The Charcot-Marie-Tooth (CMT) Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group
All new and active discussions & journals
those with Charcot Marie Tooth disease
- By educ8 · New reply yesterday at 10:10 am
- Discussion in Assistive devices and technologies · 3 replies
- I've had the orthotic/prosthetic work done at the Prosthetic Laboratory of Rochester, MN. great friendly service ...
CMT and opening stubborn packages
- By educ8 · New reply yesterday at 7:56 am
- Discussion in Assistive devices and technologies · 7 replies
- I'd like to know if I'm the only one who has issues opening sealed jars, zip lock bags, and cardboard cereal boxes We've no children to need child proof bottles yet this adult cannot open them-talk about ...
Child with CMT
- By MasonsMomma · Posted August 30, 2010
- Discussion in Kid's corner · 0 replies
- My son is 2 1/2 we are still in the early stages of getting a diagnoses we have hit alot of road blocks along the way but are slowly making progress. he has to wear afos and braces on his hands when he ...
Foot surgery
- By Hillaryfla · Posted August 29, 2010
- Discussion in Assistive devices and technologies · 0 replies
- Has anyone had surgery for hammer toes ...
those with Charcot Marie Tooth disease
- By educ8 · New reply August 29, 2010
- Discussion in How CMT changed my life · 6 replies
- Blessing to you: I've had CMT disease all of my life and it's getting worse. I'm looking for those who have it too. I'm a newly retired teacher and now on disability. I taught for 28 years and am pleased ...
happiness is my goal
- By educ8 · Posted August 28, 2010
- Journal · 0 replies
- I want happiness every day: 1. stay positive & laugh frequently 2. say "I love you." more 3. read a lot of books 4. enjoy a long,healthy retirement ...
CMT & scoliosis
A few more words about privacy
- By Brian · New reply August 27, 2010
- Journal · 76 replies
- All of us at Inspire care a great deal about your privacy and work hard to ensure the information you trust us with is kept safe. We designed Inspire so that you have complete control over how your personal ...
Worried Moma
- By momax4 · New reply August 26, 2010
- Discussion in Newly diagnosed · 2 replies
- My son has yet to be diagnoised, but doc's have leaned toward CMT. He has an awsome ortho at Scottish Rite in Atlanta. His feet are pretty bad deformed (cavous) although he is still able to walk, stress ...
CMT support groups
- By fishermaninafrica · New reply August 26, 2010
- Discussion in Family and friends · 1 reply
- I have attended a CMT support group in Northern California. Does anyone know of a support group in Orange County area in Southern California ...
Custom Shoes
- By dynamonk · New reply August 26, 2010
- Discussion in Assistive devices and technologies · 4 replies
- My Podiatrist has recommended having custom shoes made. My feet are so wide, toes bent and arches are flat; Charcot Foot. Shoes have been very difficult for me to find I have a 6XX wide foot, even men's ...
'Shocking' CMT Symptom
Mobility Van
- By dynamonk · New reply August 25, 2010
- Discussion in Assistive devices and technologies · 4 replies
- I must purchase a mobility van to transport my Jazzy 600, does anyone have experiences pro & con to share ...
Nedications
- By marym11 · New reply August 17, 2010
- Discussion in Medications · 8 replies
- I walk about 10 minutes a day with the said of a walker afterbwhich my legs are tired and ache .Two extra strength Tylanol help some what.Are there any known perscription dugs that would be more effictive.Mary11 ...
Are you effected by hot and cold?
Exercise and Physical Therapy with CMT
- By Abby205 · New reply August 6, 2010
- Discussion in Exercise and therapies · 11 replies
- How do others with CMT feel about physical therapy. I have been several times. My main problem is that the therapist know next to nothing about this disease, therefore tries exercises that are too much ...
CMT and HNF Spin-a-thon!
- By HNF_Intern · New reply August 5, 2010
- Discussion in How CMT changed my life · 1 reply
- Hi Everybody, My name is Hila and I am about to finish up my 10-week internship here with the Hereditary Neuropathy Foundation. Since I started with HNF, I have met and spoken with so many amazing people ...
"BERNADETTE". a documentary about CMT
- By runamuckproddotcom · New reply July 24, 2010
- Discussion in Symptoms · 3 replies
- Hey All - Please visit www.bernslife.com for our trailer on upcoming documentary "BERNADETTE". She "...was born with the biggest disease no one has ever heard of." Right now we are raising funds to finish ...
from a cracked pot
- By MsBear · New reply July 19, 2010
- Journal · 14 replies
- What a great insight about our diseases. I just had to share this with all you cracked pots. An elderly Chinese woman had two large pots, each hung on the ends of a pole which she carried across her neck ...
Beware before you pop a pill
- By Allison · New reply July 17, 2010
- Discussion in Medications · 3 replies
- Back in 1995 I was adminstered 1 cycle of Vincristine & Adriamycin and immediately following the treatment, I had severe onset of my CMT. I was asymptomatic prior to the drug. I hope you all will share ...
- More »
- New
- Active
- Discussions
- Journals
Sign in to see more
Inspire others
Bernadette's Story
Resources from HNF
HNF on Twitter 
Group leaders
Discussion topics
You
About this group
The Charcot-Marie-Tooth (CMT) Support Community connects patients, families, friends and caregivers for support and inspiration. The Charcot-Marie-Tooth (CMT) Support Community is sponsored by the Hereditary Neuropathy Foundation in partnership with Inspire.
About · Explore groups · Community guidelines · Our principles · Privacy · Terms of use · Start a group · Help · Feedback · Follow us on: 
Copyright © 2005-2010 Inspire · All rights reserved