Free special report: I'm Not the Me I Remember: Fighting Encephalitis

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Overwhelmed!

JackInTamarac
  • By JackInTamarac · New reply 1:23 am
  • Discussion in Children and encephalitis · 27 replies
  • I am sitting in Miami children's Hospital with my son. I am a basket case...not really knowing what to do or what to expect. My son was diagnosed with Limbic Encephalitis in February. We did really well ...

do people pat you?

titanium_tiger
  • By titanium_tiger · New reply 1:22 am
  • Discussion in Life after encephalitis · 1 reply
  • i don't know why, but people are constantly coming up to me and patting me the worse part about this is they often pat my subluxed shoulder which is VERY painful ...

Current health status and concerns

vivi45
  • By vivi45 · New reply yesterday at 10:58 pm
  • Journal · 5 replies
  • I'm posting my personal medical journal so that hopefully it can help someone here. This has been a really strange journey for me which began in August of 2011. I currently don't have a complete diagnosis ...

NMDA E - Day 71 - Rituximab 2nd Doze

AMM01
  • By AMM01 · New reply yesterday at 11:37 am
  • Journal · 2 replies
  • Hi all, it's day 71 and my wife who has been diagnosed with nmda encephalitis has received her 2nd doze of rituximab. Till now she has received ivig, methylprednisolone and plasma exchange. Nothing has ...

Welcome AMM01!

WendyStation
  • By WendyStation · New reply yesterday at 10:57 am
  • Discussion in Introduce yourself · 3 replies
  • Welcome to Encephalitis Global, AMM01. Will you please introduce yourself? How may we assist you here today ...

MEDIA: Anti-NMDA-receptor antibody detected in encephalitis

WendyStation
  • By WendyStation · New reply yesterday at 8:24 am
  • Discussion in Treatment and therapy · 1 reply
  • Anti-NMDA-receptor antibody detected in encephalitis... http://7thspace.com/headlines/411947/ant i_nmda_receptor_antibody_detected_in_enc ephalitis_schizophrenia_and_narcolepsy_w ith_psychotic_features.html ...

My story

Ingridrg
  • By Ingridrg · New reply May 19, 2012
  • Discussion in Life after encephalitis · 5 replies
  • Here's my story; why don't you write yours? http://www.1halloween.net/encephalitis/h tml/a_ingridny.html ...

anyone get Epilepsy after E?

brigitteweber67
  • By brigitteweber67 · New reply May 19, 2012
  • Discussion in Life after encephalitis · 23 replies
  • Hi Everyone! Thanks for all the great responses. Aside from that creepy Woody guy :o) I was wondering if anyone now has epilepsy? Or had epilepsy from E and it now has gone away ...

What would YOU like to discuss?

WendyStation
  • By WendyStation · New reply May 19, 2012
  • Discussion in Life after encephalitis · 13 replies
  • The planners of the 2012 FACES Encephalitis Conference wish to ask YOU what you would like to see / view / experience at this year's Conference. The Conference will be held November 16th through 18th ...

Do you have HE and H thyroiditis?

picklesm
  • By picklesm · New reply May 18, 2012
  • Discussion in Diagnosis of encephalitis · 23 replies
  • It looks like I have both and am wondering if that is happening to a lot of people. I think I had the HE for about a year and a half before the thyroiditis became apparent ...

NMDA- Agitation during recovery phase

Joeseph
  • By Joeseph · New reply May 18, 2012
  • Journal · 6 replies
  • My daughter is now in a rehab center learning to talk, walk, and do other things. Now that she is starting to "wake" up she is asking lotsa of questions like what happened? How come i cannot remember ...

Anyone ever have Neuros give up finding out what caused the E

brigitteweber67
  • By brigitteweber67 · New reply May 18, 2012
  • Discussion in Diagnosis of encephalitis · 14 replies
  • Hello everyone...First of all, thank you so much for your support. How many of you have never found out the kind of E. I had my bout with E last September. In the beginning the docs ran a multitude of ...

Headaches???14....Topamax???

smeraz43

Autoimmune Limbic Encephalitis-VGKC AB

Nishita
  • By Nishita · New reply May 18, 2012
  • Discussion in Life after encephalitis · 24 replies
  • My 61 year old father was a perfect healthy man till june 10th 2011, when he had his first symptom of LE.He felldown and unconcious for few sec later he was unable recollect what exactly happned to him.Later ...

Sense of Humor

HeatherMc6
  • By HeatherMc6 · New reply May 18, 2012
  • Journal · 5 replies
  • I know that laughter is the best medicine, but I am finding it hard to laugh at anything these past couple of days. Droped off low income housing applications yesterday and did not even bother to drop ...

Father in law developed Encephalitus Last week

Taffytate89
  • By Taffytate89 · New reply May 18, 2012
  • Discussion in Introduce yourself · 5 replies
  • Hi all, My father in law fell Ill last week with what we thought at first was some form of sickness bug. He had sickness and diarhera for 3 days and the started becoming slightly confused. We put it down ...

Could Parasites in the Brain Cause Encephalitis?

TigerWiger
  • By TigerWiger · New reply May 18, 2012
  • Discussion in Diagnosis of encephalitis · 3 replies
  • Invasion by both the pork tapeworm and blood fluke can cause neurological problems, like seizures, loss of sensation or motor control, cognitive difficulty and impaired speech. This can be due to either ...

Trying to process all that has changed

KD1916
  • By KD1916 · New reply May 17, 2012
  • Discussion in Introduce yourself · 4 replies
  • My mother age 70 was diagnosed with HSV-1 E on April 30th 2012. She was in the hospital for 11 days and has been at home with me for 5 days now. At the onset of E she never went into a coma or had a seizure ...

Long-term Valacyclovir Suppressive Treatment After Herpes Simplex Virus Typ

Karen313
  • By Karen313 · New reply May 17, 2012
  • Discussion in Treatment and therapy · 5 replies
  • Long-term Valacyclovir Suppressive Treatment After Herpes Simplex Virus Type 2 Meningitis: A Double-Blind, Randomized Controlled Trial E. Aurelius1, E. Franzen-Röhl1, M. Glimåker1, O. Akre1, L. Grillner2 ...

VGKC Limbic Encephalitis

guscam
  • By guscam · New reply May 16, 2012
  • Discussion in Treatment and therapy · 5 replies
  • First of all I'm sorry for my English. I'm Italian. My wife, four years ago, had non paraneoplastic limbic encephalitis caused by VGKC (voltage gated pothassium channeles) autoantibodies. Other ones had ...

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The Encephalitis Global Support Community connects survivors and caregivers to share information and support, raise awareness and alleviate unnecessary suffering. This community is sponsored by Encephalitis Global, an Inspire trusted partner.