Living with cardiomyopathy and congestive heart failure

Discuss your experiences living with cardiomyopathy and congestive heart failure.


Chest Pains When Taking Medications Late??

  • By NotBrokenJustBent · New reply 7:41 am
  • 7 replies
  • I was just wondering if anyone else gets chest pains if you don't take your heart meds around the same time every day? I take Corg, Spironolactone and Lisinopril. Usually in the morning around 7:30. I ...

Meet new friends with dilated cardiomyopathy

  • By Callirose · New reply yesterday at 8:34 pm
  • 25 replies
  • I would love to start a group with members who have Dilated Cardiomyopathy. My goal is that we can explain how we are feeling and see if anyone else has the same symptoms and what treatment they are receiving ...


  • By babydolly · New reply April 22, 2014
  • 1 reply
  • Hi to you all just wanted some advice i have heart failure and have a cold and a cough at the moment am i still safe to exercise xx ...

A question for Australian Heart Sisters

  • By joy2day · New reply April 21, 2014
  • 5 replies
  • I am in the midst of planning a trip to Australia. I know it takes planning to maintain a low-sodium diet. I've notified my tour company and I am hopeful that the included meals will have some choices ...

Clinical trials

  • By debbiebutterfly · New reply April 20, 2014
  • 2 replies
  • There are some great trials going on....another forum posted about the parachute IV trial. Look it up! I called today as there is a site in my state ....a stem cell and gene therapy ...

Nuclear Test

  • By greenspirit · New reply April 18, 2014
  • 6 replies
  • I went for my Nuclear Testing two weeks ago ... I was very nervous, but it wasnt as bad as I thought it might be ... Anyway I went back for the results the other day and was told ... that the test was ...


  • By MammieG · New reply April 15, 2014
  • 26 replies
  • After months of complaining about my abdomen and upper legs being so swollen and tender to the touch, my condition has a name, "Ascites". In my case, it is from me having Congestive Heart Failure. I had ...

How long have you had Heart Failure?

  • By Katie1983 · New reply April 12, 2014
  • 1 reply
  • I went to see a new Cardiologist at New York Presbyterian Heart Institute in NYC today. I got an awesome Doctor. He diagnosed me with beginning stage 2 of Heart Failure. My heart is mildly dilated again ...

cardiology appointment today

  • By lmitchellmelvin · New reply April 6, 2014
  • 2 replies
  • Have to see what they say about what the next step to surgery ...


  • By MammieG · New reply April 5, 2014
  • 32 replies
  • On March 11, my Electrophysiologist diagnosed my swelling in my abdomen as Ascites. He referred me to another cardiologist to handle it. The new cardio doc ordered an Abdominal Sonogram, Echocardiogram ...

Recently diagnosed with CHF

  • By pegkoo · New reply April 2, 2014
  • 24 replies
  • Where to start.. hmm .. I've had swollen ankles & legs for years - thought it was only the pizza I had the night before.. Had shortness of breath and tightness for several years off and on - treated it ...

What Exactly is Going On and What Does it Mean?

  • By DeborahSu · New reply April 1, 2014
  • 3 replies
  • I posted this originally in my journal, then thought maybe that's not the best place for it. I've edited the closing a bit, as well, to clarify my questions. I'm new to all of this, having gone to the ...

ejection fraction

  • By snoogles49 · New reply April 1, 2014
  • 7 replies
  • I just had a visit with my doctor and apparently my ejection fraction has gone down. The last time I went it was 27% and I think it is now 20%. Can anyone tell me if this has happened to you and what ...

How is everyone doing?

  • By Katie1983 · New reply March 25, 2014
  • 3 replies
  • Just wondering how everyone is doing and managing your heart conditions. What's your story and how are you able to cope? would love to hear stories ...

Meet new friends with hypertrophic cardiomyopathy and left heart failure

  • By 4blessings4me · New reply March 22, 2014
  • 8 replies
  • I would love to meet new friends that are dealing with hypertrophic cardiomyopathy with left sided heart failure. How nice it will be to share similar situations/stories with someone like me ...

Why does heart keep getting enlarged then going back to normal size?

  • By Katie1983 · New reply March 22, 2014
  • 3 replies
  • In November of 2012 I had myocarditis. My EF was 44% on a cardiac MRI and my Left ventricle was mildly dilated and stiff. I was put on Coreg, Lasix, and Losartan. 8 months later I had a follow up MRI ...

muscle tention

  • By lmitchellmelvin · Posted March 19, 2014
  • 0 replies
  • I always have so much muscle tention. I have to get my little cousins to give me a massage especially in my neck area whyis that ...

Fighting Fatigue ughhhh Always Tired

  • By lmitchellmelvin · New reply March 18, 2014
  • 4 replies
  • I am taking a multi vitamin but it does nothing for the on going fatigue that I experience the more I sleep the more I become fatigued I try to move around but that makes it worst ...

I have a ?

  • By MammieG · New reply March 16, 2014
  • 18 replies
  • Does anyone experience discomfort when you prop something on your abdomen? I realize this is a petty question. I cannot even prop my iPad mini without discomfort, wearing a bra is painful as well but ...

All of this and now having a total hip replacement

  • By 4blessings4me · New reply March 9, 2014
  • 5 replies
  • I just turned 59 and about 2 yrs ago, I finally found out what has been going on with me for the past 5-6 yrs. I've seen a litany of doctors and have had so many tests/procedures, it just makes my head ...

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The information provided by this online support network through WomenHeart: The National Coalition for Women with Heart Disease and Inspire is for general informational purposes only. The information is not intended to substitute for professional medical advice, diagnoses, or treatment. If you are ill, or suspect that you are ill, see a doctor immediately. In an emergency, call 911 or go to the nearest emergency room. WomenHeart: The National Coalition for Women with Heart Disease never recommends or endorses any specific physicians, products or treatments for any condition.