American Liver Foundation Support Community

The American Liver Foundation Support Community connects patients, families, friends and caregivers for support and inspiration... More about this group

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Introduction to Us

By always21mease · New reply 1:36 am
Discussion in Liver transplants · 5 replies
My name is Kim and my husbands name is Ray. He is in end stage liver disease. He needs a transplant within 5 years or...well he'll be dead. The problem is, he has a bad history, drug abuse mostly. They ...

In god's time ...........

By lovemyliver · New reply 12:12 am
Journal · 3 replies
I have been writting about pain and medications and vomiting for so long now and I saw no end in sight. The psych.at NY jPresbyterian was livid when I was put on dillaudid sand instead put on metadone ...

Cramps w/ Liver Disease

By always21mease · New reply yesterday at 10:46 pm
Discussion in Living with a liver disease · 2 replies
I don't know if anyone else is suffering from this. But my husband is suffering from serious cramps all over his body. Is there anyone suffering from this? and if so, what is the best way to deal with ...

undecided

By mems · New reply yesterday at 7:39 pm
Journal · 9 replies
Hello out there...just wondering if anyone else out there is undecided about a liver transplant. I have stage 4 NASH induced cirrohsis. My meld score hovers around 10 and I am still working. Some days ...

Still doing well with Juicing-45 days Later!

By doctorwho · New reply yesterday at 2:34 pm
Discussion in Living with a liver disease · 4 replies
Hello Everyone, I just wanted to update you all about my progress with juicing and my fatigue issues. I have only had three days in the last month and half where I spent a whole day in bed. The "Naked ...

Dealing with rude and ignorant people re cirrhosis

By maryfny · New reply yesterday at 9:41 am
Discussion in Alcohol-induced liver disease · 34 replies
We talk on this site about the physical and mental effects LD causes. I would like to talk about the social and emotional effects for a movement, if I may. The more time I live with this illness, the ...

Transplant

By Anthony64 · New reply May 18, 2012
Journal · 16 replies
I am a friend of Ant64. Just wanted you all to know that he was called Wednesday night at 11:50. He got the liver transplant yesterday.He is doing well,But is still in SICU.Now its the road to recovery ...

Kangen water

By Joyinarkansas · New reply May 18, 2012
Discussion in Living with a liver disease · 4 replies
Has anyone ever heard if Kangen water helps with cirrhosis and HE.i don't really know much about it but they are saying it is good for all of your organs ...

New to this site and wanted to introduce myself

By Zoeera22 · New reply May 17, 2012
Discussion in Family and caregivers · 6 replies
Hello, I'm new to this site and wanted to introduce myself. I'm 37 years old and my fiancé who is on the list for a liver transplant is 39. He's been healthy his whole life and never much of a drinker ...

Hepatic Encephalopathy / Liver Disease

By Darrellsr · New reply May 17, 2012
Discussion in Family and caregivers · 11 replies
Hello, my wife has Hepatic Encephalopathy and Liver Disease . I just figured out what my problem was by a disagreement we had today. She has been very moody short tempered and I just never got it ,even ...

Vanderbilt

By Susan675 · Posted May 16, 2012
Discussion in Living with a liver disease · 0 replies
Has anyone had any dealings with their transplant team ...

Banding

By Joyinarkansas · New reply May 16, 2012
Discussion in Living with a liver disease · 5 replies
They had to go in and band my varices today .they said I shouldn't be hurting but i am is this normal it is very sharp pain ...

RESTARTED TREATMENT

By MRRWO123 · New reply May 16, 2012
Discussion in Hepatitis · 12 replies
FINALLY STARTED TREATMENT AGAIN ON 12/30/11. SO FAR SIDE EFFECTS ARE SO SO BUT I KNOW THERE IS MORE TO COME. SOME OF THE SIDE EFFECTS ARE FEVER, CHILLS, VOMITING, NAUSEA, FATIGUE BUT I WILL TAKE WHAT ...

Great Article for Diabetes/Liver Disease

By doctorwho · New reply May 15, 2012
Discussion in Living with a liver disease · 5 replies
Hello Everyone, I forwarded a request last fall to Diabetes Forecast Magazine about the lack of communication in regards to Diabetes and Liver Disease (Fatty Liver). The following article is in the current ...

Pain Medication

By lovemyliver · New reply May 15, 2012
Discussion in Living with a liver disease · 16 replies
Please. Share with me pain meds you are on...my pain meds working great but are very strong. Thanks very much. All feedback would be welcome Sheri ...

Found out Liver Transplant is Needed

By always21mease · New reply May 11, 2012
Discussion in Other inherited liver diseases · 5 replies
We just got the word back from the liver specialist that Ray needs a transplant and I am so scared of losing him. It was so bad when he was in a coma, I couldnt imagine the pain of him being not with ...

lactulose lull

By lovemyliver · Posted May 10, 2012
Discussion in Living with a liver disease · 0 replies
And as the day winds down into night I wish us all a peaceful sleep to the lull of lactulose like the ocean waves in the Caribbean ...

CONFUSED

By Darbysjourney · New reply May 10, 2012
Discussion in Living with a liver disease · 11 replies
I went to my doctor for my 6 month check up.Everything seemed fine to him.I suffer from NASH with cirrohsis stage 1.I told him about my dizzy spells and lightheaded feeling he says that its just my bloodpressure ...

Brother Being Evaluated for Transplant

By serrett · New reply May 9, 2012
Discussion in Liver transplants · 4 replies
Hello. I am new to this site. I have been searching for a support group since we found out my brother needs a liver transplant. He was diagnosed with alcoholic cirrhosis. He will be 6-months with no alcohol ...

Anyone taking Omeprazole?

By Azbec · New reply May 9, 2012
Discussion in Living with a liver disease · 16 replies
HI, This month I started having abdominal pains (not the usual side pain we all have, but the doctor's don't think so) and right side chest pains. Along with stage 4 cirrhosis I have a cyst on my pancreas ...

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The American Liver Foundation Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the American Liver Foundation, an Inspire trusted partner.