CARES Foundation Support Community

The CARES Foundation Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

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The Inspire Q&A: Inspire talks with Howard Luks, MD

By John2 · New reply April 15, 2012
Journal · 59 replies
Dear Inspire Community Members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people we feel are making contributions to helping patients worldwide. We are posting ...

has anyone had severe pain in your knees?

By mmorganladybug · Posted April 13, 2012
Discussion in Classical CAH · 0 replies
Hello. I have been diagnosed with sarcoidosis for about eight months. I am on 125 mg. of prednisone. I went to my orthodox doc.on Tuesday because I broke my left wrist in Jan. just by turning a door knob ...

Congenital Adrenal Hyperplasia

By rachael2012 · New reply April 12, 2012
Journal · 1 reply
i am rachael 17 year who has Congenital Adrenal Hyperplasia i would like meet friends here and talk about the condition i don't really know about it all so would be nice other people who has the same ...

cah

By rachael2012 · Posted April 11, 2012
Discussion in Classical CAH · 0 replies
hi mattew i have cah as well if you wanna talk about just add me as friend and message me ...

Howdy!

By deducit · Posted April 3, 2012
Journal · 0 replies
to everyone who knows deducit i thought i would journal and tell you i am taking a break to get me in order...the diabetes t1 and sps and thyroid disease and osteoporosis is abit more than i can handle ...

stopping prednisone cold turkey

By mmorganladybug · New reply March 6, 2012
Discussion in Classical CAH · 1 reply
Hello, I have stopped my prednisone cold turkey. My doctor has left town,I don't have anyone else to write them for me. I am scared .any one that's has ant idea of what's going to happen please let me ...

The Inspire Q&A--Inspire talks with Susan Grant

By John2 · New reply February 15, 2012
Journal · 31 replies
Dear readers, We at Inspire are pleased to bring you the latest in a series of interviews with people making contributions to helping patients and caregivers worldwide. We are posting these interviews ...

True Strength

By Rx · New reply January 27, 2012
Journal · 12 replies
True strength is keeping everything together when everyone expects you to fall apart ...

Inspire is hiring!

By Walter · New reply January 20, 2012
Journal · 15 replies
Inspire is hiring, and we're wondering if you know someone who would be the perfect addition to our team. Hello everyone, I'm Walter, one of Inspire's founders and the head of our technical team. I'm ...

The Inspire Q&A--Inspire talks with Michele Baldwin

By John2 · Posted January 3, 2012
Journal · 0 replies
Dear readers, We at Inspire are pleased to bring you the latest in a series of interviews with people making contributions to patients and caregivers worldwide. We are posting these interviews in a Q&A ...

pain pain, go way dont come back any other day

By DianaEJ · New reply December 17, 2011
Journal · 1 reply
Can the pain just stop already???? Its bad enough I have the vasculitis but this hip and back pain is going to drive me over the edge. I am thankful that God healed me and watched over me during my brain ...

Following: A new Inspire feature

By Walter · New reply December 5, 2011
Journal · 111 replies
Hello everyone, I'm writing to let you know about a new Inspire feature that we launched last night, designed to help you keep track of conversations you're interested in. We call it "following" and here's ...

Treatment during Adrenal Crisis

By AIU4Change · Posted December 3, 2011
Discussion in Classical CAH · 0 replies
Please take this survey. http://www.surveymonkey.com/s/6YHVPSC Results will be used to help convince EMS physicians to create Standards of Care for Adrenal Crisis. In addition, if you have a crisis story ...

Daughter Diagnosed after 21 years

By sister2gether · Posted November 27, 2011
Discussion in Classical CAH · 0 replies
My daughter was recently genetically tested and formally diagnosed with Stuve-Wiedemann Syndrome (STWS). Testing for the other daughter will be soon. At this point all we know is they are possible the ...

Finding a Doctor

By AudiAngel · New reply November 27, 2011
Journal · 2 replies
In 2009, a doctor told me that she believes I have NCAH, in 2010 another told me that the looney bin was on the fourth floor. How do you find a doctor that is not just going to think that the depressions ...

Feeling Crazy

By AudiAngel · Posted November 25, 2011
Journal · 0 replies
I had a stressful week. I went off my hydrocortisone cold turkey. I knew what I was doing, and thought I could control the out breaks and the dt's. By Tuesday, I was an emotional wreck with hot and cold ...

Opening a Door

By AudiAngel · Posted November 25, 2011
Journal · 0 replies
My father has been out of my life since childhood. He came back one time when I was 14 and told me he has no money so he hopes that's not why I contacted him. He has caused pain and chose the drug route ...

CAH

By Matthew31 · New reply November 23, 2011
Discussion in Classical CAH · 2 replies
I have CAH and I am looking to connect with other people that have the same medical condition to talk about things they are or have gone through. I am a 31 year old male and was diagnosed at birth. The ...

Patient-driven research

By Brian · Posted October 13, 2011
Journal · 0 replies
I'd like to share with you a new Inspire report, The SCAD Ladies Stand Up: Stories of Patient Empowerment, which chronicles patient-initiated research in our community. This amazing patient-driven effort ...

these are the worst

By mswill · New reply August 12, 2011
Journal · 6 replies
I'm still having discomfort from my fibroids. i dont have any sex drive what so ever. is this happening to anyone else? no sex drive at all? even when i do im so scared of the pain ...

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About this community

The CARES Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by CARES Foundation, an Inspire trusted partner.