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Possible Lower Motor Neuron Disease -- could be CMT Type 2. Thoughts?
Marathon
- By mtclausson · New reply May 18, 2012
- Discussion in Exercise and therapies · 7 replies
- Hey guys, I am new to this site, but I assume many people in this group also have CMT. After recovering from a foot reconstructive surgery, I have decided to run a marathon for CMT awareness while I still ...
Nerontonin
- By cmt1 · New reply May 18, 2012
- Discussion in Medications · 21 replies
- Just went to the neurologist and his only suggestion was to try neurontin or Gabapentin for the pain. I have taken it for 2 days and literally feel like a rag doll. Anyone else had this experience with ...
Epidurals and CMT1a
- By quirkychelle · New reply May 18, 2012
- Discussion in National CMT Resource Center · 27 replies
- I'm expecting a baby and wonder if epidurals are safe or should be avoided? My gut says avoid it. But need an answer from people who are versed in CMT, not just a Dr. that says he doesn't know but SHOULD ...
The Fear of being a teen with CMT
- By BreakingAway · New reply May 18, 2012
- Journal · 5 replies
- Umm... Hello. I am sixteen years old, a seemingly average girl-next-door, but I was diagnosed with CMT when I was thirteen. Living as a teen with a disorder like this is hard, expecially in the spring ...
I wanna go John Q on my doc
- By Ghall25 · New reply May 17, 2012
- Discussion in How CMT changed my life · 7 replies
- Ah just kidding but really my General Doc diserves it. Can never get anything out of my doc with this diease. do we really exsist? somtimes I wonder ...
Lost in Time
- By SurroundingHope · New reply May 17, 2012
- Journal · 3 replies
- My birthfather and step mother send me videos and pics of them. Good right? Not to me.. They live in a different country from me and I cant even see my new little siblings grow up. When i meet them ill ...
ONLY A BREATH AWAY....
- By mybutterfly · New reply May 15, 2012
- Journal · 8 replies
- Jim (my dear hubby since 1975...how many years is that??) ....should be going home tomorrow!!! He's doing so very much better....sitting up....eating....even net surfing a bit :) I'm so very thankful ...
tendonitis
new to the group
- By tonyandrosie · New reply May 13, 2012
- Discussion in Symptoms · 1 reply
- Welcome! Last message Delete Mark as unread Back to inbox TeamInspire By TeamInspire Today at 8:39 pm Welcome! We're the team that created Inspire. We're here to help you get the most out of Inspire ...
Upper arm pain
- By katbirdinoregon · New reply May 12, 2012
- Discussion in Symptoms · 1 reply
- I have severe pain when I have to hold my arms up for any length of time for example: Holding a phone up to my ear, setting my hair on rollers, holding up an umbrella etc. I have had this problem all ...
Progression
To Young to Understand
- By SurroundingHope · New reply May 4, 2012
- Journal · 10 replies
- I'm 17, yet I can't run, play, hang out, and do whatever like the other kids. I run and become weak, play and become tired, hang out just to be picked on. I've fought my way through life, always being ...
Stem Cell Therapy for CMT
- By rizktaker · New reply May 1, 2012
- Discussion in National CMT Resource Center · 7 replies
- Has anyone looked into this??? http://worldstemcells.com/stem-cell-ther apy-cmt.html I am very interested and would like some opinions ...
Expecting the Unexpected with limitations of CMT1a
- By quirkychelle · New reply April 30, 2012
- Journal · 8 replies
- Hello everyone,my name is Michelle and have CMT1a. I'm a little bit new to blogging and to be honest, I've never posted any entries on this site. But I visit often and read about everyone's triumphs or ...
cmt and having children
- By deirdrec · New reply April 29, 2012
- Discussion in Family and friends · 13 replies
- I am really worried about passing this down to my chilren i eventually want to have. I always knew about this disease. It is a strong gene in my fathers family. I have it and it feels as if It is progressing ...
First Entry
- By ourlittlestar · Posted April 26, 2012
- Journal · 0 replies
- I just found this site and want to find others with similar answers to the ones I have gotten so far. I was fully educated years ago about what I have, but now it seems that answers are not as easy as ...
Cost of DNA test
- By smittle · New reply April 26, 2012
- Discussion in Assistive devices and technologies · 5 replies
- Last year I had a DNA test and just got a surprise - a $9,000 invoice. Has anyone else had this experience and were you able to get it reduced? I have CMT2 and the test really did not give any more info ...
mixed blessing
- By Spla · New reply April 25, 2012
- Journal · 5 replies
- Since I just started wearing afo's a year and a half ago I have noticed that most people are usually very considerate: opening doors, stepping aside, offering to pick up my frequently dropped cane. As ...
IT'S BEEN TOO LONG.....
- By mybutterfly · New reply April 23, 2012
- Journal · 25 replies
- Have you ever be so tired....so very tired....that breathing seems a chore? Another sister passed away today....Judy battled bone cancer for four years...she was tired.... I posted a picture on my FB ...
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Arlene on the Scene
Arlene has plans -- big plans. Sure, she wears purple leg braces and has a weird-sounding disease like Charcot-Marie-Tooth, but that won't stop her. Read about Arlene in this new children's book. All proceeds will be donated to help those living with CMT.
Order here or read more about Arlene.
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