The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

Why Bladder Cancer Matters

RickB
  • By RickB · Posted 6:23 am
  • Discussion in Raising awareness · 0 replies
  • As part of Bladder Cancer Awareness Day on Saturday May 5, we sponsored a multi-institution walk and support group here in Detroit. It was an extraordinary event, with 250 attendees at the walk and 50 ...

Vitamin Supplements and BC

quincyst38
  • By quincyst38 · New reply 6:14 am
  • Journal · 20 replies
  • My brother-in-law who has a great deal of knowledge relative to vitamin supplements "he's not an expert" but is very knowledgeable, suggested that since I had a recurrance of my low-grade non-invasive ...

continent or incontinent

Margarite

BCG -- My Story

AustralianShepherd
  • By AustralianShepherd · New reply yesterday at 11:01 pm
  • Discussion in Newly diagnosed · 8 replies
  • Hey gang some of you know I had high-grade, stage Ta bladder cancer and my first urologist did not recommend BCG. However, after a second opinion, in which the second doctor did, in fact, recommend it ...

Post RC hernia prevention & my 5 month old IP

got_shirts
  • By got_shirts · New reply yesterday at 9:40 pm
  • Discussion in Life after radical cystectomy · 1 reply
  • Today my Indiana Pouch is 5 months old. (Even a week or two ago and beyond, I whined a lot to myself that I'd wished/hoped/thought that I should be feeling a lot better (less ouchy) than I was feeling ...

Positive for TB exposure

genierei
  • By genierei · New reply yesterday at 9:31 pm
  • Discussion in Help desk · 12 replies
  • My husband got a result of positive for TB exposure when he had the TB skin test. He did have 5 BCG treatments. Could this be why he had a positive result? Does it mean he will get TB. Thanks to all who ...

need help-scared

michie1013
  • By michie1013 · New reply yesterday at 9:21 pm
  • Discussion in Taking charge: How to be a proactive patient · 3 replies
  • Hi all-I am not yet diagnosed but am scared stiff. i am a 45 year old female. no symptoms-non smoker. Last year on urine test with normal physical i had microscopic blood. on repeat it was normal so no ...

hello all

duneman
  • By duneman · New reply yesterday at 9:11 pm
  • Journal · 2 replies
  • this is a neat area.... just had 3 cm removed with turb. and pathology said low grade. go back on 30th for treatment offers... note on report said doc wanted to go in for another turb in three months ...

RC but no bowell activity

Jaybird60
  • By Jaybird60 · New reply yesterday at 8:58 pm
  • Discussion in Life after radical cystectomy · 9 replies
  • Dad is 88 and had a RC on the 14th. Today is 19thand, still no farts, nothing. Epidural is still being used for pain. I feel like we're not making any headway. He;s too weak to do any PT with the therapists ...

bladder cancer

Margarite
  • By Margarite · New reply yesterday at 8:31 pm
  • Journal · 1 reply
  • I was recently diagnosed with T3 bladder cancer. I am devastated and am trying to learn more about my options . One surgeon says to remove bladder because the cancer reached the wall of the bladder. Another ...

The lighter side of BLADDER CANCER

lur
  • By lur · New reply yesterday at 6:41 pm
  • Journal · 3 replies
  • I am a 56 year old woman who found out that I have Bladder Cancer. Was totally blind-sided. Last year in July 2011 I broke my ankle and I developed a blood clot in leg. Started to take Warfarin (blood ...

bcg maintenance

Freeatlast
  • By Freeatlast · New reply yesterday at 5:17 pm
  • Discussion in Treatment choices · 1 reply
  • Hi everyone. I just had my 3 month checkup after finishing the bcg and everything was cleared. The doctor mentioned doing bcg maintenance. I wanted to get everyones thoughts on this. Is it necessary ...

Surgery Decision

JimK50
  • By JimK50 · New reply yesterday at 4:05 pm
  • Journal · 2 replies
  • New blog on my life with cancer: The Decision. Whether to go under the knife, or not? Not an easy call. http://www.moralkiosk.net/blog/2012/5/7/ 13-the-decision.html ...

I'm scared

justanothersocalguy
  • By justanothersocalguy · New reply yesterday at 4:02 pm
  • Discussion in Newly diagnosed · 9 replies
  • I was in the ER and they did a CT scan. There was blood in the urine and I have many urinary problems. I'm only 47. The CT scan said my bladder had a thickening lump and my hiatal hernia that was surgically ...

6 YEARS CANCER FREE TODAY!!!!

OhSoBlessed
  • By OhSoBlessed · New reply yesterday at 3:21 pm
  • Discussion in Life after radical cystectomy · 29 replies
  • 6 YEARS CANCER FREE TODAY!!!! Keep strong friends, God is Good! Blessings to you and your family ...

BCGTREATMENTS

parz40
  • By parz40 · Posted yesterday at 2:15 pm
  • Discussion in Newly diagnosed · 0 replies
  • HAD MY 6BCG TREATMENTS THREE MONTHS LATER HAD A SCOPE DONE BY THE URO ALL CLEAR WANTED TO DO 3MORE BCG TREATMENTS HAND 2 DONE AN THEN I RECIVED A PHONE CALL THAT MY THIRD TREATMENT HAS TO WAIT CANNOT ...

Blogging My Experience w/ BC

JimK50
  • By JimK50 · New reply yesterday at 1:31 pm
  • Journal · 19 replies
  • Started out Stage 4. Now NED. Not an easy road. And I'm still traveling it. Hopefully, you can benefit from what I've gone through. Current blog entries still early in my story. So let me know if any ...

Internal Reservoir Diversion (Indiana Pouch)

carolko
  • By carolko · New reply yesterday at 12:58 pm
  • Discussion in Life after radical cystectomy · 2 replies
  • I'm fairly new to this site but have gotten very positive feedback. As I get closer to making my decision, I would like some feedback as to the Indiana Pouch or the Neo Bladder with reference to senior ...

Carboplatin vs Cisplatin?

newsie
  • By newsie · New reply yesterday at 12:03 pm
  • Discussion in Metastatic bladder cancer · 14 replies
  • After first Cis/Gem dose, DH's creatinine level went from 1.2 to 2.6. Consequently he missed second Gem dose. Level has come down to 2.4. But now doc is saying she wants to switch to to Carboplatin. Is ...

neo bladder incontinence

lh1115
  • By lh1115 · New reply yesterday at 11:49 am
  • Discussion in Living with invasive bladder cancer · 7 replies
  • I am a 57 year old female who had neo bladder surgery on March 27. The surgery was successful and the pathology came back clear. All of this was very good news. My reason for joining this site is to find ...

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About this community

The Bladder Cancer Advocacy Network Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Bladder Cancer Advocacy Network, an Inspire trusted partner.