About guilty_spork

• www.inspire.com/guilty_spork
• 32 years old, Male
• South Glens Falls, New York
• Joined May 22, 2009

Diagnosed at birth. NF never meant more than a few bumps and spots till my late 20's when I started getting pains in my fingers and back. At 31 I'm in almost constant pain and when I'm not I'm living in the shadow of the next sudden attack. Doctors have been less than understanding and till I found this site I never knew that there were other NF patients with pain problems. All I heard from doctors is how rare pain is with NF and that it "cant be that bad". Gave up my dream carreer and now I sit around at home planning my day around my med supply and pain level. Can anyone relate? I'm looking for anyone who knows this lifestyle... Even if you just wanna complain back n forth. I just need to know its not all in my mind. After browsing the site a bit, its clear that I'm not alone so please, I need to hear from you.