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All new and active discussions & journals

Holidays....are they stressful for you?

roadrunner
  • By roadrunner · New reply 11:22 am
  • Discussion in Caregivers corner · 11 replies
  • Its the Holidays......bring on the cheer..... It can be wonderful....but stressful......how do you handle the stress of the HOLIDAYS? Are you the GRINCH?......or do you grasp what you can.... How can ...

Mets,in our family,,,,a new experience.......

roadrunner
  • By roadrunner · New reply 11:12 am
  • Discussion in Caregivers corner · 51 replies
  • Well,its not us,but its my husbands brother,,,,very close to home... My husband has a older brother by 2 years,,,12 years ago he had colon cancer,,,it was removed and it was good to go. Today he is 3 ...

DECEMBER...who's having surgery or tests? last calendar!!!

roadrunner
  • By roadrunner · New reply 11:10 am
  • Discussion in Caregivers corner · 26 replies
  • The last Month of the year, December brings the Holidays, and a close to the year, 2010...hopefully will be a good year for all here on inspire.......... If you are having surgery or tests in December ...

bob and the oncologist

arefarm
  • By arefarm · New reply 10:53 am
  • Journal · 4 replies
  • Sorry, but we don't know, did Bob have surgery for his bladder cancer? We are on our way to Chemo after neo. Would appreciate knowing, as we will be advised soon as to what may be happening. Hope you ...

Home and Good Report!

balihigh
  • By balihigh · New reply 10:52 am
  • Journal · 30 replies
  • My husband and I arrived home this afternoon after our 6 day trip to NY for my 6 month checkup. All reports are good news! No cancer so I am now 14 months post op and doing fine. However, my thoughts ...

COMPLICATIONS OF BLADDER SURGERY

SJERRY868
  • By SJERRY868 · New reply 10:21 am
  • Discussion in Help desk · 19 replies
  • Has anyone had complications from bladder surgery ...

LENORE PEER'S MIRACULOUS RECOVERY

lpeer47
  • By lpeer47 · New reply 10:13 am
  • Discussion in Life after radical cystectomy · 21 replies
  • AFTER 4 MONTHS, LENORE HAS LEFT THE HOSPITAL AND GONE TO DAYTON (OHIO) REHABILITATION INSTITUTE. THIS IS MORE LIKE A HOTEL THAN A HOSPITAL! SHE IS WALKING WITH A WALKER AND A LITTLE HELP FROM THE REHAB ...

Insurance/hospital bill questions

Annasvenska
  • By Annasvenska · New reply 8:45 am
  • Discussion in Life after radical cystectomy · 9 replies
  • Hi I was at the hospital for four weeks due to bowel obstructiion caused by adhesions from my previous RC. I was at a local hospital for three days and then transported to University of Chicago where ...

Stressed!!

lilbit37
  • By lilbit37 · New reply 8:22 am
  • Journal · 14 replies
  • I don't think I fully accepted the face that I'm having surgery on December 17th and 18th. This fact was solidified today with my paper work stating that I would have the stents put in on the 17th and ...

book

nsk
  • By nsk · New reply 8:00 am
  • Discussion in Living with non-invasive bladder cancer · 7 replies
  • I just finished a wonderful book about a daughter with breat cancer and a father with bladder cancer.It is atrue story and both the daughter and father appeared on tv.The name of the book is The Middle ...

All Good So Far

mrr3rd
  • By mrr3rd · New reply 7:59 am
  • Discussion in Taking charge: How to be a proactive patient · 8 replies
  • Thank You to everyone for all the thoughts and prayers!! I had my superficial Lymph nodes removed on Nov 19th, the frozen sections came back NEGATIVE!! My awesome Urologist does not expect a positive ...

BCG Interferon treatments

leefixes
  • By leefixes · New reply 6:53 am
  • Discussion in Help desk · 8 replies
  • I have just had my first treatment and unlike BCG alone, I am feeling terrible. I have a fever, aches, chills and general fatigue. We have a trip to Italy coming up in December, I think I should hold ...

Starting BCG

Burb
  • By Burb · New reply yesterday at 11:09 pm
  • Discussion in Living with non-invasive bladder cancer · 11 replies
  • I'm starting BCG on Monday. In August I had Mitomycin C and I found that pretty "stingy" to put it mildly. Could some folks who have gone through BCG tell me their experiances? How did you feel the day ...

Med Supplies~ What are These? Oh, and Real Directions?

BJsHere
  • By BJsHere · New reply yesterday at 9:57 pm
  • Discussion in Life after radical cystectomy · 17 replies
  • I have discovered a new frustration... Trying to figure out what the "goodies" are that the Med Supply Houses send for Samples! Not only that, when I get the actual supplies I need I can't figure some ...

Question about pathology report for JJ803

Girly1
  • By Girly1 · New reply yesterday at 9:06 pm
  • Discussion in Living with non-invasive bladder cancer · 4 replies
  • I sent out a question regarding my path report last week and got a wonderful response from JJ803. I had left something off of my discussion that was also on the report. It also says The tumor shows a ...

Maitake mushrooms

jmch
  • By jmch · New reply yesterday at 8:21 pm
  • Discussion in Taking charge: How to be a proactive patient · 6 replies
  • I get alerts from uro today and got one the other day that talked about work being done with maitake mushroom extract, which got me doing some more searching, this article was also interesting: http://findarticles.com/p/articles/mi_m0 ...

looking for support

aecann
  • By aecann · New reply yesterday at 3:50 pm
  • Discussion in Caregivers corner · 12 replies
  • I can only describe myself as frustrated. Bill's bladder was removed mid Oct along with prostate, lymph nodes and some amount of muscle. Is any one else who has been given some amount of charge over said ...

NOVEMEBER CALENDAR......take a look....

roadrunner
  • By roadrunner · New reply yesterday at 2:30 pm
  • Discussion in Caregivers corner · 36 replies
  • Thanksgiving is near...we have much to be grateful for....a whole cast of people here on the forum...willing to help each other. On to November......here is the calendar of who is doing what and when...tests ...

When Doctors call late in the day

Jimbo1968
  • By Jimbo1968 · New reply yesterday at 1:02 pm
  • Discussion in Living with non-invasive bladder cancer · 26 replies
  • Well the doctor called late yesterday. He called to to tell me biopsy result came back clear - no cancer!!!!! Thanks to all those that sent positive waves and prayers. No doctor appts for like 5 weeks ...

diet

aecann
  • By aecann · New reply yesterday at 9:30 am
  • Discussion in Caregivers corner · 4 replies
  • Bill will be 7 weeks post op for r/c and besides getting a handle on the stoma gear it is mostly his gut that is his biggest complaint. The re-section is doing OK no leaking! I am still working so Bill ...

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Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. The Bladder Cancer Advocacy Network Support Community is sponsored by the Bladder Cancer Advocacy Network in partnership with Inspire.