Advanced Breast Cancer Support Community

The Advanced Breast Cancer Community is a web portal and an online community solely dedicated to advanced/metastatic breast cancer patients, their families, friends and health care providers. More about this group

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Here's what I sent to Anderson

By kathylhall · New reply 1:04 am
Discussion in Living with cancer · 11 replies
OK folks-- I only had 1500 characters, but here's what i sent to ANDERSON... October 13 is Metastatic Breast Cancer Day. Women like me don't get an entire month of celebration, but we do get one day ...

Ribbon/Song/Video

By LauraW43 · New reply 12:50 am
Discussion in Living with cancer · 37 replies
Can I just start a new thread, so we can keep all the ideas about these three thing in one place, so we don't "lose" them? I would like part of the video to show us changing out our pink ribbons for the ...

Angry

By Lesleyanne · New reply 12:00 am
Discussion in Living with cancer · 41 replies
I cracked a tooth Monday. The tooth can't be saved and has to be pulled. I was told by my oral surgeon that necrosis of the jaw would be a possibility for the rest of my life once a tooth had been pulled ...

Change.org Petition large BC grps to put more $ to MBC

By BlindsidedinNY · New reply yesterday at 11:50 pm
Discussion in Taking charge: Being a proactive patient · 8 replies
We've been talking about doing a petition on change.org. I have an idea - what about a petition to encourage large breast cancer organizations to increase funding for metastatic breast cancer research ...

Just wrote CNN

By LauraW43 · New reply yesterday at 11:42 pm
Discussion in Living with cancer · 9 replies
Sent them my cover letter and added that we are designing a ribbon, writing a song, planning a PSA, and possibly non-profit org. Maybe, they will respond!!! Wish me luck ...

Triple negative with mets needs support

By wendie · New reply yesterday at 11:34 pm
Discussion in Clinical trials · 23 replies
I was diagnosed with Stage 3 triple negative br ca last April. I did the chemo, surgery - double masc, with 8 lymph nodes, and radiation. Things were gong well, I thought until I had a CT scan. I was ...

Haven't been posting much...

By FairyBliss · New reply yesterday at 11:31 pm
Journal · 44 replies
It's getting scarier by the day. My cancer has always been aggressive, I was told this in the beginning but then, 2005, I had a lot of hope, was hoping for at least 20 more years. I'm not so sure now ...

strontium instead of bisphosphonates?

By bevvy22 · Posted yesterday at 9:33 pm
Discussion in Treatment options · 0 replies
Hi ladies. In an ongoing effort to balance conventional vs. natural, particularly regarding recent discussions about ONJ, I stumbled across this alternative to bisphosphonates. The more I read, the more ...

CONFUSED! TRIPPLE NEGATIVE BREAST CANCER QUESTION?

By studyornot2 · New reply yesterday at 9:10 pm
Discussion in Recurrence · 14 replies
My mother has stage 1 tripple negative breast cancer. We are on our 2nd chemo & she will have surgery on her 4th chemo.Her tumor has shrunk half the size & is now 2 cm. We were told today that the characteristics ...

Sent Home Early

By fragilistic · New reply yesterday at 8:44 pm
Discussion in Clinical trials · 62 replies
I've been sent home early from John Hopkins. The epigenetic trial I'm on was too hard on my absolute neutrophils etc., I feel like a failure. Seems I've been in chemo so long -almost 4 years- and my bone ...

Celebrex - Can it mask bone met pain?

By marcinca · New reply yesterday at 7:00 pm
Discussion in Living with cancer · 14 replies
Ladies, I'm Stage 3b...and my Dr has me on 200 mg Celebrex, for bone pain. He said it wouldnt mask the pain if it was bone mets. But i think i read on here somewhere that Drs are using Celebrex to effectivly ...

Battle lost

By kap66 · New reply yesterday at 1:26 pm
Discussion in Recurrence · 12 replies
My best friend lost her battle today. I am devastated. Don't know how I will go on ...

mothers day

By warrior1 · New reply yesterday at 12:13 pm
Journal · 12 replies
I had a chemo brain moment last week. My kids and I celebrated Mothers day, a week in advance. My kids showered me with beautiful cards that they made themselves.......and then,......we went to 5pm mass ...

Triple negative brac2 stage 4

By cheryltripnegbrac2 · New reply yesterday at 10:08 am
Discussion in Treatment options · 11 replies
Looking for others with triple negative brac 2 stage 4 to see what treatment is working. I have mets to lymph nodes and bones. On a parp inhibitor study but expect to get kick out this week because I ...

POST & CALL TO THE TODAY SHOW

By BlindsidedinNY · New reply yesterday at 9:59 am
Discussion in Taking charge: Being a proactive patient · 6 replies
I believe we can make a difference. Please continue to post one a week on Dr. Snyderman's fb wall and the TODAY Show wall until they cover a story on MBC. Please call the Today Show once a week too. TODAY ...

HER II + Stage IV

By bbburns · New reply yesterday at 9:49 am
Discussion in Recurrence · 21 replies
Anyone out there with Stage IV HER II + MBC taking Ixempra? I am on my third chemo now and I have not found any information about anyone on Ixempra. Is there anyone out there? What has your experience ...

A Million Thanks For My Peeps

By Charlee2 · New reply yesterday at 8:47 am
Discussion in Living with cancer · 5 replies
I don't know what I would do without all of you! You have kept me strong through the years of living with this beast. It is hard to believe that almost 3 years ago I was diagnosed out of the box with ...

afinitor/aromasin

By curlee · New reply yesterday at 7:40 am
Discussion in Living with cancer · 5 replies
have been taking this combo since jan.23 .tumors shrunk and so have markers come down. meanwhile have had fierce uti [worst ever}, better now , terrible fatigue, loss of appetite and weight. sleep many ...

I threw my own FUN-eral and it was a freaking blast!

By cancerkicker · New reply yesterday at 7:28 am
Discussion in Living with cancer · 21 replies
I have been MIA on the boards for awhile now. Things have been up and down the last three or four months and I just haven't had the energy to even open my computer. But I have been wanting to share this ...

Afinitor

By DunesGirl48 · New reply yesterday at 7:26 am
Discussion in Treatment options · 7 replies
My breast cancer is advanced and my onc has prescribed Afinitor and Aromison. My insurance Regence has denied paying for it. Anyone else having the same problem. Any suggestions ...

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The Advanced Breast Cancer Support Community connects patients, families, friends and caregivers for support and inspiration. This community is sponsored by the Advanced Breast Cancer Community, an Inspire trusted partner.