- Just wanted to let you know that my segment on FMD will be running on Health Update next week, 4/23. The segment will begin on Monday and run until Wednesday. You will also be able to view it online ...
Transportation Option Airport Cleveland
- By onekidneygalinnorcal · New reply May 18, 2012
- Discussion in News and events · 5 replies
- Here is a link to the train that can be taken from the airport to the hotel. Also please be aware that it is a very busy week in Cleveland, there is a marathon, Police Officers Memorial and a new Casino ...
Severe vertigo and headache
- By Miggi · New reply May 14, 2012
- Discussion in Carotid fibromuscular dysplasia · 8 replies
- Since yesterday morning my son has had severe vertigo and a mild to moderate headache in left side forehead. He was unable to stand yesterday, today he can get around if he hold onto furniture and walls ...
Lipitor and FMD?
- By Davidnsf · New reply May 13, 2012
- Discussion in Newly diagnosed · 13 replies
- My generalist doc prescribed Lipitor - I had elevated Cholesterol - but no longer. I didn't start taking it. But did change up my diet. He said statins could help FMD? I can't find anything online stating ...
Anyone Else Have Non-pouching Beginning of Aneurysm?
- By CarotidFMD · New reply May 9, 2012
- Discussion in Aneurysms · 1 reply
- Has anyone been told they have only the stalk portion of an aneurysm, minus the balloon looking part? I have NEVER found anyone else who has anything that looks like mine, and that is what mine looks ...
Dr. Heather Gornik
- By onekidneygalinnorcal · New reply May 8, 2012
- Discussion in News and events · 4 replies
- Congrats Dr. Gornik. THank you so much for what you have done and will do for those affected by FMD! And thank you to our Maureen Womack for nominating her. Maureen has been a volunteer for many years ...
Note the Authors
- By onekidneygalinnorcal · New reply May 8, 2012
- Discussion in News and events · 2 replies
- http://circ.ahajournals.org/content/125/ 18/e636.full.html?ijkey=oqBz3c3z1goKqHw& keytype=ref ...
FMDSA Spreading Awareness in London!
- By onekidneygalinnorcal · New reply May 8, 2012
- Discussion in Newly diagnosed · 11 replies
- FMDSA's Pam Mace spreading Global Awareness again ! In London this time! Her talk was very well received and the Doctors were very impressed with the progress of the FMDSA Registry, Clinics and Support ...
Medications-BENICAR
- By FMDJADE · New reply May 8, 2012
- Discussion in Living with fibromuscular dysplasia · 29 replies
- I recently started to take Benicar 20 MGM daily to control my BP spikes. Does anyone else take it and has it been effective? It inhibits the renin-angiotensin-aldasterone system which controls the blood ...
How many of you have aneurysms. Can you share your story or information.
- By Vanillatea · New reply May 7, 2012
- Discussion in Aneurysms · 40 replies
- Wondering if anyone is living with an aneurysm ...
Hematuria/blood in the urine
- By FMDJADE · New reply May 7, 2012
- Discussion in Living with fibromuscular dysplasia · 3 replies
- Another FMD Inspire member mentioned hematuria as a possible early symptom of renal FMD and since then I have heard from others that had this early in the disease process. Have others had this history ...
renal artery duplex ultra sound
- By Joan784 · New reply May 6, 2012
- Discussion in Living with fibromuscular dysplasia · 17 replies
- Hi, i was dx 10 years ago with Rt. renal FMD. After 3 angioplasty I have not had problems until 3 months ago when my Bp started rising again. It is all over the place. I had a duplex ultrasound and the ...
Exercise and FMD
- By onekidneygalinnorcal · New reply May 6, 2012
- Discussion in Living with fibromuscular dysplasia · 3 replies
- Below is a link to a web chat with Dr. Gornick. If you scroll down to the bottom of the web chat you will see a discussion of exercise (I was not the Mimi who asked question:). These web chats are quite ...
"Pulmonary Hypertension"
- By LindalouinPhilly · New reply May 6, 2012
- Discussion in Other arteries affected · 5 replies
- Has anyone been diagnosed with pulmonary hypertension, either related or unrelated to your FMD? I had an echocardiogram done last month to check on my bicuspid aortic value. Found "mild tricuspid regurgitation ...
FMD in Mainstream Health News
- By Amedeane · New reply May 5, 2012
- Discussion in Carotid fibromuscular dysplasia · 3 replies
- Interesting article in Everyday Health about stroke and neck manipulation which mentions FMD patients increased risk of stroke from these therapies. http://www.everydayhealth.com/stroke/050 2/can-cracking-your-neck-lead-to-stroke ...
Headaches
- By mkathy · New reply May 4, 2012
- Discussion in Living with fibromuscular dysplasia · 16 replies
- I am interested in hearing what other FMD'ers do for their headaches. I take a beta-blocker daily and magnesium . I also take Fiorcet (a prescription that contains caffeine, muscle relaxer and acetominophen ...
IVUS; Renal vein renin sampling
- By FMDJADE · New reply May 4, 2012
- Discussion in Renal fibromuscular dysplasia · 7 replies
- I recently have a renal angiogram, IVUS and renal vein renin sampling and am waiting for the results. It is supposed to assist the physician in ordering medications to control hypertension. Has anyone ...
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