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guilty_spork's discussions

Chat room for NF...

By guilty_spork · Posted November 15, 2009
In Neurofibromatosis, Inc. · 17 replies
NF chatroom on xat. http://xat.com/Neurofibromatosis ...

The struggle so far...

By guilty_spork · Posted November 13, 2009
In Neurofibromatosis, Inc. · 10 replies
With the crusade atmosphere of late, I thought I'd take a minute to get back to why I'm really here on the site. Finally, after years of pushing and pleading and going from doc to doc, I found a doc who ...

Joint pain

By guilty_spork · Posted September 28, 2009
In Neurofibromatosis, Inc. · 7 replies
I have been having pain and weakness in my joints. Lately it seems to be my left elbow joint. Its not outside like I bumped it, but inside. If I pick up even the lightest weight.. less than a pound sometimes ...

Picnic... annother game for post-happy members

By guilty_spork · Posted September 6, 2009
In Neurofibromatosis, Inc. · 127 replies
This is a game where I start things rolling by saying: "Im going on a picnic and I'm bringing ____." The first person starts with somthing that begins with A. The second person, the letter B and so-on ...

Celebrity death circus....

By guilty_spork · Posted June 28, 2009
In Neurofibromatosis, Inc. · 28 replies
Billy Mays died ...

NF Spokesperson

By guilty_spork · Posted June 28, 2009
In Neurofibromatosis, Inc. · 11 replies
This is sort of silly but does anyone else think that Moono, From Yo GabbaGabba would be a good character to teach kids about NF? Parents of lil ones know what I'm talkin about. What better way to educate ...

Family Guy

By guilty_spork · Posted June 21, 2009
In Neurofibromatosis, Inc. · 10 replies
Annother sunday brings my favorite time of the week. Cartoon night. Family Guy, Robot Chicken, Squidbillys Aqua Teen Hunger Force. No matter how bad life gets, politically incorrect, raucious humor always ...

Tumor Humor

By guilty_spork · Posted June 20, 2009
In Neurofibromatosis, Inc. · 19 replies
NF shouldnt define us and we shouldnt miss an opertunity to laugh to ouselves. I look like a troll with a big misshapen torso and spindly arms and legs. Somone told me I look like a gumdrop with praying ...

Bad day...

By guilty_spork · Posted June 11, 2009
In Neurofibromatosis, Inc. · 7 replies
Today is a bad day. I feel like my body is broken to pieces. Really tired and exausted. I cant think well enough to describe how I feel. Bleh to it all. Cant even sleep cuz my back and fingers hurt soo ...

Sensitivities...

By guilty_spork · Posted May 24, 2009
In Neurofibromatosis, Inc. · 64 replies
Does anyone have other extreme sensitivities? My sense of smell is overwhelming. Diapers or garbage make me extremely sick, Detergents and perfumes make me feel like my chest is caving in. Even the slightest ...

GI problems?

By guilty_spork · Posted May 23, 2009
In Neurofibromatosis, Inc. · 17 replies
Has anyone else had GI problems ? Lately I've been having some sort of indigestion and from the symptoms it seems like gastroparisis, which after some reading I learned was a possible NF symptom. Curious ...

OMG the PAIN !!!

By guilty_spork · Posted May 22, 2009
In Neurofibromatosis, Inc. · 25 replies
A few years ago I started to get pains and sensitivity in my left pinky which has now spread to other fingers and the other hand. The frequency and severity of the pain has increased exponentially and ...