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A message of hope!!!
- By elodge · New reply 9:52 am
- Discussion in Life after encephalitis · 19 replies
- It's been sometime since i posted here...not quite a year that i found myself in a hospital diagnosed with E...through the treatments...and the therapy...i was able to come home with my wife who was now ...
My Mom
- By Heather1541 · New reply 9:34 am
- Journal · 2 replies
- It all started 12/6/09 when my moms shingles virus traveled into her blood stream and infected her brain...Neuro ICU doctors couldnt believe it! She was in the hospital for 2 months and just today she ...
fearful...
- By russel · New reply yesterday at 1:32 pm
- Discussion in Children and encephalitis · 2 replies
- hi everyone when our daughter jamie had hse she was under medication for primary koch (she was two months into her medication when her hse attacked)... now our second daughter was diagnosed with primary ...
hi-haven't been on here for a while
- By tgrsmiley4 · New reply yesterday at 1:31 pm
- Discussion in Relationships · 5 replies
- I do not know if this falls under relationships or not but i have had a really bad week at school and would like some support but i will not be able to respond right away because i do not have reception ...
Welcome to all of our new members
- By IngridGuerci · Posted February 7, 2010
- Discussion in Life after encephalitis · 0 replies
- I hope you will each take a little time to write a note to the group and let us know why you've joined. We are all survivors and caregivers and we're here to help each other deal with the residuals and ...
NMDA recovery questions
- By DRL5 · New reply February 6, 2010
- Discussion in Life after encephalitis · 20 replies
- Is there anybody out there who is recovering from anti-NMDA antibody encephalitis that was in a coma for an extended period of time as the only way to control seizures and now left with spasticity and ...
Hi Tallguy!
- By IngridGuerci · Posted February 6, 2010
- Discussion in Life after encephalitis · 0 replies
- Welcome to this group! I was an adult when I got encephalitis but I know two others who had it when they were little; my cousin was one of them. His family never told him what he went through nor do they ...
did anyone have early setbacks?
- By philmc · New reply February 6, 2010
- Discussion in Treatment and therapy · 4 replies
- My wife Ruth is 4 plus months into recovery from E. After coming home from a 10 week hospital stay ( 3 different ) she was more alert. She would help make the bed, put laundry in the dryer, color, write ...
Still confused about it all
- By EPrincessParisE · New reply February 5, 2010
- Discussion in Life after encephalitis · 5 replies
- What do they mean when they say "lesions ...
sleeping
- By worrieddtr · New reply February 5, 2010
- Discussion in Treatment and therapy · 20 replies
- my father is recovering from hse in florida. he was critically ill with a temp that reached 107!! in the hosp we were so relieved when he woke up and seemed to be as smart as ever, remember everything ...
Short term memory loss need advise
- By tweetykia · New reply February 5, 2010
- Discussion in Caregivers · 10 replies
- Hi All, My daugher Makia was diagnose with NMDAR a rare type of encephalitis June 2009, she is doing well,however her Short term memory is effected. My queastion as a caregiver is what could I do or what ...
time for a reality check
- By dizzybroad · New reply February 5, 2010
- Discussion in Life after encephalitis · 3 replies
- I had viral menengitis and encephalitis almost 6 years ago, I don't know what parts of my brain are injured but I feel like I need to know. I also want to know if this injury reduces life expectancy and ...
aricept=memory meds
- By mwalton · New reply February 5, 2010
- Journal · 8 replies
- has anyone taking the medication aricept to help with the memory problems. its a med for alzhiemers use but i was wondering if ENCEPH. survivors have taken this and did they show improvement ...
Lucy Mae's Husband
- By lucymae · New reply February 5, 2010
- Journal · 19 replies
- Hello to all of you here.Yesterday 1/26/2010 My wife died.On aug 12th 2008 she got the big E her temp was 107.6 and you all know all the other stuff that goes with that. For a year and 5 months Lucy worked ...
Personality change
- By thevoz · New reply February 5, 2010
- Discussion in Life after encephalitis · 3 replies
- My husband is a 6 yr survivor of HSE. He has most of the common residuals of the survivors in this group. He definetly is a different person than the man I married. He seems to have lost his compasion ...
I need advice.
- By lily90 · New reply February 4, 2010
- Discussion in Children and encephalitis · 4 replies
- Hi everyone, I just joined this site after a long time of searching the internet for parents who've been through what I have been through. My daughter was diagnosed with herpes encephalitis at 6 weeks ...
Sinus Infection, Nystagmus
- By NatashaL · New reply February 3, 2010
- Discussion in Life after encephalitis · 9 replies
- Hi, I posted my story a few weeks ago and got some good replies about some of my lingering symptoms ("brain fog", floaters, light sensitivity, etc.) I have also been seeing an ENT for a nasty sinus infection ...
Hey Lance, great to see you back!
- By IngridGuerci · Posted February 3, 2010
- Discussion in Life after encephalitis · 0 replies
- Where the heck have you been and what have you been up to? I've missed you. Ingrid ...
A branch of the Encephalitis Society in North America?
- By AvaEaston · New reply February 3, 2010
- Discussion in Life after encephalitis · 21 replies
- Dear Encephalitis Global Members. If I have posted this message incorrectly please let me know, I am not familiar with this style of correspondence! My name is Ava Easton and I run the Encephalitis Society ...
Post Encephalitis or Sundown Syndrome
- By Heather1541 · New reply February 2, 2010
- Discussion in Treatment and therapy · 16 replies
- Hi there, My mom who just today was discharged from the hospital and is now in a long term rehab. This all started 12/7/09 when my moms shingles traveled into her blood stream and infected her brain....can ...
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The Encephalitis Global Support Community connects patients, families, friends and caregivers for support and inspiration. The Encephalitis Global Support Community is sponsored by Encephalitis Global in partnership with Inspire.