Special Connections is a safe place where families and caregivers of patients at Cincinnati Children's Hospital Medical Center connect with others facing similar challenges for support and information sharing. More about this group
Looking for respite provider recommendations who take Ohio Medicaid Waiver
- By betabeta · New reply April 19, 2012
- Discussion in Child care and recreation · 3 replies
- Hi - I am looking for recommendations of honest, caring and reliable individuals who accept the Ohio Medicaid waiver (for respite purposes). Thanks ...
The Inspire Q&A: Inspire talks with Howard Luks, MD
- By John2 · New reply April 15, 2012
- Journal · 59 replies
- Dear Inspire Community Members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people we feel are making contributions to helping patients worldwide. We are posting ...
Anyone struggling since Dr. Levin retired?
- By bradensmom14 · New reply April 13, 2012
- Discussion in Family issues / support · 1 reply
- Things have not seemed to go well since he retired.. I don't feel my child is getting the care he needs/deserves anymore. Have had docs tell me(now that Levin is gone) they dont agree with him and are ...
Wheelchair van for sale
- By Balloondoggle · Posted April 10, 2012
- Discussion in Equipment and transportation · 0 replies
- We are selling our wheelchair lift equipped van. It is a 2000 Chevrolet Express Explorer conversion with a VanGater II lift and EZ Lock tie-down. Vehicle details and contact info available here: http://www.flickr.com/photos/47395928@N0 ...
Executive Function, ADHD and the Struggling Child: April 16-17
- By CCHMC_Advocate · Posted March 23, 2012
- Discussion in Support and resources for caregivers · 0 replies
- Russell Barkley, PhD, an internationally recognized authority on ADHD, will speak on April 16 and 17, 7:00 pm - 9:00 pm, at the Schiff Family Conference Center at Xavier University's Cintas Center. Dr ...
Xtra Tubes
- By Abby-7 · Posted March 19, 2012
- Discussion in Equipment and transportation · 0 replies
- Does anybody need any extra 12 Mic Peg tubes? I have about 10 to give away ...
Dental Work
- By Abby-7 · New reply March 16, 2012
- Discussion in Diagnosis-specific information · 4 replies
- Anybody have a recommendation for a good pediatric dentist affliated with children's hospital?? My loved one needs to have her cavities fixed under anesthesia and we are not local. Thank you for your ...
Extreme Preemies - Post FOSTER CARE
- By mmajean40 · New reply February 18, 2012
- Discussion in Support and resources for caregivers · 1 reply
- A decade ago decisions were made for my now-adopted children who are still dealing with the affects of prematurity. Developmental disabilities, short-gut syndrome, post-foster care placement. They are ...
Wheelchair van
- By haley95 · New reply February 17, 2012
- Discussion in Equipment and transportation · 2 replies
- We are looking to sell our wheelchair van. It is a 2006 Ponitac Montana. It has less than 70,000 miles. It was purchased in Feb. 11 and modified in June 2011 for our handicapped daughter. She passed away ...
The Inspire Q&A--Inspire talks with Susan Grant
- By John2 · New reply February 15, 2012
- Journal · 31 replies
- Dear readers, We at Inspire are pleased to bring you the latest in a series of interviews with people making contributions to helping patients and caregivers worldwide. We are posting these interviews ...
Thank You CCHMC
- By SpecialMama · New reply February 6, 2012
- Discussion in Family issues / support · 3 replies
- My oldest daughter, Kayla, died on Monday and I want to thank the staff of CCHMC for all their care and support over the almost 13 years. Kayla wasn't supposed to make it past age 5 but thanks to Dr ...
Remarkable Families Symposium on March 2
- By marcsmom · New reply February 2, 2012
- Discussion in Support and resources for caregivers · 1 reply
- "The Remarkable Families Symposium: Building Resiliency in Families Raising Children with Special Healthcare Needs" is being held March 2nd at Xavier University. This is a great annual conference where ...
Looking for a child who needs a wig....
- By Htown51318 · Posted February 2, 2012
- Discussion in Family issues / support · 0 replies
- My name is Leeann and I am wanting to give my hair to a little girl so she can have a wig made with it. Im not looking for payment or any thing of that sort. Most people would say 'why not give it to ...
Ambien Trial
- By KellyAnne · New reply January 28, 2012
- Discussion in Support and resources for caregivers · 1 reply
- I would like to know if there are any clinics doing trials of Ambien for brain injuried children ...
Any other "Patient X"'s (Full Condition Unknown) Out there??
- By mjsg · New reply January 26, 2012
- Discussion in Diagnosis-specific information · 2 replies
- Ever since Michael was born he has been an enigma to the best geneticists in the country...and he's been around. He has a HUGE list of diagnosis but they can't put the puzzle pieces together. Now that ...
A new year and a new beginging for alex
- By magneto6979 · New reply January 25, 2012
- Journal · 3 replies
- I know its been awhile since I posted anything but its been a busy few months. Alex now has had several trips to the ER for breathing issues and now has a vest to shake all the junk out of his lungs for ...
11 days until 1st appt with Dr Grubb!
- By KYMama · New reply January 23, 2012
- Journal · 17 replies
- I called today to check the status of our wait for my daughter's appt with Dr. Grubb. In case you don't know who he is- He is considered the POTS specialist for the east coast and works at the University ...
Inspire is hiring!
- By Walter · New reply January 20, 2012
- Journal · 15 replies
- Inspire is hiring, and we're wondering if you know someone who would be the perfect addition to our team. Hello everyone, I'm Walter, one of Inspire's founders and the head of our technical team. I'm ...
Home health care
- By Balloondoggle · New reply January 19, 2012
- Discussion in Child care and recreation · 7 replies
- Since the closing of Max's House, we have had trouble finding day care for our 12yo daughter. We need an LPN to stay with her when school is out for breaks or vacations. If we don't get this sorted out ...
ADULT TRANSITION...aging out of pediatrics
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The Cincinnati Children's Special Connections Community connects families and caregivers of children with special health care needs for support and information sharing. This community is sponsored by Cincinnati Children's Hospital Medical Center, an Inspire trusted partner.
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